“一起夺回控制权”:一种新的干预措施的定义,旨在支持面临儿童癌症的父母

D. Ogez, K. Péloquin, L. Bertout, C. Bourque, D. Curnier, S. Drouin, C. Laverdière, V. Marcil, Jennifer Aramideh, Rebeca Ribeiro, É. Rondeau, D. Sinnett, S. Sultan
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引用次数: 3

摘要

父母痛苦是儿科肿瘤学的一个主要问题。文献表明,旨在支持父母的干预计划在减少孩子癌症诊断后父母的痛苦方面是有效的。然而,大多数计划都有局限性,最常见的是它们关注个人(而不是家庭),以及它们的传播可能性。“一起夺回控制权”是一项综合计划,旨在应对这些限制,并充分利用现有的有效成分。根据行为医学的发展标准(ORBIT模型),这个6次的项目旨在通过加强4次单独的问题解决技巧(PSST)和2次与父母夫妇的沟通和二元应对来减少父母的痛苦。该计划最初是用法语开发的,现在正在改编成英语。由于该项目同时解决了个体PSST和二元应对问题,因此预计它将比现有的干预措施为父母带来更多的好处。在定义的第一阶段之后,应该对程序进行预测试以进行细化,并进行试点测试。本文旨在介绍该计划的定义,包括照顾者和家长的手册,以及工作表和电子资源。
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“Taking back control together”: Definition of a new intervention designed to support parents confronted with childhood cancer
Abstract Parental distress is a major issue in pediatric oncology. The literature shows that intervention programs aimed at supporting parents are effective in reducing parental distress following their child’s cancer diagnosis. However, most programs bear limitations, most often related to their focus on the individual (rather than the family), and their dissemination possibilities. TAKING BACK CONTROL TOGETHER is an integrative program which was developed to respond to these limitations and take the best of effective existing components. In line with development standards from behavioral medicine (ORBIT model), this 6-sessions program aims to reduce parental distress by reinforcing both Problem Solving Skills Techniques (PSST) in 4 individual sessions and communication within the couple and dyadic coping in 2 sessions with the parent couple. The program was first developed in French-language and is now being adapted in English. Because the program addresses both individual PSST and dyadic coping, it is expected to yield more benefits for parents than existing interventions. After this first phase of definition, the program should be pre-tested for refinement, and pilot-tested. This article aims to present the definition of this program, including handbooks for caregivers and parents, as well as worksheets and electronic resources.
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