在天启中你如何悲伤?

Jessie Male
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引用次数: 0

摘要

这篇文章是对疫情期间损失的反思——不仅是亲人的身体损失,还有经历和时间的损失。我特别关注我的姑姑乔伊斯·达纳·阿波斯托尔(Joyce Dana apostoll)的去世,我思考了哀悼的意义,不仅作为个人,而且作为一个集体。通过对乔伊斯生命中重要时刻的重述和回忆我们之间的关系,我思考了以下问题:当你无法与他人相处时,你如何度过悲伤?医疗、政府和信息缺乏等制度上的失败是如何加重这种悲痛的?社会对个人和群体损失的反应如何反映出(继续)贬低——并被证明对残疾人的生活有害的哲学和政策?最终,这篇文章不仅是对悲伤的反思,也是一篇悼词,是一个充分认识我姑姑和她复杂历史的机会,她的生活受到疾病和残疾的影响,与流行的康复和克服叙事截然相反。这是一个档案,不仅是什么,也不是什么,在一个文化中必要的文件,“回归正常”可以成为遗忘的代名词。
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How Do You Grieve During an Apocalypse?
This essay is a rumination on loss during the pandemic—not only the physical loss of loved ones but the loss of experiences and time. Focusing specifically on the death of my aunt, Joyce Dana Apostole, I reflect on what it means to mourn, not only as an individual but as a collective. Through the retelling of significant moments in Joyce’s life and recalling our relationship, I consider the questions: How do you navigate grief when you cannot congregate with others? How is that grief compounded by institutional failures—medical, governmental—and informational lack? And how does social response to individual and mass loss reflect philosophies and policies that (continue to) devalue—and prove detrimental to—the lives of disabled people? Ultimately, this essay is not only a reflection on grief, but it is also a eulogy, an opportunity to fully recognize my aunt and her complex history, a life shaped by illness and disability in ways that counter popular narratives of recovery and overcoming. It is an archive of not only what was, but what wasn’t, necessary documentation within a culture in which 'return to normalcy' can become synonymous with forgetting.
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来源期刊
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis 医学-临床神经学
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审稿时长
6-12 weeks
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