KNOWLEDGE AND PRACTICES OF FAMILY CAREGIVERS OF TERMINALLY ILL PATIENTS AT THE TAMALE REGIONAL HOSPITAL

Afia Kwakyewaa Owusu-Agyeman, Eric Tornu, Abdulai Abdul Malik, Catherine Kyiu, Faustina Yin Yariga, Safura Seidu, Ababio-Boamah Christopher, Ofei Philemon Ashirifie, Owusu Samuel
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Abstract

The goal of this study was to evaluate the knowledge of family Caregivers in caring for terminally ill sufferers, to assess the practices of household Caregivers in caring for terminally ill sufferers, to examine the factors affecting household Caregivers in caring for terminally ill sufferers at the Tamale Regional Hospital. The findings show that there is the need for a caregiver to be present and ready to offer help to the patients due to their inability to move. Terminally ill patients may mostly be immobile or incapable of performing basic life functions without external support. It appears from the engagement with respondents that, the latter have appreciable knowledge of the concept of palliative care and care for terminally ill patients. They understand the challenging situation of terminally ill patients and are equally aware of what constitutes care for the sufferer. Also, family caregiver showed evidence of knowledge of health workers role in palliative care. They indicated that health workers had a crucial role to play in giving palliative care to the terminally ill patient. Doctors had the responsibility of prescribing medications while nurses also educate relatives and caregivers on palliative care. More so, health workers assisted in the caring of patients by assisting caregivers to physically move patients. Caregivers who could not move their patients due to the latters weight had to be assisted by some health workers. The result also indicates health workers played a crucial role in caring for terminally ill patients, of which caregivers were aware. The study further found that the other effect of caring for terminally ill patients was financial demands. To overcome this burden, the study recommends that caregivers had to cut their expenditures and request financial support from relatives and friends as family support was also a mechanism used in coping with the burden of caring for terminally ill patients. Also, the Tamale Regional Hospital should incorporate the services of family caregivers in the care of terminally ill patients. Their competence would immensely contribute to the improvement in the health of terminally ill patients. Further, the Ministry of Health should develop policies that will lessen burden on family caregivers of patients suffering from terminal diseases.
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塔马利地区医院临终病人家庭护理人员的知识和做法
本研究的目的是评估家庭护理人员在护理临终病人方面的知识,评估家庭护理人员在护理临终病人方面的做法,研究影响家庭护理人员在塔马利地区医院护理临终病人的因素。研究结果表明,由于病人行动不便,护理人员有必要在场并随时准备为病人提供帮助。晚期病人大多行动不便,或者在没有外部支持的情况下无法履行基本的生活功能。从与受访者的接触中可以看出,后者对姑息关怀和临终病人关怀的概念有相当的了解。他们了解临终病人的艰难处境,同样也知道什么是对病人的关怀。此外,家庭照护者也对医护人员在姑息关怀中的作用有所了解。他们表示,医护人员在为临终病人提供姑息关怀方面起着至关重要的作用。医生的职责是开药方,而护士也对亲属和照护者进行姑息关怀方面的教育。此外,医护人员还通过协助护理人员移动病人来协助护理病人。护理人员如果因为病人的体重而无法移动病人,就必须由一些医护人员协助。研究结果还表明,医护人员在护理临终病人方面发挥了至关重要的作用,护理人员也意识到了这一点。研究还发现,照顾临终病人的另一个影响是经济需求。为了克服这一负担,研究建议护理人员必须减少开支,并请求亲戚和朋友提供经济支持,因为家庭支持也是应对护理临终病人负担的一种机制。此外,塔马利地区医院应将家庭护理人员的服务纳入临终病人的护理工作中。他们的能力将大大有助于改善临终病人的健康状况。此外,卫生部应制定政策,减轻临终病人家庭护理人员的负担。
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