癌症患者家属照顾者的心理困扰喀土穆州2020

O. E, K. S, H. E, T. M
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摘要

与世界其他国家一样,苏丹的癌症发病率呈上升趋势;因此,预计在不久的将来会有更多的人担任主要照顾者的角色。因此,现在是时候实现关于照顾者负担与照顾者福祉相关的结果的包容性知识了。材料和方法:本研究是一项横断面观察性研究,旨在评估喀土穆州肿瘤公立专科门诊癌症患者主要家庭照顾者的心理困扰。采用多种有效的结构化问卷和检查表来收集与癌症患者和家庭照顾者相关的数据。采用系统随机抽样的方法,招募143名癌症患者的护理人员。结果:肿瘤患者以女性居多(56.6%),年龄(51 ~ 65岁)占32.2%。乳腺癌和白血病是参与者中最常见的癌症类型,各占11.9%。家庭照顾者以女性居多,平均年龄为(37.7)岁,占54.5%。其中大约一半是癌症患者的后代。在家庭照顾者的心理困扰中,抑郁和焦虑分别占53.8%和72.7%。心理困扰在具有以下特征的照顾者中更为普遍:女性、中青年、经济地位较低。结论:研究结果表明,在癌症患者的家庭照顾者中,心理困扰程度升高的比例很高。此外,建议进行定性的纵向研究。多学科安排是必要的,以满足照顾者的需要。
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Psychological Distress among Family Caregivers of Cancer Patients Khartoum State 2020
Introduction: The incidence of cancer in Sudan, like other world, shows an increasing pattern; consequently, a greater number of people are expected to take the role of principal caregivers in the near future. Hence, it is high time to achieve inclusive knowledge about the outcome of caregiver burden related to the caregiver’s well-being. Materials and Methods: This study is a cross-sectional, observational study aiming to assess psychological distress among the principal family caregivers of cancer patients at oncology public specialized outpatients’ clinics in Khartoum State. Multiple validated and structured questionnaires and a checklist were implemented to collect relevant data related to both cancer patient and family caregiver. Systematic random sample was applied to recruit 143 of cancer patients’ caregivers. Results: Majority of cancer patients were females 56.6% and 32.2% were in the age group (51-65) years. Breast cancer and leukemia were the most frequent types of cancer among participants, with 11.9% each. Regarding family caregiver most of them were females 54.5% with average age was (37.7) years. About half of them were the cancer patient’s child descendants. Concerning psychological distress among family caregivers, depression and anxiety were reported by (53.8%) and (72.7%), respectively. Psychological distress is more prevalent among caregivers with subsequent characteristics: females, younger and middle age, and lower economic status. Conclusion: Findings point to high proportions of elevated psychological distress, among family caregivers of cancer patients. Further, longitudinal studies with qualitative dimensions are recommended. Multidisciplinary arrangements are necessary to meet caregivers’ needs.
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