Pub Date : 2023-11-07DOI: 10.1177/10541373231209508
Steven L. Arxer, James P. LePage, Jason Flake, April M. Crawford, Dina Hooshyar, Haekyung Jeon-Slaughter, Michel A. Philippe
Interest in adjustment issues Veterans face following incarceration has grown rapidly in response to the prevalence of stress-related disorders as well as the physical, social, and occupational challenges when reintegrating into communities. While reintegration may be a positive event that includes the reunification of family, friends, and a return to civilian life, transition can also involve a wide range of difficulties and crises impacting readjustment. Veteran reintegration has been understood as a complex process influenced by different levels, such as at the individual, interactional, and socio-cultural level. This article takes a Veteran standpoint to explore how Veterans’ lived experiences are a basis to understand their transition readiness. Specifically, identity work clarifies the empirical self-constructions of Veterans’ standpoint and their everyday strategies used for post-incarceration transition efficacy.
{"title":"Theorizing Post-Incarceration Transition Crisis and Readiness Through Veteran Identity Work","authors":"Steven L. Arxer, James P. LePage, Jason Flake, April M. Crawford, Dina Hooshyar, Haekyung Jeon-Slaughter, Michel A. Philippe","doi":"10.1177/10541373231209508","DOIUrl":"https://doi.org/10.1177/10541373231209508","url":null,"abstract":"Interest in adjustment issues Veterans face following incarceration has grown rapidly in response to the prevalence of stress-related disorders as well as the physical, social, and occupational challenges when reintegrating into communities. While reintegration may be a positive event that includes the reunification of family, friends, and a return to civilian life, transition can also involve a wide range of difficulties and crises impacting readjustment. Veteran reintegration has been understood as a complex process influenced by different levels, such as at the individual, interactional, and socio-cultural level. This article takes a Veteran standpoint to explore how Veterans’ lived experiences are a basis to understand their transition readiness. Specifically, identity work clarifies the empirical self-constructions of Veterans’ standpoint and their everyday strategies used for post-incarceration transition efficacy.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"77 8","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135539837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-04DOI: 10.1177/10541373231210370
Jenny Aimers, Peter Walker
This article applies an autoethnographic approach to the journey a patient and their partner undertook as they negotiated a medical adverse event. The resultant cascade of conditions lasted almost 4 years and resulted in the eventual death of the patient. The narrative is told from the dual perspectives of both the patient and their partner, providing a valuable resource for the practice of patient and family-centered care. This article illuminates the patient's experience of comfort across a continuum of healthcare settings and how both the patient and their partner were able to enact agency despite challenging institutional barriers, to become partners in their healthcare journey.
{"title":"Seeking Comfort and Demanding Agency—An Autoethnographic Exploration of a Patient and Partner Experience","authors":"Jenny Aimers, Peter Walker","doi":"10.1177/10541373231210370","DOIUrl":"https://doi.org/10.1177/10541373231210370","url":null,"abstract":"This article applies an autoethnographic approach to the journey a patient and their partner undertook as they negotiated a medical adverse event. The resultant cascade of conditions lasted almost 4 years and resulted in the eventual death of the patient. The narrative is told from the dual perspectives of both the patient and their partner, providing a valuable resource for the practice of patient and family-centered care. This article illuminates the patient's experience of comfort across a continuum of healthcare settings and how both the patient and their partner were able to enact agency despite challenging institutional barriers, to become partners in their healthcare journey.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"12 2","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135774565","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-26DOI: 10.1177/10541373231208934
Tomás Caycho-Rodríguez, Jonatan Baños-Chaparro, José Ventura-León, Lindsey W. Vilca, Carlos Carbajal-León, Pablo D. Valencia, Daniel E. Yupanqui-Lorenzo, Rubí Paredes-Angeles, Walter L. Arias Gallegos, Mario Reyes-Bossio, Mariel Delgado-Campusano, Miguel Gallegos, Claudio Rojas-Jara, Roberto Polanco-Carrasco, Mauricio Cervigni, Pablo Martino, Marlon Elías Lobos-Rivera, Rodrigo Moreta-Herrera, Diego Alejandro Palacios Segura, Antonio Samaniego-Pinho, Andrés Buschiazzo Figares, Diana Ximena Puerta-Cortés, Andrés Camargo, Julio Torales, J. Arkangel Monge Blanco, Pedronel González, Vanessa Smith-Castro, Olimpia Petzold-Rodriguez, Ibraín Enrique Corrales-Reyes, Raymundo Calderón, Wendy Yamilet Matute Rivera, Daniela Ferrufino-Borja, Agueda Muñoz-del-Carpio-Toia, Jorge Palacios, Carmen Burgos-Videla, Ana María Eduviges Florez León, Ibeth Vergara, Diego Vega, Marion K. Schulmeyer, Nicol A. Barria-Asenjo, Hassell Tatiana Urrutia Rios, Arelly Esther Lira Lira, Jesús Ayala-Colqui
