7 - 11岁智障儿童的生活质量。巴兰基亚2017—2018年。

Pediatría Pub Date : 2021-04-16 DOI:10.14295/RP.V53I4.206
Irma Caro Castelar, Sindy Margareth Bermejo Padilla, Osmar Pérez, Victor Barbosa Sarabia, Lady Triviño Barrios
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摘要

背景:智力残疾约占世界人口的3%,儿童人口的增长率高达10%。智力残疾需要不同专业领域、医疗、心理和教育服务的跨学科干预。了解这些患者的生活质量是审查方案、建议和决策的基础,重点是改善他们的生活质量。目的:评价7 ~ 11岁智力障碍儿童的生活质量。巴兰基亚,2017 - 2018年。材料与方法:描述性、前瞻性研究,采用调查法;7到11岁之间的患者被诊断为某种程度的智力障碍,由神经科儿科进行随访。应用、设计和验证儿童生活量表来评估智障儿童和青少年的生活质量。结果:男性在人群中出现频率最高,为61%,平均年龄为9.2±1.4岁,50%有轻度智力障碍,社会包容有69% <50百分位数,自我决定有51%百分位数≥50,情绪幸福有54%百分位数≥50。结论:7 ~ 11岁智障儿童的生活质量指数为37%,低于第50百分位,表明他们对生活质量的感知存在一定程度的不足,主要表现在自我决定、人际关系、身体健康和个人发展等方面。
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Calidad de vida en población pediátrica entre los 7 a 11 años con discapacidad intelectual. Barranquilla 2017–2018.
Background: Intellectual disability occurs in approximately 3% of the world population, increase in the child population by up to 10%. Intellectual disability requires interdisciplinary intervention in different professional areas, medical, psychological, and educational services. Knowledge about the quality of life in these patients is the cornerstone in reviewing protocols, recommendations, and decision-making to focus on improving their quality of life. Objective: Evaluate the quality of life in children between 7 and 11 years old with intellectual disabilities. Barranquilla, period 2017 - 2018. Materials and Methods: Descriptive, prospective study with survey application; patients between 7 and 11 years of age diagnosed with some degree of intellectual disability, being followed up by neuro pediatric. The KidsLife Scale was applied, designed, and validated to assess children and adolescent's quality of life with intellectual disabilities. Results: The male sex reached the highest frequency of population with 61%, mean age 9.2 ± 1.4 years, 50% had a mild intellectual disability, the distribution by dimensions showed that for social inclusion, 69% had a <50 percentile, in self-determination 51% percentile ≥ 50, in emotional well-being 54% percentile ≥ 50. Conclusions: The quality-of-life index in children between 7 to 11 years of age with an intellectual disability presents lower 50th percentiles in 37%, which that demonstrates a perception of quality of life with some degree of deficiency, denoting itself primarily in the dimensions of self-determination, interpersonal relationships, physical well-being, and personal development.
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