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引用次数: 2
摘要
摘要目的:在早期研究的基础上,本研究探讨了获得性脑损伤(ABI)后叙述性讲故事的经历和影响,旨在研究讲故事促进者与讲故事者的互动。方法:采用内容分析法对6位讲故事引导者的深度访谈笔录进行分析。该分析包括将先前分析的数据(D 'Cruz等人,2020b)映射到人性化价值观框架(Galvin & Todres, 2013;Todres et al., 2009)。结果:本研究的发现提供了关于辅导员如何在讲故事倡导计划的背景下从事人性化实践的见解。促进者参与者的促进经验从1年到11年不等,他们的专业背景各异,包括卫生保健(3)、新闻(1)和社区发展(2)。分析了促进者数据,将其映射到框架的八个维度(内在性、能动性、独特性、团结性、意义构建、个人旅程、地方感和化身)中的每一个维度,每个维度都代表了广泛的代码,揭示了人性化的深度。结论:这项研究扩展了我们对与ABI患者接触的方法的理解,展示了讲故事的人性化潜力。此外,这些发现帮助我们思考作为人类意味着什么,指导我们找到更好的合作伙伴和支持患有脑损伤的成年人的方法。
Humanising brain injury rehabilitation: a qualitative study examining humanising approaches to engagement in the context of a storytelling advocacy programme
Abstract Objectives: Building upon the findings of an earlier study that explored the experience and impact of narrative storytelling following acquired brain injury (ABI), this study sought to examine the engagement of storytelling facilitators with storytellers. Methods: Transcripts of in-depth interviews conducted with six storytelling facilitators were analysed drawing upon content analysis. The analysis included a process of mapping previously analysed data (D’Cruz et al., 2020b) to a humanising values framework (Galvin & Todres, 2013; Todres et al., 2009). Results: The findings of this study provide insights into how facilitators engaged in humanising practice within the context of a storytelling advocacy programme. The facilitator participants ranged in years of facilitation experience from 1 to 11 years, with a mix of professional backgrounds, including health care (3), journalism (1) and community development (2). Analysed facilitator data mapped to each of the eight dimensions of the framework (insiderness, agency, uniqueness, togetherness, sense-making, personal journey, sense of place and embodiment), with a breadth of codes represented in each dimension, revealing the depth of humanisation. Conclusions: This study extends our understanding of approaches to engagement with adults living with ABI, demonstrating the humanising potential of storytelling. Furthermore, the findings help us to think about what it means to be human, guiding us to find ways to better partner with and support adults living with brain injury.
期刊介绍:
The journal addresses topics related to the aetiology, epidemiology, treatment and outcomes of brain impairment with a particular focus on the implications for functional status, participation, rehabilitation and quality of life. Disciplines reflect a broad multidisciplinary scope and include neuroscience, neurology, neuropsychology, psychiatry, clinical psychology, occupational therapy, physiotherapy, speech pathology, social work, and nursing. Submissions are welcome across the full range of conditions that affect brain function (stroke, tumour, progressive neurological illnesses, dementia, traumatic brain injury, epilepsy, etc.) throughout the lifespan.