神经发育障碍患者关于感觉问题的自我照顾的定性和定量分析

Makoto Wada, Katsuya Hayashi, Kai Seino, Naomi Ishii, Taemi Nawa, K. Nishimaki
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引用次数: 0

摘要

与神经发育障碍相关的感觉处理问题(以下简称感觉问题)在6 - 9岁尤为突出,是学校生活中的一个关键问题。这些问题影响着每个人的生活质量。有些问题可以通过自我护理来缓解,而有些则不能。方法为了明确自我护理无法解决的感觉问题,本研究采用网络调查的方法对神经发育障碍患者的感觉问题进行了自我护理。这项调查的问题包括神经发育障碍、个人经历的感官问题以及他们的自我照顾方式。在定性分析中,根据感觉模态的类型对每种类型进行分类;我们进一步仔细检查了同时收集的自我保健的描述,并检查了每个问题是如何解决的。结果自我护理分为“身体阻塞”、“离开”、“放松”、“设计”、“他人帮助”、“服用药物”、“应对身体”、“他人”和“无法应对”。基于这些发现,我们定量地比较了可以和不能通过自我护理来管理的感觉问题的频率。因此,更高比例的参与者表示,他们在处理“身体表征”、“与人接触”、“选择性倾听”和“力量控制”等问题上遇到了困难。相比之下,更多的参与者表示他们可以处理与“大声”和“令人眼花缭乱”有关的问题。在本研究中,定性分析使我们能够对感官问题的自我护理方法进行分类,定量研究使我们能够识别难以管理的问题。虽然可以使用太阳镜、耳塞等来控制强光和声音,但与本体感觉、选择性注意等相关的问题显然很难控制。
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Qualitative and quantitative analysis of self-care regarding sensory issues among people with neurodevelopmental disorders
Introduction Issues in sensory processing (hereafter, sensory issues) associated with neurodevelopmental disorders are known to be particularly prominent from 6 to 9 years of age and are a critical issue in school life. These issues affect each individual's quality of life. Some of the issues are known to be relieved by self-care while some are not. Methods To clarify the sensory issues that cannot be managed by self-care, this study examined self-care for sensory issues among people with neurodevelopmental disorders using a web survey. The survey encompassed questions about neurodevelopmental disorders, the sensory issues individuals experience, and the kind of self-care they perform. In the qualitative analysis, each was categorized by the type of sensory modality; we further scrutinized the descriptions of self-care, which were collected simultaneously, and examined how each problem was addressed. Results Self-care was categorized as “physically blocking,” “leaving from,” “relaxing,” “devising,” “help from others,” “taking medication,” “coping with body,” “others,” or “could not cope.” Based on these findings, we quantitatively compared the frequency of sensory issues that could and could not be managed by self-care. Consequently, significantly higher percentages of the participants stated that they experienced difficulties in managing problems about “body representations,” “contact with humans,” “selective listening,” and “force control.” In contrast, significantly more participants stated that they could manage problems related to “loud sound” and “dazzling”. Conclusion In this study, qualitative analysis allowed us to categorize methods of self-care for sensory issues, and quantitative research allowed us to identify issues that were difficult to manage. While it was possible to manage strong light and sound using sunglasses, earplugs, and so on, problems related to the senses of proprioception, selective attention, and so on were clearly difficult to manage.
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