获取数据的途径:关于提供供二次使用的卫生数据的意见和建议。

Q4 Medicine Casopis lekaru ceskych Pub Date : 2023-01-01
Aleš Tichopád, Martin Augustynek, Jiří Beneš, Martin Dlouhý, Tomáš Doležal, Dana Horáková, Michal Kršek, Lenka Lhotska, Petr Panzner, Marek Penhaker, Miroslav Petr, Jan Piťha, Boris Popesko, Martin Rožánek, Miloš Táborský, Michal Vrablík
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引用次数: 0

摘要

国有组织持有的医疗保健数据是社会宝贵的无形资产。它的使用应该是管理者和州政府的首要任务。管理者和政府完全家长式的做法是不可取的,无论它多么旨在保护在数据库中注册的个人的隐私权。根据欧洲政策和全球趋势,如果存在足够保护个人隐私权的技术可能性,这些措施不应超过对这些数据进行分析所产生的社会效益。捷克社会正在对这个话题进行激烈的讨论,但据作者说,它缺乏充分的事实依据,也缺乏明确的专家公众意见。本文的目的就是填补这些空白。数据匿名化技术提供了一种既保护个人隐私权又保留数据科学价值的解决方案。在匿名数据集中识别个人的风险是可扩展的,可以根据数据的类型和内容以及特定申请人的使用情况将其降至最低。找到去标识数据的最佳形式和范围需要申请人和管理员双方的能力和知识。在申请及其处理过程中,双方表现出意愿、能力和专业知识进行沟通,符合申请人、管理员以及数据库中受保护人员的利益。
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The way to data: opinions and recommendations for the provision of health data for secondary use.

Healthcare data held by state-run organisations is a valuable intangible asset for society. Its use should be a priority for its administrators and the state. A completely paternalistic approach by administrators and the state is undesirable, however much it aims to protect the privacy rights of persons registered in databases. In line with European policies and the global trend, these measures should not outweigh the social benefit that arises from the analysis of these data if the technical possibilities exist to sufficiently protect the privacy rights of individuals. Czech society is having an intense discussion on the topic, but according to the authors, it is insufficiently based on facts and lacks clearly articulated opinions of the expert public. The aim of this article is to fill these gaps. Data anonymization techniques provide a solution to protect individuals' privacy rights while preserving the scientific value of the data. The risk of identifying individuals in anonymised data sets is scalable and can be minimised depending on the type and content of the data and its use by the specific applicant. Finding the optimal form and scope of deidentified data requires competence and knowledge on the part of both the applicant and the administrator. It is in the interest of the applicant, the administrator, as well as the protected persons in the databases that both parties show willingness and have the ability and expertise to communicate during the application and its processing.

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来源期刊
Casopis lekaru ceskych
Casopis lekaru ceskych Medicine-Medicine (all)
CiteScore
0.60
自引率
0.00%
发文量
31
期刊最新文献
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