本研究的目的是评估初级保健中心哮喘儿童护理计划中分配的患者的特征、疾病控制和生活质量。

Pediatría Pub Date : 2020-06-09 DOI:10.14295/RP.V53I2.202
S. M. B. Ferrández, M. I. Hernández, J. J. L. Velillas, Andrés Ruiz Pardo
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引用次数: 0

摘要

目的:评价某初级卫生保健中心“哮喘儿童护理计划”的患者及其护理人员的临床特征、疾病控制程度和生活质量。方法:采用描述性观察性研究,前瞻性收集患者或护理人员收到的三份标准化问卷的数据:哮喘控制问卷(ACQ)TM、儿童哮喘生活质量问卷(PAQLQ)TM和儿童哮喘护理人员生活质量问卷(PACQLQ)TM,并回顾性收集患者病史数据。样本来自一个初级卫生保健中心的“哮喘儿童护理计划”的人口。结果:40%的患者有母亲或父亲哮喘史,80%的患者有特应性皮炎、变应性鼻炎或食物过敏的个人病史。平均ACQTM结果为0.87 +/- 1.06分(范围0 - 3.6)。PAQLQTM平均为:6.08 +/- 0.77(范围5 - 7),PACQLQTM平均为5.48 +/- 1.06(范围3 - 7),ACQTM 1患者为:4.66 +/- 0.72。结论:在我们的研究中,个人特应性和哮喘家族史是与哮喘发展最相关的危险因素。样本中的哮喘控制程度可以得到改善,疾病控制较差与生活质量量表得分较低相关,因此有必要在教育、临床和医疗保健环境中实施改善措施。
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Características, control de la enfermedad y calidad de vida de los pacientes asignados al ‹‹Programa de Atención al Niño Asmático›› de un centro de atención primaria.
Objectives: To evaluate the clinical characteristics, the degree of disease control, and quality of life of patients and patients’ caregivers assigned to the "Asthmatic Child Care Program" in a primary healthcare center. Methods: a descriptive observational study, with prospective collection of data from three standardized questionnaires, delivered to the patient or caregivers: Asthma Control Questionnaire (ACQ)TM, Pediatric Asthma Quality of Life Questionnaire (PAQLQ)TM and Pediatric Asthma Caregivers Quality of Life Questionnaire (PACQLQ)TM, and retrospective collection of data from the patient's medical history. The sample comes from the population included in the "Asthmatic Child Care Program" of a primary healthcare center. Results: 40% of the patients had a maternal or paternal history of asthma, and 80% had a personal history of atopic dermatitis, allergic rhinitis, or food allergy. Average ACQTM result in 0.87 +/- 1.06 points (range 0 – 3.6). Average PAQLQTM results in: 6.08 +/- 0.77 (range 5 – 7). PACQLQTM mean of 5.48 +/- 1.06 (range 3 – 7). In patients with ACQTM 1 it was: 4.66 +/- 0.72. Conclusions: The presence of personal atopy and a family history of asthma is the risk factor most related to asthma development in our study. The degree of asthma control in the sample can be improved, with poorer disease control being related to a lower score on the quality-of-life scale, making it necessary to implement improvement measures in the educational, clinical, and healthcare settings.
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