With a mix of prose, critical reflection, and an accompanying series of drawings inside a daily planner, this intimate essay reimagines multiple conceptions of "space" in relation to different kinds of sickness and wellbeing. Meditating on COVID-19 quarantine spaces and bipolar disorder mood/mind-spaces allowed me to discover messied "third" spaces that explore margins, and complicate ideas of boundaries and binaries. Doing so allowed me to think through new possibilities of healing, restoration, and intimacy when we talk about mental health. I offer up my personal account of a young female Asian American graduate student navigating a ten-year struggle with clinical bipolar disorder, and the personal experiences of "madness," relapse, and recovery during the winter and spring of 2021. I reflect on my daily routines inside my 800-square-foot apartment and my growing realization that prevailing ideas of "space" are incomplete and contradictory—but can be replete with futurities and learning possibilities. Fittingly, this creative piece does not endeavor to offer any neatly packaged analysis or solid conclusions. Instead, I present one account of grappling with mental illness under extraordinary circumstances and hope it can speak to individual and collective discussions on mental health, disability, and spatiality.
{"title":"600 mg of Lithium, Quarantine, and \"Third-Spaces\"","authors":"Caroline He","doi":"10.25158/l12.1.12","DOIUrl":"https://doi.org/10.25158/l12.1.12","url":null,"abstract":"With a mix of prose, critical reflection, and an accompanying series of drawings inside a daily planner, this intimate essay reimagines multiple conceptions of \"space\" in relation to different kinds of sickness and wellbeing. Meditating on COVID-19 quarantine spaces and bipolar disorder mood/mind-spaces allowed me to discover messied \"third\" spaces that explore margins, and complicate ideas of boundaries and binaries. Doing so allowed me to think through new possibilities of healing, restoration, and intimacy when we talk about mental health. I offer up my personal account of a young female Asian American graduate student navigating a ten-year struggle with clinical bipolar disorder, and the personal experiences of \"madness,\" relapse, and recovery during the winter and spring of 2021. I reflect on my daily routines inside my 800-square-foot apartment and my growing realization that prevailing ideas of \"space\" are incomplete and contradictory—but can be replete with futurities and learning possibilities. Fittingly, this creative piece does not endeavor to offer any neatly packaged analysis or solid conclusions. Instead, I present one account of grappling with mental illness under extraordinary circumstances and hope it can speak to individual and collective discussions on mental health, disability, and spatiality.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85614767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The authors created a photo and essay series entitled "Corona Look of the Day." Each day we took photos of outfits paired with colorful makeup and inspired text descriptions about the beauty in disability. These posts were formulated as resistance to the eugenic discourse pervading the early days of the pandemic that argued disabled and elderly deaths were acceptable and probable. In contrast to this bleak assessment, this artistic series sought to affirm disability through uplifting portraiture.
{"title":"Corona Look of the Day","authors":"Sara Palmer, B. Stevens","doi":"10.25158/l12.1.8","DOIUrl":"https://doi.org/10.25158/l12.1.8","url":null,"abstract":"The authors created a photo and essay series entitled \"Corona Look of the Day.\" Each day we took photos of outfits paired with colorful makeup and inspired text descriptions about the beauty in disability. These posts were formulated as resistance to the eugenic discourse pervading the early days of the pandemic that argued disabled and elderly deaths were acceptable and probable. In contrast to this bleak assessment, this artistic series sought to affirm disability through uplifting portraiture.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"49 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77970308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ria (Ariana) DasGupta, Liz Lopez, Emily A. Nusbaum
We begin with the question "what do we want to keep that the pandemic has given us?" Largely co-written in 2021, this reflexive essay serves as a snapshot in time, at one stage of the pandemic, reflecting upon earlier, shared experiences at one institution of higher education. We locate each of our identities and positionalities in that space and beyond. Our essay uses Moya Bailey’s 2021 discussion of an ethics of pace to frame our thinking and collective memory work and to counter what we identified as the distinct efforts of institutions of higher education to not have places for institutional memory. We articulate that without memory places, it is impossible to build both a history of justice work in institutions of higher education and accountability that this justice work is seen through. And we ask, how are we to build justice and healing in higher education when the place is designed so that we can't remember things, and when there seems to be a goal to not have institutional memory that remembers how, why, and by whom justice work is done? We answer the question: "what do we want to keep that the pandemic has given us?" with this: "the pace and place to remember."