The present study aimed to apply a network analysis model to provide an exploratory empirical conceptualization of dynamic networks of posttraumatic growth (PTG) symptoms in 7,434 people who experienced the death of a loved one from COVID-19 in 16 Latin American countries. The Post-Traumatic Growth Inventory: Short Form of Eight Items was used. A non-regularized network with partial correlation coefficients was estimated through the ggmModSelect algorithm. The network architecture was analyzed for each country through its local properties and global properties. The results indicated that the networks differed significantly between countries. The core dimensions in the networks were relating to others, personal strength, and life value and opportunities, which were more related dimensions that reinforce the emergence of PTG in all countries. The findings may be useful to motivate researchers and mental health professionals to consider the importance of the individual dimensions of PTG in groups of people who experienced the death of a loved one from COVID-19 in 16 Latin American countries, as well as their interrelationships.
{"title":"Network Analysis of Posttraumatic Growth Dimensions: A Cross-Sectional Study in People Who Experienced the Death of a Loved One from COVID-19 in 16 Latin American Countries","authors":"Tomás Caycho-Rodríguez, Jonatan Baños-Chaparro, José Ventura-León, Lindsey W. Vilca, Carlos Carbajal-León, Pablo D. Valencia, Daniel E. Yupanqui-Lorenzo, Rubí Paredes-Angeles, Walter L. Arias Gallegos, Mario Reyes-Bossio, Mariel Delgado-Campusano, Miguel Gallegos, Claudio Rojas-Jara, Roberto Polanco-Carrasco, Mauricio Cervigni, Pablo Martino, Marlon Elías Lobos-Rivera, Rodrigo Moreta-Herrera, Diego Alejandro Palacios Segura, Antonio Samaniego-Pinho, Andrés Buschiazzo Figares, Diana Ximena Puerta-Cortés, Andrés Camargo, Julio Torales, J. Arkangel Monge Blanco, Pedronel González, Vanessa Smith-Castro, Olimpia Petzold-Rodriguez, Ibraín Enrique Corrales-Reyes, Raymundo Calderón, Wendy Yamilet Matute Rivera, Daniela Ferrufino-Borja, Agueda Muñoz-del-Carpio-Toia, Jorge Palacios, Carmen Burgos-Videla, Ana María Eduviges Florez León, Ibeth Vergara, Diego Vega, Marion K. Schulmeyer, Nicol A. Barria-Asenjo, Hassell Tatiana Urrutia Rios, Arelly Esther Lira Lira, Jesús Ayala-Colqui","doi":"10.1177/10541373231208934","DOIUrl":"https://doi.org/10.1177/10541373231208934","url":null,"abstract":"The present study aimed to apply a network analysis model to provide an exploratory empirical conceptualization of dynamic networks of posttraumatic growth (PTG) symptoms in 7,434 people who experienced the death of a loved one from COVID-19 in 16 Latin American countries. The Post-Traumatic Growth Inventory: Short Form of Eight Items was used. A non-regularized network with partial correlation coefficients was estimated through the ggmModSelect algorithm. The network architecture was analyzed for each country through its local properties and global properties. The results indicated that the networks differed significantly between countries. The core dimensions in the networks were relating to others, personal strength, and life value and opportunities, which were more related dimensions that reinforce the emergence of PTG in all countries. The findings may be useful to motivate researchers and mental health professionals to consider the importance of the individual dimensions of PTG in groups of people who experienced the death of a loved one from COVID-19 in 16 Latin American countries, as well as their interrelationships.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"9 2","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135018088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-08DOI: 10.1177/10541373231202842
Alison M. Rodriguez, Allan Kellehear, Vitaveska Lanfranchi, Wilfred McSherry, Michael Tatterton, Lucy Watts MBE, Nahel Yaziji, Joanna Smith
Background: Young people with life-limiting conditions have unmet psycho-spiritual needs. Dignity Therapy is a psycho-therapeutic end-of-life intervention that addresses life review, meaning making and legacy leaving. Studies of Dignity Therapy including young people are limited. Aim: To co-design a digital Dignity Therapy-based intervention for young people with life-limiting conditions (DIGNISPACE). Design: A qualitative study including focus groups (n=5) with hospice-based healthcare professionals (n=23), semi-structured interviews with young people with life-limiting conditions (n=13) and family carers (n=12). Data were analyzed using framework analysis. Results: Three main themes were derived; intervention purpose, amendments to the Dignity Therapy question protocol and content for a digital application. Findings influenced the development of DIGNISPACE and a model of dignity in young people with life-limiting conditions. Conclusions: DIGNISPACE addresses the psycho-spiritual needs of young people with life-limiting conditions, including tenets of the model of dignity in young people with life-limiting conditions in its content and delivery.
