关于威尔士癌症筛查研究人员的招募和参与的方法学反思。

IF 1.2 4区 医学 Q4 HEALTH CARE SCIENCES & SERVICES Australian journal of primary health Pub Date : 2023-04-01 DOI:10.1071/PY22259
Juping Yu, Joyce Kenkre, Sarah Wallace, Susan Thomas, Helen Jessop
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引用次数: 1

摘要

癌症是对公众健康的主要威胁,也是全球第二大死亡原因。以人群为基础的癌症筛查是提高癌症早期发现和降低死亡率的有效途径。参与癌症筛查的相关因素在研究中得到了越来越多的探索。开展此类研究的挑战是显而易见的,但很少有人讨论如何应对这些挑战。本文讨论了与研究参与者的招募和参与相关的方法问题,借鉴了我们开展研究的经验,探索居住在威尔士新港西部的人们参与乳房、肠道和宫颈筛查项目的支持需求。讨论了四个关键领域:抽样问题、语言障碍、IT问题和参与的时间需求。本文强调了持续的社区参与、提供适当的研究材料以及适应不同的数据收集模式以满足参与者参与研究的需求的重要性,从而使通常被排除在研究之外的人有发言权并为研究做出重大贡献。
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Methodological reflections on the recruitment and engagement of people for cancer screening research in Wales.

Cancer is a major threat to public health and the second leading cause of death globally. Population-based cancer screening is an effective way to improve the early detection of a cancer and reduce mortality. Factors associated with participation in cancer screening have been increasingly explored in research. The challenges to undertaking such research are evident, but there is little discussion about how to address such challenges. This article discusses methodological issues associated with the recruitment and engagement of participants in research, drawing upon our experience of undertaking research exploring the support needs of people residing in Newport West, Wales, to participate in breast, bowel, and cervical screening programs. Four key areas were addressed: sampling issues, language barriers, IT issues, and time demand for participation. The paper highlights the importance of ongoing community engagement, the provision of appropriate study materials, and the adaption to different data collection modes to meet participants' needs to participate in research, thus enabling people who are usually excluded from research to have a voice and make a significant contribution to research.

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来源期刊
Australian journal of primary health
Australian journal of primary health 医学-公共卫生、环境卫生与职业卫生
CiteScore
2.20
自引率
15.40%
发文量
136
审稿时长
6-12 weeks
期刊介绍: Australian Journal of Primary Health integrates the theory and practise of community health services and primary health care. The journal publishes high-quality, peer-reviewed research, reviews, policy reports and analyses from around the world. Articles cover a range of issues influencing community health services and primary health care, particularly comprehensive primary health care research, evidence-based practice (excluding discipline-specific clinical interventions) and primary health care policy issues. Australian Journal of Primary Health is an important international resource for all individuals and organisations involved in the planning, provision or practise of primary health care. Australian Journal of Primary Health is published by CSIRO Publishing on behalf of La Trobe University.
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