“觉醒的艺术故事”-利用TimeSlips重新发现痴呆症患者的照片:一项试点研究

Andrea Loizeau , Yvonne Kündig , Sandra Oppikofer
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引用次数: 12

摘要

“觉醒的艺术故事”是首个针对痴呆症患者及其照顾者的创造性表达干预研究。这项研究是在瑞士的Kunsthaus博物馆进行的。干预措施利用TimeSlips鼓励痴呆症患者创作关于艺术品的故事,以回应开放式问题。这项初步研究的目的是评估通过讲故事和社交聚会进行干预的有效性和可行性。材料和方法采用混合方法进行前后设计,采用半结构化访谈、书面问卷、经过验证和调整的量表、自行生成的观察表以及视觉模拟量表来评估干预的有效性和可行性。参加者包括四名残疾人士和他们的照顾者,以及四名在活动期间为残疾人士提供支援的义工。定性数据采用专题分析和描述性观察以及参与者的进一步反馈进行分析,而定量数据采用Wilcoxon符号秩检验进行分析。结果定量研究结果显示,在博物馆活动结束后,残疾人和照顾者的笑脸评估量表上的情绪有统计学显著的正向影响(所有参与者:Z= - 4.84, p<0.001;pwd: Z=−3.57,p<0.001;照顾者:Z=−3.34,p<0.001)。在痴呆症态度量表上,照顾者和志愿者对痴呆症的态度没有显著差异。在照顾者负担量表上也没有发现显著差异。虽然定性研究结果通过专题分析显示,虽然残疾人将他们的情绪归因于氛围,但护理人员将其归因于社会交往。所有护理人员和大多数志愿者都报告说,他们对痴呆症的态度发生了积极的变化。此外,残疾人士表示,他们欢迎有机会发表意见和表达意见。所有的参与者都对他们的经历非常满意。尽管样本量小,但让残疾人及其护理人员接触艺术的许多好处,以及基于TimeSlips的创新干预的可行性,都得到了定量和定性的证据。
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‘Awakened Art Stories’—Rediscovering pictures by persons living with dementia utilising TimeSlips: A Pilot Study

Introduction

‘Awakened Art Stories’ is the first creative expression intervention study for persons with dementia (PWD) and their caregivers. The study was conducted at the Kunsthaus Museum in Switzerland. The intervention utilised TimeSlips to encourage persons living with dementia to create stories about artwork in response to open-ended questions. The aim of this pilot study was to assess the efficacy and feasibility of an intervention through storytelling and a social gathering.

Materials and method

A mixed-method pre-post design using semi-structured interviews, written questionnaires, validated and adapted scales, and a self-generated observations' sheet as well as a visual analogue scale assessed the efficacy as well as the feasibility of the intervention. Participants were four PWDs and their caregivers as well as four volunteers, who supported the PWDs during the sessions. Qualitative data were analysed using thematic analyses and descriptive observations, as well as further feedback from participants, while a Wilcoxon signed-rank test was used to analyse quantitative data.

Results

The quantitative findings revealed a statistically significant, positive effect on PWDs' and caregivers' mood on the Smiley-Face Assessment Scale directly after the museum session (all participants: Z=−4.84, p<0.001; PWDs: Z=−3.57, p<0.001; Caregivers: Z=−3.34, p<0.001). On the Dementia Attitudes Scale, no significant differences in the caregivers' and volunteers' attitudes towards dementia were found. No significant differences were found on the Caregiver Burden Inventory either. Although the qualitative findings revealed via thematic analyses that while PWDs attributed their mood to the atmosphere, caregivers attributed it rather to social contacts. All caregivers and most of the volunteers reported a positive change in their attitude towards dementia. In addition, PWDs' reported that they welcomed the opportunity to contribute and express their thoughts. All participants were highly satisfied with their experience.

Conclusion

Despite the small sample size, the many benefits of making art accessible to PWDs and their caregivers, as well as the feasibility of an innovative intervention based on TimeSlips resulted in both quantitative and qualitative evidence.

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Editorial Board Editorial Board ‘Awakened Art Stories’—Rediscovering pictures by persons living with dementia utilising TimeSlips: A Pilot Study Takotsubo Cardiomyopathy and emotion regulation: Risk and prevention Prevalence of depressive symptoms in the older population
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