{"title":"The Qualitative DIGNISPACE Study: The Co-Design of a Life Review, Meaning-Making and Legacy Leaving Digital Intervention for Young People with Life-Limiting Conditions","authors":"Alison M. Rodriguez, Allan Kellehear, Vitaveska Lanfranchi, Wilfred McSherry, Michael Tatterton, Lucy Watts MBE, Nahel Yaziji, Joanna Smith","doi":"10.1177/10541373231202842","DOIUrl":"https://doi.org/10.1177/10541373231202842","url":null,"abstract":"Background: Young people with life-limiting conditions have unmet psycho-spiritual needs. Dignity Therapy is a psycho-therapeutic end-of-life intervention that addresses life review, meaning making and legacy leaving. Studies of Dignity Therapy including young people are limited. Aim: To co-design a digital Dignity Therapy-based intervention for young people with life-limiting conditions (DIGNISPACE). Design: A qualitative study including focus groups (n=5) with hospice-based healthcare professionals (n=23), semi-structured interviews with young people with life-limiting conditions (n=13) and family carers (n=12). Data were analyzed using framework analysis. Results: Three main themes were derived; intervention purpose, amendments to the Dignity Therapy question protocol and content for a digital application. Findings influenced the development of DIGNISPACE and a model of dignity in young people with life-limiting conditions. Conclusions: DIGNISPACE addresses the psycho-spiritual needs of young people with life-limiting conditions, including tenets of the model of dignity in young people with life-limiting conditions in its content and delivery.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"58 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135197671","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Objective: Death from cancer is one of the most frequent worldwide and the spouse is the person most at risk of potentially developing psychological consequences. The following study aims to offer a scoping review of studies on people who have lost their spouses to cancer and treatments that could be recommended to prevent psychological consequences. Methods: The Preferred Reporting Items for Systematic Review and Meta-Analyses guidelines were used to report the findings of this review. Results: In total, 136 titles and 52 abstracts were selected. Of these 52 articles, 8 articles met all recommendations and inclusion criteria. Conclusions: Although cancer remains a leading cause of death worldwide, the issue of bereaved spouses following cancer remains understudied. Several notions and hypotheses were endorsed, such as possible resistance to and difficulties in conducting research on this kind of loss and with caregivers, the role of illness and postmortality in the scientific landscape.
