深入了解晚期癌症患者社会比较的使用

R. Starkings, V. Jenkins, V. Shilling
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引用次数: 0

摘要

PROACT(患者报告的癌症预后,年龄和护理人员角色需求与治疗相关的影响)研究的主要目的是开发两个测量癌症对癌症患者和支持他们的个人的健康和照顾责任的影响的量表。该项目包括四个连续的研究;第一阶段是收集定性叙述,以了解患者/护理者的经验。本文报告了这些叙述中的一个偶然发现。研究人员进行了半结构化访谈,探讨了参与者对癌症对其生活质量影响的看法。他们采访了24名III/IV期癌症患者,他们来自三个肿瘤组:肺癌(n=6)、黑色素瘤(n=9)和卵巢癌(n=9),以及23名非正式护理人员。访谈被逐字记录和转录,并通过开放编码开发了一个框架。专题分析采用了框架方法。结果确定了20个主题和33个副主题,包括对护理和就业的影响等主题。有一个意外的发现是,参与者在描述他们的情况时反复使用“运气”或好运的概念。虽然这本身不是一个主题,但这种叙述在整个框架中都存在,当个体与被认为面临更多困难的“其他”群体进行比较时,就会发生这种情况。该分析提供了对晚期疾病环境中患者和非正式护理人员使用语言的见解,为未来研究探索这对二元健康的任何影响奠定了基础。这些解释形成了一个基础,以探索这种语言是否可以被医疗保健专业人员利用,以提供符合个人对其情况概念化的信息。
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Insights into the use of social comparisons within an advanced cancer setting
Background The PROACT (Patient Reported Outcomes in cancer, impact of Age and Carer role demands associated with Treatment) study had the primary aim of developing two scales measuring the impact of cancer on wellbeing and caregiving responsibilities, for people with cancer and the individuals supporting them. The project consisted of four consecutive studies; the first stage was the collection of qualitative narratives to understand the patient/caregiver experience. This paper reports on an incidental finding from these narratives. Methods The researchers conducted semi-structured interviews exploring participants’ views on the impact cancer had on their quality of life. They interviewed 24 people with stage III/IV cancer from three tumor groups, Lung (n=6), Melanoma (n=9) and Ovarian (n=9), and 23 informal caregivers. Interviews were recorded and transcribed verbatim and a framework was developed through open coding. A framework approach to thematic analysis was employed. Results Twenty themes and 33 sub-themes were identified including topics such as impact for caregiving and employment. There was an unplanned finding of participants recurrently using concepts of ‘luck’ or good fortune when describing their situations. While not a theme itself this narrative was present across the framework, occurring when individuals made comparisons to ‘other’ groups of people perceived as facing more difficulties. Conclusions This analysis provides insight into the use of language by both patients and informal caregivers in the advanced disease setting, laying the foundation for future research exploring any effects this has on dyadic wellbeing. These interpretations form a basis to explore whether this language can be harnessed by healthcare professionals to deliver information in line with an individual’s conceptualization of their situation.
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