Siblings of Children with Autism Spectrum Disorder: Behavioural and Emotional adjustment and the Influence of Family Factors on Adjustment

Abstract

Children with Autism Spectrum Disorder (ASD) have unique characteristics, which are expected to have an impact on members of the family. However, research concerning the effects of ASD on family members has focused predominantly on ASD’s impact on parents and less on its impact on siblings, especially in the context of Sri Lanka. This research attempts to address this gap and advance the understanding of the Behavioral and Emotional (B&E) adjustment of siblings of children with ASD. The study utilized a quantitative research design using a sample of 80 mothers of children with ASD, selected using convenient sampling from hospitals and institutions located in the Colombo and Gampaha districts. Mothers completed a Demographic Questionnaire, Socio-Economic Status Questionnaire, Parental Stress Scale, and Strength and Difficulties Questionnaire. The study found that B&E adjustment of the majority of the siblings was within the ‘Normal’ range (54%), which shows that siblings were well adjusted behaviorally and emotionally. However, closer to half of the siblings (46%) either had a risk (i.e., scored within the ‘Borderline’ range) or were experiencing adjustment difficulties (i.e., scored within the ‘Abnormal’ range). When siblings were analyzed according to the domains of the SDQ, the majority scored within the ‘Borderline’ range for peer problems, which indicates that siblings are at risk for peer problems. Additionally, the study found that out of all the selected family factors, Maternal Stress due to rearing a child with ASD and ASD severity was positively associated with sibling B&E adjustment difficulties. Keywords: Autism Spectrum Disorder; Siblings; Behavioral and Emotional Adjustment; Family Factors