“Mãe é quem cuida": a legitimidade da maternidade no discurso de mães de bebês com microcefalia em Pernambuco

Diego Alano de Jesus Pereira Pinheiro
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引用次数: 5

Abstract

The research began after the large number of babies born with microcephaly caused by the Zika virus transmitted by the mosquito Aedes aegypti, with the epicenter being the Northeast region of the country. The epidemic stirred the dynamics of various spheres of social life, such as political, socio-environmental, economic and religious. Women, mothers of babies with microcephaly, in Pernambuco, have organized themselves in movements such as the Union of Mothers of Angels (UMA), building networks of support and solidarity, sharing experiences about the care of "angels" or "special children" "(As they call their children), and claim, in a language of rights, aid with the State and competent bodies. In this sense, this analysis is based on ethnographic work done at the UMA meetings between February and December 2016. Starting from three life trajectories of mothers of children diagnosed with what is now called in the biomedical field as "Zika virus Congenital Syndrome" (SCZv), I try to understand the representations around the experience of motherhood, in order to apprehend the productions of meanings and conceptions about kinship relations.
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“母亲是照顾者”:伯南布哥小头症婴儿母亲话语中母性的合法性
这项研究是在大量新生儿患有由埃及伊蚊传播的寨卡病毒引起的小头畸形之后开始的,该病毒的中心是该国东北部地区。这一流行病搅动了政治、社会环境、经济和宗教等社会生活各个领域的动态。在伯南布哥,患有小头症的婴儿的母亲们自己组织了各种运动,如天使母亲联盟(UMA),建立支持和团结网络,分享照顾“天使”或“特殊儿童”(她们这样称呼自己的孩子)的经验,并以权利语言向国家和主管机构要求援助。从这个意义上说,这一分析是基于2016年2月至12月UMA会议上完成的人种学工作。我从三个被诊断患有寨卡病毒先天性综合征(Zika virus Congenital Syndrome, SCZv)的孩子的母亲的生命轨迹出发,试图理解围绕母性体验的表征,以理解亲属关系的意义和概念的产生。
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