{"title":"The Place and Pace to Remember","authors":"Ria (Ariana) DasGupta, Liz Lopez, Emily A. Nusbaum","doi":"10.25158/l12.1.14","DOIUrl":"https://doi.org/10.25158/l12.1.14","url":null,"abstract":"We begin with the question \"what do we want to keep that the pandemic has given us?\" Largely co-written in 2021, this reflexive essay serves as a snapshot in time, at one stage of the pandemic, reflecting upon earlier, shared experiences at one institution of higher education. We locate each of our identities and positionalities in that space and beyond. Our essay uses Moya Bailey’s 2021 discussion of an ethics of pace to frame our thinking and collective memory work and to counter what we identified as the distinct efforts of institutions of higher education to not have places for institutional memory. We articulate that without memory places, it is impossible to build both a history of justice work in institutions of higher education and accountability that this justice work is seen through. And we ask, how are we to build justice and healing in higher education when the place is designed so that we can't remember things, and when there seems to be a goal to not have institutional memory that remembers how, why, and by whom justice work is done? We answer the question: \"what do we want to keep that the pandemic has given us?\" with this: \"the pace and place to remember.\"\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"344 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77200572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Robert Carley, andré m. carrington, Eero Laine, Yumi Pak, None SAJ, Alyson K. Spurgas, Chris Alen Sula
This issue marks the addition of a new co-editor and several special projects, including Lateral‘s first podcast, Positions. This issue presents two important sections of work, both building on conversations in the field and across publications: "The Black Shoals Dossier," curated by Beenash Jafri, and the second part of "Crip Pandemic Life," edited by Alyson Patsavas and Theodora Danylevich. In addition to these impressive sections, the issue features three research articles and ten book reviews.
{"title":"Editors' Introduction","authors":"Robert Carley, andré m. carrington, Eero Laine, Yumi Pak, None SAJ, Alyson K. Spurgas, Chris Alen Sula","doi":"10.25158/l12.1.1","DOIUrl":"https://doi.org/10.25158/l12.1.1","url":null,"abstract":"This issue marks the addition of a new co-editor and several special projects, including Lateral‘s first podcast, Positions. This issue presents two important sections of work, both building on conversations in the field and across publications: \"The Black Shoals Dossier,\" curated by Beenash Jafri, and the second part of \"Crip Pandemic Life,\" edited by Alyson Patsavas and Theodora Danylevich. In addition to these impressive sections, the issue features three research articles and ten book reviews.","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136136019","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In 2020, the COVID-19 pandemic exploded and nursing homes rapidly became overwhelmed with disease, death, and despair. During this time, I learned Sylvia, an old woman with dementia I had befriended, was one of the many old and disabled people confined in nursing homes who did not survive. In this reflective and part personal, part scholarly essay, I leave evidence of and for Sylvia and the nearly 200,000 old and disabled people and care workers who contracted COVID-19 and died within the confines of neoliberal, profit-driven long-term care institutions. Disability justice activist Mia Mingus writes, "We must leave evidence. Evidence that we were here, that we existed, that we survived and loved and ached." Leaving evidence is a political act, a form of resistance in an ableist word. And yet leaving evidence is particularly challenging in the context of dementia, care, confinement, and death—making it even more important, more urgent. Building on Ellen Samuels’ assertion, "Crip time is grief time," I consider how mourning Sylvia and countless other nursing home deaths, interwoven with my own experiences of distress, yet also solidified my need to survive, might leave evidence and keep working toward an abolitionist future—one in which old and disabled women like Sylvia, like my future self, might thrive.
