结合文化价值观和技术平台的使用可能有助于扩大亚裔美国人在癌症临床试验中的参与

Angela Sun, Joyce W Cheng, Julie H T Dang, Charlene F Cuaresma, A. Valdez-Dadia, Rachel J Mesia, Penny Lo, Edward A. Chow, Vanessa Ho, Tung T. Nguyen, Moon S. Chen
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引用次数: 1

摘要

亚裔美国人是美国增长最快的族群。然而,他们只占美国癌症临床试验参与者的1.7%。本初步研究描述了亚裔美国人参与癌症临床试验的障碍、促进因素和建议。研究小组进行了由21名社区成员组成的3个焦点小组,并与医疗保健提供者进行了4次关键信息提供者访谈。定性方法用于确定癌症临床试验参与的主题。根据确定的主题和先前的研究结果对障碍和促进因素进行分类。从焦点小组的数据中确定了8个主要主题和5项建议。从关键信息提供方数据中确定了5个主要主题和7项建议。亚裔美国人参与癌症临床试验的决定很大程度上受到他们的文化价值观和实践的影响,比如利他主义和以家庭为基础的决策过程。科技平台为接触亚裔美国人提供了有希望的场所。当向亚裔美国人推广癌症临床试验参与时,可能需要考虑基于家庭的决策过程、利他主义和技术平台的使用。
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Incorporating cultural values and use of technology platforms may help outreach Asian Americans in cancer clinical trial participation
Asian Americans are the fastest growing ethnic group in U.S. However, they represent only 1.7% of U.S. cancer clinical trial participants. This pilot study describes findings on barriers, promoters and recommendations related to cancer clinical trial participation from Asian Americans. The research team conducted 3 focus groups comprised of 21 community members and 4 key informant interviews with healthcare providers. Qualitative methodology was used to identify themes about cancer clinical trial participation. Barriers and promoters were categorized based on themes identified and previous study findings. Eight major themes and 5 recommendations were identified from the focus group data. Five major themes and 7 recommendations were identified from the key informant data. Asian Americans’ decision to participate in cancer clinical trials is largely influenced by their cultural values and practices such as altruism and family-based decision making process. Technology platforms provide promising venues to reach Asian Americans. Family-based decision making process, altruism, and the use of technology platforms may need to be considered when outreaching to Asian Americans on cancer clinical trial participation.
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