患者对多发性硬化症病因的超自然信仰

IF 0.2 Q4 PEDIATRICS Journal of pediatric neurology Pub Date : 2022-12-23 DOI:10.1055/s-0043-57006
H. Çaksen
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Additionally, many genes may increase disease susceptibility in addition to several well-defined environmental factors such as low serum levels of vitamin D, smoking, ultraviolet B light exposure, childhood obesity, and infection with the Epstein–Barr virus.1 However, considerably less attention is focused on supernatural causes in MS.3 Herein, we discussed patients’ supernatural beliefs on cause of MS to attract attention to the importance of plausible supernatural causes in MS. “Supernatural” refers to a phenomenon or entity that is beyond the laws of nature. It is featured in folklore and religious contexts. It can also feature as an explanation in more secular contexts, as in the cases of superstitions or belief in the paranormal. The term is attributed to nonphysical entities, such as angels, demons, gods, and spirits.4 Frequent supernatural causes linked to illness in many cultures are fate (qadar), Allah’s will, a gift from Allah, test from Allah, punishment from Allah, Nazar (evil eye), Sihr (magic or sorcery), Jinn possession, lack of faith, payback for things done wrong, disobeying family, sinful acts, sinful thoughts, etc.5,6 Koffman et al3 explored meanings of illness causation amongMSpatients. Three central themes emerged from their interviews: uncertainty, logical and scientific, and supernatural explanations. The supernatural theme comprised of three subcategories: “my challenge, my test,” “punishment,” and “fate, destiny, or just bad luck.” The belief that MS could be associated with a “challenge” or “test” was deeply embedded within religious belief system of black Caribbeanparticipants. 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Chen et al8 found a negative connection between spirituality and disability in MS patients on the following items: “I believe that my disability is a punishment for wrongdoings that I have committed in the past” and “I believe that my disability is a punishment for the wrongdoings of my family members.” They also found a positive connection between spiritualityanddisabilityon following items: “I believe that, through my spiritual connection, my disability can be completely cured,” “I believe that my disability was caused by Allah or a spiritual power,” “my family believes that Allah or a spiritual power can reducemydisability,” “I amgrateful to Allah or a spiritual power that I havemydisability,” and “I believe that there isaspiritual reason formydisability.” In thisseries,mostof the participants (91.6%)were Caucasian (non-Hispanic) and the most common religious affiliation was Protestant (62.1%), followed by Catholic (23.8%), and atheist (7.9%).8 A quarter of MS patients gave nonmedical explanations such as chance, destiny, and supernatural causes about causation of MS.9 In another series supernatural reasons includingmagic, possession, and/or an “evil eye” were noted in more than half of MS patients as a","PeriodicalId":16729,"journal":{"name":"Journal of pediatric neurology","volume":"104 1","pages":""},"PeriodicalIF":0.2000,"publicationDate":"2022-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Patients' Supernatural Beliefs on Cause of Multiple Sclerosis\",\"authors\":\"H. 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The term is attributed to nonphysical entities, such as angels, demons, gods, and spirits.4 Frequent supernatural causes linked to illness in many cultures are fate (qadar), Allah’s will, a gift from Allah, test from Allah, punishment from Allah, Nazar (evil eye), Sihr (magic or sorcery), Jinn possession, lack of faith, payback for things done wrong, disobeying family, sinful acts, sinful thoughts, etc.5,6 Koffman et al3 explored meanings of illness causation amongMSpatients. Three central themes emerged from their interviews: uncertainty, logical and scientific, and supernatural explanations. The supernatural theme comprised of three subcategories: “my challenge, my test,” “punishment,” and “fate, destiny, or just bad luck.” The belief that MS could be associated with a “challenge” or “test” was deeply embedded within religious belief system of black Caribbeanparticipants. 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引用次数: 0