{"title":"The Dedication","authors":"Hailee M. Yoshizaki-Gibbons","doi":"10.25158/l12.1.10","DOIUrl":"https://doi.org/10.25158/l12.1.10","url":null,"abstract":"In 2020, the COVID-19 pandemic exploded and nursing homes rapidly became overwhelmed with disease, death, and despair. During this time, I learned Sylvia, an old woman with dementia I had befriended, was one of the many old and disabled people confined in nursing homes who did not survive. In this reflective and part personal, part scholarly essay, I leave evidence of and for Sylvia and the nearly 200,000 old and disabled people and care workers who contracted COVID-19 and died within the confines of neoliberal, profit-driven long-term care institutions. Disability justice activist Mia Mingus writes, \"We must leave evidence. Evidence that we were here, that we existed, that we survived and loved and ached.\" Leaving evidence is a political act, a form of resistance in an ableist word. And yet leaving evidence is particularly challenging in the context of dementia, care, confinement, and death—making it even more important, more urgent. Building on Ellen Samuels’ assertion, \"Crip time is grief time,\" I consider how mourning Sylvia and countless other nursing home deaths, interwoven with my own experiences of distress, yet also solidified my need to survive, might leave evidence and keep working toward an abolitionist future—one in which old and disabled women like Sylvia, like my future self, might thrive.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"10 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78323902","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This paper seeks to engage the construction of urban "soundscapes" as a potential flashpoint for class conflict by analyzing auditory and visual representations of "the neighborhood" (al-houma) in a handful of Moroccan hip-hop videos. I begin by situating Moroccan hip-hop within transnationally circulating associations of hip-hop with "urban" life, as well as the political dynamics of North Africa's colonial and postcolonial urban histories. I then analyze four videos comparatively, suggesting that each goes beyond lyrical and musical content of the songs to construct a sensory experience of the city—or neighborhood—for the listener-viewer. In giving attention to the political implications of each video, however, I argue that what distinguishes each is less what sort of "soundscape" emerges in his video but how each video teaches the audience to "hear" the Houma. While videos by mainstream rappers Muslim and Don Bigg figure urban space as threatening and in need of moral recuperation, they enact these pedagogies largely through indexical figurations of their respective soundscapes, that is, by directing the listener to attend to certain (inaudible) sounds and to interpret them in a certain way. By contrast, a video by El Haqed, known as a more staunchly oppositional figure, visually and sonically constructs a peri-urban lifeworld conditioned by neoliberal economic abandonment yet resistant to the postcolonial gaze. This contrast, I suggest, raises crucial questions about how hip-hop is linked to broader dynamics of cultural appropriation and "resistance" politics.
{"title":"Hearing the Houma","authors":"Ian VanderMeulen","doi":"10.25158/l12.1.4","DOIUrl":"https://doi.org/10.25158/l12.1.4","url":null,"abstract":"This paper seeks to engage the construction of urban \"soundscapes\" as a potential flashpoint for class conflict by analyzing auditory and visual representations of \"the neighborhood\" (al-houma) in a handful of Moroccan hip-hop videos. I begin by situating Moroccan hip-hop within transnationally circulating associations of hip-hop with \"urban\" life, as well as the political dynamics of North Africa's colonial and postcolonial urban histories. I then analyze four videos comparatively, suggesting that each goes beyond lyrical and musical content of the songs to construct a sensory experience of the city—or neighborhood—for the listener-viewer. In giving attention to the political implications of each video, however, I argue that what distinguishes each is less what sort of \"soundscape\" emerges in his video but how each video teaches the audience to \"hear\" the Houma. While videos by mainstream rappers Muslim and Don Bigg figure urban space as threatening and in need of moral recuperation, they enact these pedagogies largely through indexical figurations of their respective soundscapes, that is, by directing the listener to attend to certain (inaudible) sounds and to interpret them in a certain way. By contrast, a video by El Haqed, known as a more staunchly oppositional figure, visually and sonically constructs a peri-urban lifeworld conditioned by neoliberal economic abandonment yet resistant to the postcolonial gaze. This contrast, I suggest, raises crucial questions about how hip-hop is linked to broader dynamics of cultural appropriation and \"resistance\" politics.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"122 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87750262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This second installment of "Crip Pandemic Life: A Tapestry" opens with a reflection on transformative access and its visioning work. We weave this discussion through not only the eight new pieces found within this issue, but also through a reflection on the practices of access and care that enabled the writing, editing, and publication process itself. We conclude with two artifacts: The first is the "Accessible Knowledge Production Manifesto" that emerged as a collectively authored set of demands generated at a workshop we held in connection to the launch of our first installment of "Crip Pandemic Life." The second is a link to a resource list, "Continuing Threads and Proliferations; Crip Pandemic Life Archive," compiled by Corbin Outlaw, which links out to other pandemic projects documenting crip, disabled, chronically-ill, mad, and neurodivergent experiences, particularly highlighting experiences not captured within our tapestry of crip pandemic life.
