针对1型糖尿病青年及其护理人员的最新心理社会调查,包括持续血糖监测项目。

IF 4.1 Q2 ENDOCRINOLOGY & METABOLISM Journal of Diabetes Science and Technology Pub Date : 2024-11-01 Epub Date: 2023-03-13 DOI:10.1177/19322968231159411
Amit Shapira, Charlotte W Chen, Lisa K Volkening, Lori M Laffel
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引用次数: 0

摘要

目的:我们在糖尿病家庭冲突量表(DFC)、糖尿病家庭责任问卷(DFR)和血糖监测沟通问卷(GMC)中添加了与持续血糖监测(CGM)相关的项目,并评估了更新调查的心理测量特性。研究设计和方法:最近开始CGM的1型糖尿病青年及其父母完成了最新调查和额外的心理社会调查。医疗数据是从自我报告和医疗记录审查中收集的。结果:青年(N=114,49%为少女)年龄为13.3±2.7岁,平均糖化血红蛋白(HbA1c)为7.9±0.9%;87%的患者使用泵治疗。更新后的调查显示,内部一致性很高(DFC青少年:α=0.91,父母:α=0.81;DFR青少年:α=.88,父母:a=0.93;GMC青少年:α=.88,家长:α=0.86)。青少年和父母DFC得分越高(糖尿病特异性家庭冲突越多)和GMC得分(与血糖监测相关的负面影响越大)与更多的青少年和父母抑郁症状相关(r=0.28-0.60,P≤.003),糖尿病负担增加(r=0.31-0.71,P≤.0009),状态焦虑增加(r=0.24至r=0.46,P≤.01),和较低的青年生活质量(r=-0.29至-0.50,P≤.002)。较高的青年和父母DFR评分(父母更多地参与糖尿病管理)与较年轻的青年年龄(青年:r=-0.76,P<.0001;父母:r=-0.81,P<0.0001)和更频繁的血糖监测(青年:r=0.27,P=.003;父母:r=0.35,P=.0002)有关,GMC调查保持了良好的心理测量特性。CGM项目的增加扩大了这些调查对使用CGM和其他糖尿病技术的1型糖尿病青年的相关性。
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Updated Psychosocial Surveys With Continuous Glucose Monitoring Items for Youth With Type 1 Diabetes and Their Caregivers.

Aim: We added items relevant to continuous glucose monitoring (CGM) to the Diabetes Family Conflict Scale (DFC), Diabetes Family Responsibility Questionnaire (DFR), and Blood Glucose Monitoring Communication Questionnaire (GMC) and evaluated the psychometric properties of the updated surveys.

Research design and methods: Youth with type 1 diabetes who recently started CGM and their parents completed the updated surveys and additional psychosocial surveys. Medical data were collected from self-reports and review of the medical record.

Results: Youth (N = 114, 49% adolescent girls) were aged 13.3 ± 2.7 years and had mean glycated hemoglobin (HbA1c) 7.9 ± 0.9%; 87% of them used pump therapy. The updated surveys demonstrated high internal consistency (DFC youth: α = .91, parent: α = .81; DFR youth: α = .88, parent: α = .93; and GMC youth: α = .88, parent: α = .86). Higher youth and parent DFC scores (more diabetes-specific family conflict) and GMC scores (more negative affect related to glucose monitoring) were associated with more youth and parent depressive symptoms (r = 0.28-0.60, P ≤ .003), more diabetes burden (r = 0.31-0.71, P ≤ .0009), more state anxiety (r = 0.24 to r = 0.46, P ≤ .01), and lower youth quality of life (r = -0.29 to -0.50, P ≤ .002). Higher youth and parent DFR scores (more parent involvement in diabetes management) were associated with younger youth age (youth: r = -0.76, P < .0001; parent: r = -0.81, P < .0001) and more frequent blood glucose monitoring (youth: r = 0.27, P = .003; parent: r = 0.35, P = .0002).

Conclusions: The updated DFC, DFR, and GMC surveys maintain good psychometric properties. The addition of CGM items expands the relevance of these surveys for youth with type 1 diabetes who are using CGM and other diabetes technologies.

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来源期刊
Journal of Diabetes Science and Technology
Journal of Diabetes Science and Technology Medicine-Internal Medicine
CiteScore
7.50
自引率
12.00%
发文量
148
期刊介绍: The Journal of Diabetes Science and Technology (JDST) is a bi-monthly, peer-reviewed scientific journal published by the Diabetes Technology Society. JDST covers scientific and clinical aspects of diabetes technology including glucose monitoring, insulin and metabolic peptide delivery, the artificial pancreas, digital health, precision medicine, social media, cybersecurity, software for modeling, physiologic monitoring, technology for managing obesity, and diagnostic tests of glycation. The journal also covers the development and use of mobile applications and wireless communication, as well as bioengineered tools such as MEMS, new biomaterials, and nanotechnology to develop new sensors. Articles in JDST cover both basic research and clinical applications of technologies being developed to help people with diabetes.
期刊最新文献
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