Vera Lucia Freitag, Maria da Graça Corso Motta, Viviane Marten Milbrath, Jéssica Stragliotto Bazzan, Gabriel Debatin, Ruth Irmgard Bärtschi Gabatz
{"title":"“他是正常的”:儿童/青少年对残疾同胞感知的现象学考虑。","authors":"Vera Lucia Freitag, Maria da Graça Corso Motta, Viviane Marten Milbrath, Jéssica Stragliotto Bazzan, Gabriel Debatin, Ruth Irmgard Bärtschi Gabatz","doi":"10.1590/1983-1447.2022.20220129.en","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>To understand the child/adolescent's perception of the disabled sibling.</p><p><strong>Method: </strong>Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disabilities, through a phenomenological interview. Respecting ethical precepts, hermeneutics was used for interpretation.</p><p><strong>Results: </strong>The child/adolescent perceives his/her disabled sibling as a normal person, given his/her behavior, way of being and intellectual capacity. Still, it understands him as a special being, who has limitations regarding learning, but does not see him as different, thus, unlinks the idea of disability associated with the disease/abnormality.</p><p><strong>Final considerations: </strong>The perception of the disabled sibling occurs within the perception of normality. The child identifies his sibling's lower learning capacitor a way that is unique to him, a fact that does not condition him to be seen as abnormal, defining his being-in-the-world as a special way of existing.</p>","PeriodicalId":35609,"journal":{"name":"Revista gaucha de enfermagem / EENFUFRGS","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"He is normal\\\": phenomenological considerations of child/adolescent's perception of the disabled sibling.\",\"authors\":\"Vera Lucia Freitag, Maria da Graça Corso Motta, Viviane Marten Milbrath, Jéssica Stragliotto Bazzan, Gabriel Debatin, Ruth Irmgard Bärtschi Gabatz\",\"doi\":\"10.1590/1983-1447.2022.20220129.en\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>To understand the child/adolescent's perception of the disabled sibling.</p><p><strong>Method: </strong>Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disabilities, through a phenomenological interview. Respecting ethical precepts, hermeneutics was used for interpretation.</p><p><strong>Results: </strong>The child/adolescent perceives his/her disabled sibling as a normal person, given his/her behavior, way of being and intellectual capacity. Still, it understands him as a special being, who has limitations regarding learning, but does not see him as different, thus, unlinks the idea of disability associated with the disease/abnormality.</p><p><strong>Final considerations: </strong>The perception of the disabled sibling occurs within the perception of normality. The child identifies his sibling's lower learning capacitor a way that is unique to him, a fact that does not condition him to be seen as abnormal, defining his being-in-the-world as a special way of existing.</p>\",\"PeriodicalId\":35609,\"journal\":{\"name\":\"Revista gaucha de enfermagem / EENFUFRGS\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Revista gaucha de enfermagem / EENFUFRGS\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1590/1983-1447.2022.20220129.en\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista gaucha de enfermagem / EENFUFRGS","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1590/1983-1447.2022.20220129.en","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"Nursing","Score":null,"Total":0}
"He is normal": phenomenological considerations of child/adolescent's perception of the disabled sibling.
Objective: To understand the child/adolescent's perception of the disabled sibling.
Method: Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disabilities, through a phenomenological interview. Respecting ethical precepts, hermeneutics was used for interpretation.
Results: The child/adolescent perceives his/her disabled sibling as a normal person, given his/her behavior, way of being and intellectual capacity. Still, it understands him as a special being, who has limitations regarding learning, but does not see him as different, thus, unlinks the idea of disability associated with the disease/abnormality.
Final considerations: The perception of the disabled sibling occurs within the perception of normality. The child identifies his sibling's lower learning capacitor a way that is unique to him, a fact that does not condition him to be seen as abnormal, defining his being-in-the-world as a special way of existing.
期刊介绍:
A Escola de Enfermagem da Universidade Federal do Rio Grande do Sul edita e publica a Revista Gaúcha de Enfermagem para divulgar a produção científica da Enfermagem e áreas afins. Foi criada em 1976 e atualmente tem periodicidade trimestral.