{"title":"With Grief and Joy","authors":"Theodora Danylevich, Alyson Patsavas","doi":"10.25158/l12.1.6","DOIUrl":"https://doi.org/10.25158/l12.1.6","url":null,"abstract":"This second installment of \"Crip Pandemic Life: A Tapestry\" opens with a reflection on transformative access and its visioning work. We weave this discussion through not only the eight new pieces found within this issue, but also through a reflection on the practices of access and care that enabled the writing, editing, and publication process itself. We conclude with two artifacts: The first is the \"Accessible Knowledge Production Manifesto\" that emerged as a collectively authored set of demands generated at a workshop we held in connection to the launch of our first installment of \"Crip Pandemic Life.\" The second is a link to a resource list, \"Continuing Threads and Proliferations; Crip Pandemic Life Archive,\" compiled by Corbin Outlaw, which links out to other pandemic projects documenting crip, disabled, chronically-ill, mad, and neurodivergent experiences, particularly highlighting experiences not captured within our tapestry of crip pandemic life.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"513 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77084952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Black captivity and colonial violence in New France are distinct but interlinked social formations. This article develops an analysis of captive-colonial violence in Canada by tracing how these two formations are interlinked in practice and in discourse. It examines two "inaugural" scenes: the capture of a "Black Mooress" on the coast of present-day Mauritania in 1441 and the 1603 meeting between a French expedition and the people they called "Savages" on the shores of the St-Lawrence River in Canada. The first pertains to anti-Black violence and captivity. The second pertains to colonial violence and genocide. While the two scenes are usually treated as analytically distinct, as well as temporally and geographically distant, this article brings them together. Doing so is important as it shows how the practical and discursive conditions leading to the two scenes overlapped and how each scene depends on the other. This reading of captive-colonial violence disrupts linear conceptions of time and discrete conceptions of geography to pull "distant" scenes into proximity. Through this approach, the article shows how the two scenes are interlinked in the formation of a new lingua franca of anti-Black violence and genocidal colonial violence in Canada, however different and/or incommensurable they may be.
{"title":"Canada’s Colonial Project Begins in Africa","authors":"Philippe Néméh-Nombré","doi":"10.25158/l12.1.2","DOIUrl":"https://doi.org/10.25158/l12.1.2","url":null,"abstract":"Black captivity and colonial violence in New France are distinct but interlinked social formations. This article develops an analysis of captive-colonial violence in Canada by tracing how these two formations are interlinked in practice and in discourse. It examines two \"inaugural\" scenes: the capture of a \"Black Mooress\" on the coast of present-day Mauritania in 1441 and the 1603 meeting between a French expedition and the people they called \"Savages\" on the shores of the St-Lawrence River in Canada. The first pertains to anti-Black violence and captivity. The second pertains to colonial violence and genocide. While the two scenes are usually treated as analytically distinct, as well as temporally and geographically distant, this article brings them together. Doing so is important as it shows how the practical and discursive conditions leading to the two scenes overlapped and how each scene depends on the other. This reading of captive-colonial violence disrupts linear conceptions of time and discrete conceptions of geography to pull \"distant\" scenes into proximity. Through this approach, the article shows how the two scenes are interlinked in the formation of a new lingua franca of anti-Black violence and genocidal colonial violence in Canada, however different and/or incommensurable they may be.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"54 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76277526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Remote Access is a disability nightlife event informed by disability history, technology, and artistry. At the start of the COVID-19 pandemic, a collective of disabled artists and designers created an event to showcase how disabled people often participate in social life from our homes and beds. This contribution offers a living archive of the party and its evolution, as the planners created protocols for collective access through methodologies such as participatory audio description and live description of musical sound. We discuss how each new event offered opportunities for designing new practices based on disabled knowledge and expertise. As a result, the series of Remote Access nightlife parties became an ongoing opportunity to develop iterative accessibility protocols and community standards for remote/digital participation.