{"title":"The Loss of a Spouse Following an Oncological Disease: A Scoping Review","authors":"Livia Sani, Yasmine Chemrouk, Rozenn Le Berre, Delphine Peyrat-Apicella, Marie-Frédérique Bacqué","doi":"10.1177/10541373231202471","DOIUrl":"https://doi.org/10.1177/10541373231202471","url":null,"abstract":"Objective: Death from cancer is one of the most frequent worldwide and the spouse is the person most at risk of potentially developing psychological consequences. The following study aims to offer a scoping review of studies on people who have lost their spouses to cancer and treatments that could be recommended to prevent psychological consequences. Methods: The Preferred Reporting Items for Systematic Review and Meta-Analyses guidelines were used to report the findings of this review. Results: In total, 136 titles and 52 abstracts were selected. Of these 52 articles, 8 articles met all recommendations and inclusion criteria. Conclusions: Although cancer remains a leading cause of death worldwide, the issue of bereaved spouses following cancer remains understudied. Several notions and hypotheses were endorsed, such as possible resistance to and difficulties in conducting research on this kind of loss and with caregivers, the role of illness and postmortality in the scientific landscape.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"8 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135537645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-24DOI: 10.1177/10541373231201952
James Gerhart, Laura Bouchard Oswald, Laurie McLouth, Lindsey Gibb, Laura Perry, Ashley Eaton England, Timothy Sannes, Delaney Schoenbine, Katherine Ramos, Jared Greenberg, Sean O’Mahony, Stacie Levine, Aliza Baron, Michael Hoerger
Patients receiving palliative care experience stigma associated with their illness, personal identity, and healthcare utilization. These stigmas can occur at any stage of the disease process. Varying stigmas combine to cause palliative care patients to feel misunderstood, contribute to treatment barriers, and further negative stereotypes held by clinicians. Stigma surrounding palliative care patients stems from complex intersections of varied access to resources, familial and physical environment, socioeconomic status, mental health and disorders, and identity characteristics. This article examines the relationship between the stigmatization of mental health and palliative care through three pathways: stigma and barriers existing within healthcare, the tendency of this stigma to undermine social support, and patient deferral of treatment-seeking in response to stigma. Recommendations to address and diminish stigmatization are presented, including advocacy, increased research and assessment, and contextual and intersectional awareness. Clinicians are also encouraged to turn to their colleagues for peer support and team-based care.
{"title":"Understanding and Addressing Mental Health Disparities and Stigma in Serious Illness and Palliative Care","authors":"James Gerhart, Laura Bouchard Oswald, Laurie McLouth, Lindsey Gibb, Laura Perry, Ashley Eaton England, Timothy Sannes, Delaney Schoenbine, Katherine Ramos, Jared Greenberg, Sean O’Mahony, Stacie Levine, Aliza Baron, Michael Hoerger","doi":"10.1177/10541373231201952","DOIUrl":"https://doi.org/10.1177/10541373231201952","url":null,"abstract":"Patients receiving palliative care experience stigma associated with their illness, personal identity, and healthcare utilization. These stigmas can occur at any stage of the disease process. Varying stigmas combine to cause palliative care patients to feel misunderstood, contribute to treatment barriers, and further negative stereotypes held by clinicians. Stigma surrounding palliative care patients stems from complex intersections of varied access to resources, familial and physical environment, socioeconomic status, mental health and disorders, and identity characteristics. This article examines the relationship between the stigmatization of mental health and palliative care through three pathways: stigma and barriers existing within healthcare, the tendency of this stigma to undermine social support, and patient deferral of treatment-seeking in response to stigma. Recommendations to address and diminish stigmatization are presented, including advocacy, increased research and assessment, and contextual and intersectional awareness. Clinicians are also encouraged to turn to their colleagues for peer support and team-based care.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"27 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135925430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-24DOI: 10.1177/10541373231203362
Rabia Arpacı, Derya Tanriverdi
The hemodialysis process can lead to positive psychological changes in patients as they cope with physical and psychosocial stress factors. Understanding post-traumatic growth and factors that may be associated is essential to increasing the likelihood of achieving positive changes in hemodialysis patients. The aim of this study was to investigate the correlation between post-traumatic growth and self-compassion levels in hemodialysis patients. The study was conducted with 83 hemodialysis patients. Data were collected using “Demographic and Clinical Characteristics Form,” “Post-Traumatic Growth Inventory,” “Self-Compassion Scale.” Post-traumatic growth levels of hemodialysis patients were found to be moderate. The self-compassion levels of hemodialysis patients were found to be high. A statistically significant difference was found between gender, educational status, economic status, and self-compassion mean scores ( p < .05). However, no statistically significant correlation was found between post-traumatic growth and self-compassion ( p > .05). Further research is needed to explore the potential correlation between self-compassion and post-traumatic growth in hemodialysis patients.
