孤独症儿童和胎儿酒精谱系障碍儿童照料者人口学特征和临床特征的比较

IF 1.6 4区 医学 Q2 EDUCATION, SPECIAL Journal of Mental Health Research in Intellectual Disabilities Pub Date : 2022-03-17 DOI:10.1080/19315864.2022.2047845
B. Redquest, Lachina McKenzie, J. Lake, K. Fung, Y. Lunsky
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引用次数: 1

摘要

自闭症儿童的照顾者和胎儿酒精谱系障碍(FASD)儿童的照顾者承受着相当大的压力。然而,这些群体之间的独特或相似之处仍未得到充分研究。本研究探讨了注册参加以照顾者为中心的心理健康干预的FASD儿童的女性照顾者与参加类似干预的自闭症儿童的女性照顾者之间的差异。方法干预前,对21名FASD患儿的照顾者和22名自闭症患儿的照顾者进行在线基线问卷调查。该问卷收集了有关照顾者和儿童人口统计数据的信息,以及与健康、价值观和照顾者认为抚养孩子的回报和挑战相关的临床特征。结果发现,在幸福感、价值观以及他们认为抚养孩子的挑战和回报方面,照顾者群体之间存在相似之处。结论考虑到这两个照顾者群体的相似性,以及对FASD患者家庭相对于自闭症患者家庭的研究不足,自闭症社区家庭照顾者的干预措施可能也适用于资源较少的FASD家庭。
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A Comparison of the Demographic and Clinical Characteristics of Caregivers of Autistic Children and Caregivers of Children with Fetal Alcohol Spectrum Disorder
ABSTRACT Introduction Caregivers of autistic children and caregivers of children with fetal alcohol spectrum disorder (FASD) experience considerable stress. However, what is unique or similar across these groups remains understudied. This study explored how female caregivers of children with FASD who registered to participate in a caregiver focused mental health intervention differed from female caregivers of autistic children participating in a similar intervention. Methods Prior to the intervention, caregivers of children with FASD (n = 21), and caregivers of autistic children (n = 22) were asked to complete an online baseline questionnaire. This questionnaire collected information pertaining to caregiver and child demographics, as well as clinical characteristics related to wellbeing, values, and what caregivers identified as rewarding and challenging about raising their child. Results Results identified similarities across caregiver groups in terms of wellbeing, values, and the challenges and rewards they identified with raising their children. Conclusions Given the similarities in these two caregiver groups, and the shortage of research on families of people with FASD relative to families of autistic people, interventions for family caregivers in the autism community may also be applicable for FASD families, for whom fewer resources are available.
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来源期刊
CiteScore
3.30
自引率
8.00%
发文量
23
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