{"title":"Seeking Comfort and Demanding Agency—An Autoethnographic Exploration of a Patient and Partner Experience","authors":"Jenny Aimers, Peter Walker","doi":"10.1177/10541373231210370","DOIUrl":null,"url":null,"abstract":"This article applies an autoethnographic approach to the journey a patient and their partner undertook as they negotiated a medical adverse event. The resultant cascade of conditions lasted almost 4 years and resulted in the eventual death of the patient. The narrative is told from the dual perspectives of both the patient and their partner, providing a valuable resource for the practice of patient and family-centered care. This article illuminates the patient's experience of comfort across a continuum of healthcare settings and how both the patient and their partner were able to enact agency despite challenging institutional barriers, to become partners in their healthcare journey.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"12 2","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2023-11-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Illness Crisis and Loss","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/10541373231210370","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"Social Sciences","Score":null,"Total":0}
引用次数: 0
Abstract
This article applies an autoethnographic approach to the journey a patient and their partner undertook as they negotiated a medical adverse event. The resultant cascade of conditions lasted almost 4 years and resulted in the eventual death of the patient. The narrative is told from the dual perspectives of both the patient and their partner, providing a valuable resource for the practice of patient and family-centered care. This article illuminates the patient's experience of comfort across a continuum of healthcare settings and how both the patient and their partner were able to enact agency despite challenging institutional barriers, to become partners in their healthcare journey.
期刊介绍:
When dealing with issues of grief, crisis, or loss as a counselor, medical professional, or researcher, it can be difficult to find resources to help you in your work. Receiving the most current research on the latest topics in the field from Illness, Crisis & Loss can help. Illness, Crisis & Loss is the resource that furthers your understanding and knowledge of the psychosocial and ethical issues associated with life-threatening illness, traumatic human crises, grief, and loss.