Juping Yu, Joyce Kenkre, Sarah Wallace, Susan Thomas, Helen Jessop
{"title":"关于威尔士癌症筛查研究人员的招募和参与的方法学反思。","authors":"Juping Yu, Joyce Kenkre, Sarah Wallace, Susan Thomas, Helen Jessop","doi":"10.1071/PY22259","DOIUrl":null,"url":null,"abstract":"<p><p>Cancer is a major threat to public health and the second leading cause of death globally. Population-based cancer screening is an effective way to improve the early detection of a cancer and reduce mortality. Factors associated with participation in cancer screening have been increasingly explored in research. The challenges to undertaking such research are evident, but there is little discussion about how to address such challenges. This article discusses methodological issues associated with the recruitment and engagement of participants in research, drawing upon our experience of undertaking research exploring the support needs of people residing in Newport West, Wales, to participate in breast, bowel, and cervical screening programs. Four key areas were addressed: sampling issues, language barriers, IT issues, and time demand for participation. The paper highlights the importance of ongoing community engagement, the provision of appropriate study materials, and the adaption to different data collection modes to meet participants' needs to participate in research, thus enabling people who are usually excluded from research to have a voice and make a significant contribution to research.</p>","PeriodicalId":8651,"journal":{"name":"Australian journal of primary health","volume":null,"pages":null},"PeriodicalIF":1.2000,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Methodological reflections on the recruitment and engagement of people for cancer screening research in Wales.\",\"authors\":\"Juping Yu, Joyce Kenkre, Sarah Wallace, Susan Thomas, Helen Jessop\",\"doi\":\"10.1071/PY22259\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Cancer is a major threat to public health and the second leading cause of death globally. Population-based cancer screening is an effective way to improve the early detection of a cancer and reduce mortality. Factors associated with participation in cancer screening have been increasingly explored in research. The challenges to undertaking such research are evident, but there is little discussion about how to address such challenges. This article discusses methodological issues associated with the recruitment and engagement of participants in research, drawing upon our experience of undertaking research exploring the support needs of people residing in Newport West, Wales, to participate in breast, bowel, and cervical screening programs. Four key areas were addressed: sampling issues, language barriers, IT issues, and time demand for participation. The paper highlights the importance of ongoing community engagement, the provision of appropriate study materials, and the adaption to different data collection modes to meet participants' needs to participate in research, thus enabling people who are usually excluded from research to have a voice and make a significant contribution to research.</p>\",\"PeriodicalId\":8651,\"journal\":{\"name\":\"Australian journal of primary health\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.2000,\"publicationDate\":\"2023-04-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Australian journal of primary health\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1071/PY22259\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Australian journal of primary health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1071/PY22259","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
Methodological reflections on the recruitment and engagement of people for cancer screening research in Wales.
Cancer is a major threat to public health and the second leading cause of death globally. Population-based cancer screening is an effective way to improve the early detection of a cancer and reduce mortality. Factors associated with participation in cancer screening have been increasingly explored in research. The challenges to undertaking such research are evident, but there is little discussion about how to address such challenges. This article discusses methodological issues associated with the recruitment and engagement of participants in research, drawing upon our experience of undertaking research exploring the support needs of people residing in Newport West, Wales, to participate in breast, bowel, and cervical screening programs. Four key areas were addressed: sampling issues, language barriers, IT issues, and time demand for participation. The paper highlights the importance of ongoing community engagement, the provision of appropriate study materials, and the adaption to different data collection modes to meet participants' needs to participate in research, thus enabling people who are usually excluded from research to have a voice and make a significant contribution to research.
期刊介绍:
Australian Journal of Primary Health integrates the theory and practise of community health services and primary health care. The journal publishes high-quality, peer-reviewed research, reviews, policy reports and analyses from around the world. Articles cover a range of issues influencing community health services and primary health care, particularly comprehensive primary health care research, evidence-based practice (excluding discipline-specific clinical interventions) and primary health care policy issues.
Australian Journal of Primary Health is an important international resource for all individuals and organisations involved in the planning, provision or practise of primary health care.
Australian Journal of Primary Health is published by CSIRO Publishing on behalf of La Trobe University.