{"title":"Post-Traumatic Growth and Self-Compassion Level in Hemodialysis Patients","authors":"Rabia Arpacı, Derya Tanriverdi","doi":"10.1177/10541373231203362","DOIUrl":"https://doi.org/10.1177/10541373231203362","url":null,"abstract":"The hemodialysis process can lead to positive psychological changes in patients as they cope with physical and psychosocial stress factors. Understanding post-traumatic growth and factors that may be associated is essential to increasing the likelihood of achieving positive changes in hemodialysis patients. The aim of this study was to investigate the correlation between post-traumatic growth and self-compassion levels in hemodialysis patients. The study was conducted with 83 hemodialysis patients. Data were collected using “Demographic and Clinical Characteristics Form,” “Post-Traumatic Growth Inventory,” “Self-Compassion Scale.” Post-traumatic growth levels of hemodialysis patients were found to be moderate. The self-compassion levels of hemodialysis patients were found to be high. A statistically significant difference was found between gender, educational status, economic status, and self-compassion mean scores ( p < .05). However, no statistically significant correlation was found between post-traumatic growth and self-compassion ( p > .05). Further research is needed to explore the potential correlation between self-compassion and post-traumatic growth in hemodialysis patients.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"35 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135925749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-16DOI: 10.1177/10541373231202473
Michael J Tatterton, Megan J Fisher, Helen Storton, Zoë P McShane, Charlotte Walker
There is growing international evidence of the benefits of early perinatal palliative care for babies and their families. Despite this, inconsistency remains in ways care is provided by services including fetal medicine, maternity and neonatal services, and children's hospices. The aim of this study was to answer the question “ What are the benefits and barriers to family-centered perinatal advance care planning from the perspective of professionals involved in the care of neonates and infants with life-limiting conditions?” Three focus groups comprising hospice practitioners were held across the UK. A lack of awareness of the role of hospices was described as the biggest barrier to referral to hospice services. Practitioners unanimously described having a physical presence alongside teams, as being the biggest contributor to improved multiagency working, facilitated through joint working and education provision. Early referral to hospice services, in parallel with curative services led to better outcomes and experiences of families, according to participants.
{"title":"<i>“Holding Families in Uncertainty”</i>: A Framework Analysis of the Role and Impact of Children's Hospices in the Provision of Perinatal Palliative Care","authors":"Michael J Tatterton, Megan J Fisher, Helen Storton, Zoë P McShane, Charlotte Walker","doi":"10.1177/10541373231202473","DOIUrl":"https://doi.org/10.1177/10541373231202473","url":null,"abstract":"There is growing international evidence of the benefits of early perinatal palliative care for babies and their families. Despite this, inconsistency remains in ways care is provided by services including fetal medicine, maternity and neonatal services, and children's hospices. The aim of this study was to answer the question “ What are the benefits and barriers to family-centered perinatal advance care planning from the perspective of professionals involved in the care of neonates and infants with life-limiting conditions?” Three focus groups comprising hospice practitioners were held across the UK. A lack of awareness of the role of hospices was described as the biggest barrier to referral to hospice services. Practitioners unanimously described having a physical presence alongside teams, as being the biggest contributor to improved multiagency working, facilitated through joint working and education provision. Early referral to hospice services, in parallel with curative services led to better outcomes and experiences of families, according to participants.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135307297","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-12DOI: 10.1177/10541373231201465
Tomohiro Uchida, Keiichi Jingu, Akari Uno, Kang Lin, Liu Fengxia, Wang Shijie, Li Jingge, Kohei Akawaza, Hatsumi Yoshii
This study investigated mental health, sleep quality, and quality of life among family members of patients with first-episode cancer. A survey was conducted with 39 family members of patients with cancer, using the Hospital Anxiety and Depression Scale (HADS), Pittsburgh Sleep Quality Index (PSQI), and Caregiver Quality of Life Index-Cancer (CQOLC). HADS scores indicated that 17 participants (43.6%) had adjustment and/or major depressive disorders. PSQI scores showed that 16 participants (42.1%) had sleep disturbances. However, CQOLC scores were higher than those in previous studies on families of patients with various stages of cancer. Although families of patients with first-episode cancer may not experience difficulties in their lives, their mental and physical conditions may be impaired. Healthcare providers should focus on the impact on the mental health and sleep needs of patients’ families caused by dealing with a loved one with cancer and offer support.
