一个看不见的问题:卫生和司法专业中的耻辱和FASD诊断

IF 0.8 Q4 PSYCHOLOGY, CLINICAL Advances in Dual Diagnosis Pub Date : 2020-11-13 DOI:10.1108/add-07-2020-0014
Katharine Dunbar Winsor
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引用次数: 5

摘要

目的胎儿酒精谱系障碍(FASD)是一种影响大脑和身体的复杂的终身障碍。患有FASD的个体可能需要终身支持,并且经历不良后果的风险更高,包括监禁。FASD患者面临与FASD相关的污名,这影响了诊断的披露和获得支持的机会。FASD的患病率超过了其他发育性残疾,但它仍然不那么明显和污名化。设计/方法/方法对加拿大一个省的卫生保健和司法专业人员进行的访谈探讨了他们参加FASD的经历和污名化的挑战。调查结果虽然难以获得,但诊断提供了获得支持的途径,在刑事司法程序中至关重要。卫生和司法系统的可见性和不可见性突出了对FASD及其周围污名缺乏了解。如果没有得到解决,FASD患者将面临更多的挑战,这些挑战来自于缺乏参与他们生活的专业人士的信息和策略。原创性/价值在FASD的理解中是一个重要而复杂的问题。本研究探讨了这种关系以及FASD耻辱在卫生保健和司法环境中产生影响的机制。
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An invisible problem: stigma and FASD diagnosis in the health and justice professions
Purpose Fetal alcohol spectrum disorder (FASD) is a complex lifelong disorder impacting the brain and body. Individuals with FASD may require lifelong supports and are at a higher risk of experiencing adverse outcomes, including incarceration. Individuals with FASD face stigma related to FASD that impacts disclosure of the diagnosis and access to supports. The prevalence of FASD exceeds that of other developmental disabilities, yet it remains less visible and stigmatized. Design/methodology/approach Interviews conducted with health-care and justice professionals in a Canadian province explore their experiences attending to FASD and challenges of stigma. Findings While difficult to access, diagnosis provides a pathway to supports and is crucial in the criminal justice process. Visibility and invisibility in health and justice systems highlight the lack of understanding of FASD and surrounding stigma. When unaddressed, individuals with FASD face additional challenges stemming from a lack of information and strategies by professionals involved in their lives. Originality/value Stigma represents a significant and complex issue intertwined in understandings of FASD. This research explores this relationship and the mechanisms through which FASD stigma has impacts in health-care and justice settings.
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来源期刊
Advances in Dual Diagnosis
Advances in Dual Diagnosis PSYCHOLOGY, CLINICAL-
CiteScore
1.50
自引率
33.30%
发文量
15
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