绪论:将有意义的轶事患者理论化并应用于神经多样性研究

Sharrona Pearl
{"title":"绪论:将有意义的轶事患者理论化并应用于神经多样性研究","authors":"Sharrona Pearl","doi":"10.1098/rsnr.2021.0083","DOIUrl":null,"url":null,"abstract":"In the introduction to this issue of Notes and Records, I discuss key arguments of each of the essays and draw links between them. This volume is a rendering of both theory and practice in the history and narrative of neurology, facial difference, autism, face blindness and traumatic brain injury. The essays offer deep analytic insights but also a provocation: how do we frame individual cases and lived experience in the literature of neurodiversity? The scholarly essays offered by Stephen Caspar and Jonathan Cole theorize the role of the individual and the anecdotal as valuable both in framing empathy and diagnostic relationships and as a particular and often overlooked form of data. We see the manifestation of these theoretical arguments in Chloe Silverman's article, which draws our attention to the Reading the Mind in the Eyes Test, a widely used instrument in autism research. Accompanying these pieces are two interventions of creative non-fiction: Heather Sellers's essay on discovering her own prosopagnosia, and Jenny Edkins's poem on living with and being face blind. These pieces manifest the theoretical and grounded work of this volume, arguing in powerful ways for the individual story and sharing it here.","PeriodicalId":82881,"journal":{"name":"Tanzania notes and records","volume":"43 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2022-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Introduction: theorizing and applying the meaningfully anecdotal patient in neurodiversity research\",\"authors\":\"Sharrona Pearl\",\"doi\":\"10.1098/rsnr.2021.0083\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"In the introduction to this issue of Notes and Records, I discuss key arguments of each of the essays and draw links between them. This volume is a rendering of both theory and practice in the history and narrative of neurology, facial difference, autism, face blindness and traumatic brain injury. The essays offer deep analytic insights but also a provocation: how do we frame individual cases and lived experience in the literature of neurodiversity? The scholarly essays offered by Stephen Caspar and Jonathan Cole theorize the role of the individual and the anecdotal as valuable both in framing empathy and diagnostic relationships and as a particular and often overlooked form of data. We see the manifestation of these theoretical arguments in Chloe Silverman's article, which draws our attention to the Reading the Mind in the Eyes Test, a widely used instrument in autism research. Accompanying these pieces are two interventions of creative non-fiction: Heather Sellers's essay on discovering her own prosopagnosia, and Jenny Edkins's poem on living with and being face blind. These pieces manifest the theoretical and grounded work of this volume, arguing in powerful ways for the individual story and sharing it here.\",\"PeriodicalId\":82881,\"journal\":{\"name\":\"Tanzania notes and records\",\"volume\":\"43 1\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2022-01-26\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Tanzania notes and records\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1098/rsnr.2021.0083\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Tanzania notes and records","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1098/rsnr.2021.0083","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

摘要

在本期《笔记与记录》的导言中,我讨论了每篇文章的主要论点,并指出了它们之间的联系。这卷是在历史和神经学,面部差异,自闭症,脸盲症和创伤性脑损伤叙事理论和实践的渲染。这些文章提供了深刻的分析见解,但也提出了一个问题:我们如何在神经多样性的文献中构建个案和生活经验?斯蒂芬·卡斯帕(Stephen Caspar)和乔纳森·科尔(Jonathan Cole)提供的学术论文将个人和轶事的作用理论化,认为它们在构建同理心和诊断关系方面都很有价值,而且是一种特殊的、经常被忽视的数据形式。我们在克洛伊·西尔弗曼的文章中看到了这些理论论点的体现,这篇文章将我们的注意力吸引到了自闭症研究中广泛使用的“通过眼睛读心法”测试上。与这些作品同时出现的还有两篇创造性的非虚构作品:希瑟·塞勒斯关于发现自己的脸失认症的文章,以及珍妮·埃德金斯关于与脸盲共存和成为脸盲的诗歌。这些作品体现了本卷的理论和基础工作,以强有力的方式为个人故事争论,并在这里分享。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
Introduction: theorizing and applying the meaningfully anecdotal patient in neurodiversity research
In the introduction to this issue of Notes and Records, I discuss key arguments of each of the essays and draw links between them. This volume is a rendering of both theory and practice in the history and narrative of neurology, facial difference, autism, face blindness and traumatic brain injury. The essays offer deep analytic insights but also a provocation: how do we frame individual cases and lived experience in the literature of neurodiversity? The scholarly essays offered by Stephen Caspar and Jonathan Cole theorize the role of the individual and the anecdotal as valuable both in framing empathy and diagnostic relationships and as a particular and often overlooked form of data. We see the manifestation of these theoretical arguments in Chloe Silverman's article, which draws our attention to the Reading the Mind in the Eyes Test, a widely used instrument in autism research. Accompanying these pieces are two interventions of creative non-fiction: Heather Sellers's essay on discovering her own prosopagnosia, and Jenny Edkins's poem on living with and being face blind. These pieces manifest the theoretical and grounded work of this volume, arguing in powerful ways for the individual story and sharing it here.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
期刊最新文献
The ‘seductive scientist’: the emergence of a new persona centred on virility and joy in twentieth-century scientific memoirs The making of a naturalist in Manchuria: Arthur de Carle Sowerby, 1885–1922 Making science for the Portuguese Empire: The Royal Maritime, Military and Geographic Society (1798–1809) Redhead, Paroissien, Parish & Co.: British Field Science in early Independent Río de la Plata Sympathetic Organizations: body, mind, and society in Robert Whytt and David Hume
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1