{"title":"A Quantitative Study on Mental Health, Sleep Quality, and Quality of Life among Family Members of Patients With First-Episode Cancer","authors":"Tomohiro Uchida, Keiichi Jingu, Akari Uno, Kang Lin, Liu Fengxia, Wang Shijie, Li Jingge, Kohei Akawaza, Hatsumi Yoshii","doi":"10.1177/10541373231201465","DOIUrl":"https://doi.org/10.1177/10541373231201465","url":null,"abstract":"This study investigated mental health, sleep quality, and quality of life among family members of patients with first-episode cancer. A survey was conducted with 39 family members of patients with cancer, using the Hospital Anxiety and Depression Scale (HADS), Pittsburgh Sleep Quality Index (PSQI), and Caregiver Quality of Life Index-Cancer (CQOLC). HADS scores indicated that 17 participants (43.6%) had adjustment and/or major depressive disorders. PSQI scores showed that 16 participants (42.1%) had sleep disturbances. However, CQOLC scores were higher than those in previous studies on families of patients with various stages of cancer. Although families of patients with first-episode cancer may not experience difficulties in their lives, their mental and physical conditions may be impaired. Healthcare providers should focus on the impact on the mental health and sleep needs of patients’ families caused by dealing with a loved one with cancer and offer support.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135884350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-11DOI: 10.1177/10541373231195448
Hanna A. A. Roewer, Stephanie Stiel, Franziska A. Herbst
Interview data from the Dy@EoL project reveal changes in parent–adult child communication in end-of-life situations (Gawinski et al., 2021). The present study investigated the presence of commonly known facilitating and inhibiting factors for relieving communication in interviews of dyads comprised of: (a) terminally ill adult children and their parents and (b) terminally ill parents and their adult children. Additionally, the research examined the extent to which participants experienced the dyadic communication as burdensome or relieving, and compared the experiences of dyad partners. Study participants were interviewed as part of the Dy@EoL project, using semistructured interviews. The interviews of 9 dyads and 14 dyads were analyzed using qualitative content analysis in MAXQDA. Both dyad partners took part. All facilitating factors and some inhibiting factors, as identified in the literature, were evident in the interviews. Some dyads reported the presence of facilitating factors prior to the end-of-life situation, while others began to employ them (or employed them more intensively) in the end-of-life situation. Dyads showed similar experiences of burden and relief, through communication. Both parties should be offered psychosocial support, even when a burden is reported on only one side.
Dy@EoL项目的访谈数据揭示了临终情况下父母-成人-子女沟通的变化(Gawinski et al.， 2021)。本研究调查了由(a)绝症成年子女及其父母和(b)绝症父母及其成年子女组成的二人组访谈中，常见的促进和抑制沟通的因素是否存在。此外，该研究还调查了参与者在多大程度上认为二元交流是负担还是缓解，并比较了二元伴侣的经历。作为Dy@EoL项目的一部分，研究参与者接受了半结构化访谈。采用MAXQDA的定性内容分析对9对和14对的访谈进行分析。两对搭档都参加了。所有在文献中发现的促进因素和一些抑制因素在访谈中都很明显。一些二人组在生命结束前报告了促进因素的存在，而另一些则在生命结束时开始使用它们(或更密集地使用它们)。通过交流，夫妻表现出了相似的负担和解脱的经历。即使只有一方报告有负担，也应向双方提供心理社会支持。
{"title":"The Influence of Family Communication on Experienced Relief and Burden at the End of Life—An Explorative Analysis of Qualitative Data of Parent–Adult Child Dyads","authors":"Hanna A. A. Roewer, Stephanie Stiel, Franziska A. Herbst","doi":"10.1177/10541373231195448","DOIUrl":"https://doi.org/10.1177/10541373231195448","url":null,"abstract":"Interview data from the Dy@EoL project reveal changes in parent–adult child communication in end-of-life situations (Gawinski et al., 2021). The present study investigated the presence of commonly known facilitating and inhibiting factors for relieving communication in interviews of dyads comprised of: (a) terminally ill adult children and their parents and (b) terminally ill parents and their adult children. Additionally, the research examined the extent to which participants experienced the dyadic communication as burdensome or relieving, and compared the experiences of dyad partners. Study participants were interviewed as part of the Dy@EoL project, using semistructured interviews. The interviews of 9 dyads and 14 dyads were analyzed using qualitative content analysis in MAXQDA. Both dyad partners took part. All facilitating factors and some inhibiting factors, as identified in the literature, were evident in the interviews. Some dyads reported the presence of facilitating factors prior to the end-of-life situation, while others began to employ them (or employed them more intensively) in the end-of-life situation. Dyads showed similar experiences of burden and relief, through communication. Both parties should be offered psychosocial support, even when a burden is reported on only one side.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"365 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136024689","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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