问题同意:搜索遗传家谱数据库为执法目的

IF 1.3 4区 医学 Q4 BIOTECHNOLOGY & APPLIED MICROBIOLOGY New Genetics and Society Pub Date : 2020-11-18 DOI:10.1080/14636778.2020.1843149
Gabrielle Samuel, D. Kennett
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引用次数: 9

摘要

基因家谱数据库对执法机构特别有吸引力,特别是在美国,它们已经开始雇用家谱学家,用来自身份不明的人类遗骸(自杀、失踪人员)或严重犯罪现场的未知来源DNA进行搜索,以帮助分别识别受害者或潜在的犯罪嫌疑人。虽然这种调查基因谱系(IGG)技术很有希望,但它的使用——特别是在严重的刑事调查中——引发了一系列社会和伦理问题。获得基因谱系数据库用户对IGG的同意一直被认为是解决这些问题的一种方法。虽然对同意重要性的批评在生物医学和法医生物库文献中有很好的记录,但尚未对免疫组进行探讨。我们试图通过探索英国利益相关者的观点来解决这一差距。我们的研究问题是:英国公众和专业利益相关者对IGG用于严重刑事案件时同意程序的重要性有何看法?方法方法是基于访谈和探索性的。我们的分析发现,所有受访者都强调同意的重要性,尽管受访者的叙述指出,个人同意作为IGG的伦理灵丹妙药的不足之处。
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Problematizing consent: searching genetic genealogy databases for law enforcement purposes
Genetic genealogy databases have become particularly attractive to law enforcement agencies, especially in the United States (US), which have started to employ genealogists to search them with unknown origin DNA from unidentified human remains (suicides, missing persons) or from a serious crime scene, to help identify the victim, or a potential suspected perpetrator, respectively. While this investigative genetic genealogy (IGG) technique holds much promise, its use – particularly during serious criminal investigations – has sparked a range of social and ethical concerns. Receiving consent for IGG from genetic genealogy database users has been argued as a way to address such concerns. While critiques of the importance of consent are well documented in the biomedical and forensic biobanking literature, this has not been explored for IGG. We sought to address this gap by exploring the views of UK stakeholders. Our research question was: what are UK public and professional stakeholders’ views about the importance of the consent process for IGG when used for serious criminal cases? The methodological approach was interview-based and exploratory. Our analysis identified that all interviewees stressed the importance of consent, though interviewees’ narratives pointed to inadequacies of individual-based consent as an ethical panacea for IGG.
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来源期刊
New Genetics and Society
New Genetics and Society 生物-生物工程与应用微生物
CiteScore
4.30
自引率
16.70%
发文量
19
审稿时长
>12 weeks
期刊介绍: New Genetics and Society: Critical Studies of Contemporary Biosciences is a world-leading journal which: -Provides a focus for interdisciplinary and multi-disciplinary, leading-edge social science research on the new genetics and related biosciences; -Publishes theoretical and empirical contributions reflecting its multi-faceted development; -Provides an international platform for critical reflection and debate; -Is an invaluable research resource for the many related professions, including health, medicine and the law, wishing to keep abreast of fast changing developments in contemporary biosciences. New Genetics and Society publishes papers on the social aspects of the new genetics (widely defined), including gene editing, genomics, proteomics, epigenetics and systems biology; and the rapidly developing biosciences such as biomedical and reproductive therapies and technologies, xenotransplantation, stem cell research and neuroscience. Our focus is on developing a better understanding of the social, legal, ethical and policy aspects, including their local and global management and organisation.
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