Seeking Comfort and Demanding Agency—An Autoethnographic Exploration of a Patient and Partner Experience

Q2 Social Sciences Illness Crisis and Loss Pub Date : 2023-11-04 DOI:10.1177/10541373231210370
Jenny Aimers, Peter Walker
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Abstract

This article applies an autoethnographic approach to the journey a patient and their partner undertook as they negotiated a medical adverse event. The resultant cascade of conditions lasted almost 4 years and resulted in the eventual death of the patient. The narrative is told from the dual perspectives of both the patient and their partner, providing a valuable resource for the practice of patient and family-centered care. This article illuminates the patient's experience of comfort across a continuum of healthcare settings and how both the patient and their partner were able to enact agency despite challenging institutional barriers, to become partners in their healthcare journey.
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寻求舒适和要求代理——病人和伴侣经验的自我民族志探索
这篇文章应用了一个自我民族志方法的旅程,病人和他们的合作伙伴承担,因为他们谈判的医疗不良事件。由此产生的一连串疾病持续了近4年,最终导致患者死亡。叙述是从病人和他们的伴侣的双重视角来讲述的,为病人和家庭为中心的护理实践提供了宝贵的资源。本文阐明了患者在连续的医疗保健环境中的舒适体验,以及患者和他们的伴侣如何能够制定机构,尽管存在具有挑战性的制度障碍,成为他们医疗保健旅程中的合作伙伴。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Illness Crisis and Loss
Illness Crisis and Loss Social Sciences-Sociology and Political Science
CiteScore
1.80
自引率
0.00%
发文量
28
期刊介绍: When dealing with issues of grief, crisis, or loss as a counselor, medical professional, or researcher, it can be difficult to find resources to help you in your work. Receiving the most current research on the latest topics in the field from Illness, Crisis & Loss can help. Illness, Crisis & Loss is the resource that furthers your understanding and knowledge of the psychosocial and ethical issues associated with life-threatening illness, traumatic human crises, grief, and loss.
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