父母患有癌症的儿童的生活质量、压力反应和自尊的CLIMB®项目评估:试点研究

Yuko Akagawa, H. Andoh, Tomoko Ito, Mai Narita, Kaori Osawa, S. Heiney, Sachiko Makabe
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引用次数: 1

摘要

父母患有癌症的孩子会表达对癌症传染、父母死亡和生命安全的恐惧。CLIMB®(儿童生命包括勇敢时刻)是一项支持计划,旨在提高儿童应对父母癌症的能力。本初步研究旨在描述CLIMB®对父母一方患有癌症的儿童的情感影响。评估小学生生活品质量表(QOL)、儿童压力反应量表(SRS-C)、自尊及满意度。参与者为7名儿童(3名女孩,4名男孩)。所有参与者都对CLIMB®感到满意。生活质量评分从79.9分显著提高(SD, 19.1;干预前的中位数为86.7分,干预前为85.1分(SD, 15.7;中位数,90.0)分,表明生活质量有所改善(p=0.046)。量表的性别差异无统计学意义。在干预前和干预后的SRS-C得分中,没有项目显示出显著差异。总分下降,表明应激反应下降。男孩们在身体状态量表上的得分略有上升。自尊量表总分(p=0.028)、自我关系量表(p=0.042)和自我主张与自我决定量表(p=0.038)干预前与干预后得分差异显著增加。在CLIMB®期间,儿童获得了准确的癌症知识;并且重视与处于相同情况的人分享他们的感受。孩子们对这个项目非常满意,尽管在生活质量和压力方面有很小的变化。
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CLIMB® Program Evaluation of Quality of life, the Stress Response, Self Esteem in Children Whose Parent Has Cancer: Pilot Study
Children with a parent who has cancer express fears about cancer contagion, parental death and security of their life. CLIMB® (Children’s Lives Include Moments of Bravery) is a support program to improve children’s ability to cope with their parent’s cancer. This pilot study aims to describe the emotional impact of CLIMB® on children with a parent who has cancer. The elementary school version of QOL (Quality of life), the SRS-C (Stress Response Scale for Children), Self Esteem, and satisfaction were evaluated. Participants were seven children (three girls, four boys). All participants were satisfied with CLIMB®. The QOL scores significantly increased from 79.9 (SD, 19.1; median, 86.7) points before the intervention to 85.1 (SD, 15.7; median, 90.0) points after the intervention, indicating an improvement in the QOL (p=0.046). Subscale was no significant difference according to sex. In the SRS-C scores no item showed significant differences in the pre- and post-intervention scores. The total score had decreased, indicating a decrease in the stress response. The boys showed a slight increase in the scores on the physical state subscale. The self-esteem scale scores were difference between the pre- and post-intervention scores increased significantly for the total score (p=0.028) and the subscales of “self in relationships” (p=0.042) and “self-assertion and self-determination” (p=0.038). During CLIMB®, children received accurate cancer knowledge; and valued sharing their feelings among others who are in the same situation. Children were highly satisfied with the program, although small changes were seen in QOL and stress.
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