{"title":"Remote Access","authors":"Aimi Hamraie, moira williams","doi":"10.25158/l12.1.7","DOIUrl":"https://doi.org/10.25158/l12.1.7","url":null,"abstract":"Remote Access is a disability nightlife event informed by disability history, technology, and artistry. At the start of the COVID-19 pandemic, a collective of disabled artists and designers created an event to showcase how disabled people often participate in social life from our homes and beds. This contribution offers a living archive of the party and its evolution, as the planners created protocols for collective access through methodologies such as participatory audio description and live description of musical sound. We discuss how each new event offered opportunities for designing new practices based on disabled knowledge and expertise. As a result, the series of Remote Access nightlife parties became an ongoing opportunity to develop iterative accessibility protocols and community standards for remote/digital participation.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"4 6 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75942358","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The COVID-19 pandemic and the response of the government of the United Kingdom have exacerbated deep-seated inequalities. People of color and disabled people have been disproportionately impacted during the pandemic. This essay has two authors, Sophie, a white disabled academic from England, and Denise, an Asian music therapist from Hong Kong; we are friends who live in Bristol. By examining our understanding of the pandemic through our lived experiences and identities, we provide transparency for engaging with our individual and shared perspectives. We use Mia Mingus’s concept of access intimacy to characterize our friendship as one which prioritizes accessibility and a deep understanding of each other’s realities whilst respecting and learning from our differences. We explore the idea of vulnerability and what it means to be made vulnerable during COVID, as well as the notion of ungrievability. Through engaging the concept of embodied belonging we address care as a necessity in response to all the ways in which this pandemic has highlighted and exacerbated vulnerability, ungrievability, and challenges to finding a sense of belonging. We demonstrate solidarity, empathy, joy, love, respect, and a deep reverence for each other and our journeys through hostile environments, providing a counterpoint to the neoliberal structures of oppression as we find ways to live, create, and flourish.
{"title":"Only Together, We Flourish","authors":"S. Savage, Denise Wong","doi":"10.25158/l12.1.11","DOIUrl":"https://doi.org/10.25158/l12.1.11","url":null,"abstract":"The COVID-19 pandemic and the response of the government of the United Kingdom have exacerbated deep-seated inequalities. People of color and disabled people have been disproportionately impacted during the pandemic. This essay has two authors, Sophie, a white disabled academic from England, and Denise, an Asian music therapist from Hong Kong; we are friends who live in Bristol. By examining our understanding of the pandemic through our lived experiences and identities, we provide transparency for engaging with our individual and shared perspectives. We use Mia Mingus’s concept of access intimacy to characterize our friendship as one which prioritizes accessibility and a deep understanding of each other’s realities whilst respecting and learning from our differences. We explore the idea of vulnerability and what it means to be made vulnerable during COVID, as well as the notion of ungrievability. Through engaging the concept of embodied belonging we address care as a necessity in response to all the ways in which this pandemic has highlighted and exacerbated vulnerability, ungrievability, and challenges to finding a sense of belonging. We demonstrate solidarity, empathy, joy, love, respect, and a deep reverence for each other and our journeys through hostile environments, providing a counterpoint to the neoliberal structures of oppression as we find ways to live, create, and flourish.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"56 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90875727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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