摘要

多发性硬化症(MS)是影响年轻人最常见的非创伤性致残性神经系统疾病之一。它是一种中枢神经系统慢性自身免疫性疾病,临床表现多灶性,受多种外部因素调节。1,2 MS的病因尚不清楚,但它历来被归类为器官特异性t细胞介导的自身免疫性疾病。此外,除了一些明确的环境因素,如血清维生素D水平低、吸烟、紫外线B照射、儿童肥胖和感染eb病毒等,许多基因可能会增加疾病的易感性然而,MS中对超自然原因的关注要少得多。3在这里,我们讨论了患者对MS病因的超自然信仰,以引起人们对MS中合理的超自然原因的重要性的关注。“超自然”是指超越自然规律的现象或实体。它在民间传说和宗教背景中很有特色。它也可以在更世俗的背景下作为一种解释,比如迷信或对超自然现象的信仰。这个词被认为是指非物质实体,如天使、魔鬼、神和精灵在许多文化中,与疾病相关的常见超自然原因有命运(卡达尔)、安拉的意志、安拉的礼物、安拉的考验、安拉的惩罚、Nazar(邪恶的眼睛)、Sihr(魔法或巫术)、精灵附身、缺乏信仰、做错事的报应、不服从家庭、罪恶的行为、罪恶的想法等。采访中出现了三个中心主题:不确定性、逻辑和科学以及超自然的解释。超自然主题由三个子类组成:“我的挑战,我的考验”,“惩罚”和“命运,宿命,或者只是运气不好”。认为多发性硬化症可能与“挑战”或“测试”有关的信念深深植根于加勒比黑人参与者的宗教信仰体系中。命运、命运或厄运的分类也专门针对加勒比黑人参与者,他们中的许多人利用圣经短语来帮助传达他们的想法。他们提供的说法是,他们的死亡被视为安拉对他们生命计划的不可避免的一部分。惩罚的特点是不法行为,在某些情况下被认为是一种报复。加勒比海黑人和英国白人的参与者都表达了这一观点,他们要么认为自己受到的惩罚是合理的,针对的是他们个人,要么是更广泛地针对人类。两组中的大多数参与者都是基督徒。Obiwuru等人注意到,西班牙裔美国参与者中,超过一半的人将社会文化因素(如超自然事件(来自安拉的礼物)和经历强烈的情绪(恐惧和悲伤))视为MS的感知原因。Chen等人在以下项目中发现MS患者的灵性与残疾之间存在负相关:“我相信我的残疾是对我过去所犯错误的惩罚”,“我相信我的残疾是对我家人所犯错误的惩罚”。他们还在以下项目中发现了精神和残疾之间的积极联系:“我相信,通过我的精神联系,我的残疾可以完全治愈”,“我相信我的残疾是由安拉或精神力量造成的”,“我的家人相信安拉或精神力量可以减少我的残疾”,“我感谢安拉或精神力量使我残疾”,以及“我相信我残疾是有精神原因的”。在这个系列中,大多数参与者(91.6%)是白种人(非西班牙裔),最常见的宗教信仰是新教(62.1%),其次是天主教徒(23.8%)和无神论者(7.9%)四分之一的多发性硬化症患者给出了非医学原因的解释,如机会、命运和超自然原因。在另一个系列中,超过一半的多发性硬化症患者认为超自然原因包括魔法、附身和/或“邪恶之眼”
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Patients' Supernatural Beliefs on Cause of Multiple Sclerosis
Multiple sclerosis (MS) is one of the most common nontraumatic disabling neurological disorders to affect young adults. It is a chronic autoimmune disease of the central nervous system presented with multifocal clinical findings modulated by various external factors.1,2 The cause of MS is unknown, but it has historically been classified as an organspecific T-cell mediated autoimmune disease. Additionally, many genes may increase disease susceptibility in addition to several well-defined environmental factors such as low serum levels of vitamin D, smoking, ultraviolet B light exposure, childhood obesity, and infection with the Epstein–Barr virus.1 However, considerably less attention is focused on supernatural causes in MS.3 Herein, we discussed patients’ supernatural beliefs on cause of MS to attract attention to the importance of plausible supernatural causes in MS. “Supernatural” refers to a phenomenon or entity that is beyond the laws of nature. It is featured in folklore and religious contexts. It can also feature as an explanation in more secular contexts, as in the cases of superstitions or belief in the paranormal. The term is attributed to nonphysical entities, such as angels, demons, gods, and spirits.4 Frequent supernatural causes linked to illness in many cultures are fate (qadar), Allah’s will, a gift from Allah, test from Allah, punishment from Allah, Nazar (evil eye), Sihr (magic or sorcery), Jinn possession, lack of faith, payback for things done wrong, disobeying family, sinful acts, sinful thoughts, etc.5,6 Koffman et al3 explored meanings of illness causation amongMSpatients. Three central themes emerged from their interviews: uncertainty, logical and scientific, and supernatural explanations. The supernatural theme comprised of three subcategories: “my challenge, my test,” “punishment,” and “fate, destiny, or just bad luck.” The belief that MS could be associated with a “challenge” or “test” was deeply embedded within religious belief system of black Caribbeanparticipants. The categoryof fate, destiny, or bad luck was also specific to black Caribbean participants, a number of whom drew on biblical phrases to help convey their thoughts. They provided accounts where theirMSwas viewed an inevitable part of Allah’s life plan for them. Punishment was characterized by wrongdoing that in some instances justified as a retribution. It was voiced by participants across both black CaribbeanandwhiteBritish ethnic groupswhoeither perceived their punishment as being justified, leveled at them personally or more widely at humankind. Most of the participants in both groups were Christian.3 Obiwuru et al7 noted that of Hispanic Americans participants more than half expressed sociocultural factors such as supernatural events (a gift from Allah) and experiencing strong emotions (fright and sadness) as the perceived cause of MS. Chen et al8 found a negative connection between spirituality and disability in MS patients on the following items: “I believe that my disability is a punishment for wrongdoings that I have committed in the past” and “I believe that my disability is a punishment for the wrongdoings of my family members.” They also found a positive connection between spiritualityanddisabilityon following items: “I believe that, through my spiritual connection, my disability can be completely cured,” “I believe that my disability was caused by Allah or a spiritual power,” “my family believes that Allah or a spiritual power can reducemydisability,” “I amgrateful to Allah or a spiritual power that I havemydisability,” and “I believe that there isaspiritual reason formydisability.” In thisseries,mostof the participants (91.6%)were Caucasian (non-Hispanic) and the most common religious affiliation was Protestant (62.1%), followed by Catholic (23.8%), and atheist (7.9%).8 A quarter of MS patients gave nonmedical explanations such as chance, destiny, and supernatural causes about causation of MS.9 In another series supernatural reasons includingmagic, possession, and/or an “evil eye” were noted in more than half of MS patients as a
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来源期刊
CiteScore
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52
期刊介绍: The Journal of Pediatric Neurology is a multidisciplinary peer-reviewed medical journal publishing articles in the fields of childhood neurology, pediatric neurosurgery, pediatric neuroradiology, child psychiatry and pediatric neuroscience. The Journal of Pediatric Neurology, the official journal of the Society of Pediatric Science of the Yüzüncü Yil University in Turkiye, encourages submissions from authors throughout the world. The following articles will be considered for publication: editorials, original and review articles, rapid communications, case reports, neuroimage of the month, letters to the editor and book reviews.
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