Barriers and Facilitators of Healthcare Access for Autistic Children in the UK: a Systematic Review

IF 2.9 3区心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Review Journal of Autism and Developmental Disorders Pub Date : 2024-01-05 DOI:10.1007/s40489-023-00420-3

Tonia Babalola, Giulia Sanguedolce, Lucy Dipper, Nicola Botting

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Abstract

Background

Individuals with autism are more likely to suffer from various physical and mental health problems and experience disparities in effectively accessing healthcare services. This review aims to identify studies that report on the experiences of autistic children, their parents/carers, and the healthcare professionals treating them; to develop an understanding of the facilitators and barriers to healthcare access in order to inform policies and practice to improve access to healthcare for autistic children in the UK.

Methods

A total of 3069 records were screened, and 24 studies were included; six quantitative, four qualitative, and fourteen mixed-methodology studies.

Results

Professional and parental knowledge about autism, sensory issues, challenging behaviour, system-level barriers, patient-provider-parent communication issues, lack of person-centred care, stigma, and culture emerged as significant barriers to accessing healthcare for autistic children.

Conclusions

Families of autistic children experience several barriers to accessing healthcare. Recommendations for those planning services and clinicians are discussed.

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英国自闭症儿童获得医疗服务的障碍和促进因素：系统性综述

背景自闭症患者更有可能出现各种身体和精神健康问题，并且在有效获得医疗保健服务方面存在差异。本综述旨在确定报告自闭症儿童、其父母/照护者以及为其提供治疗的医疗专业人员的经历的研究，以了解获得医疗服务的促进因素和障碍，从而为改善英国自闭症儿童获得医疗服务的政策和实践提供信息。方法共筛选了 3069 份记录，纳入了 24 项研究；其中包括 6 项定量研究、4 项定性研究和 14 项混合方法研究。结果专业人士和家长对自闭症的了解、感官问题、挑战性行为、系统层面的障碍、患者-医护人员-家长之间的沟通问题、缺乏以人为本的护理、耻辱感和文化成为自闭症儿童获得医疗保健服务的主要障碍。本文讨论了对服务规划者和临床医生的建议。

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来源期刊

Review Journal of Autism and Developmental Disorders PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

8.40

自引率

0.00%

发文量

期刊介绍： The Review Journal of Autism and Developmental Disorders publishes original articles that provide critical reviews of topics across the broad interdisciplinary research fields of autism spectrum disorders. Topics range from basic to applied and include but are not limited to genetics, neuroscience, diagnosis, applied behavior analysis, psychopharmacology, incidence, prevalence, etiology, differential diagnosis, treatment, measurement of treatment effects, education, perception and cognition. Topics across the life span are appropriate. In addition, given the high rates of comorbid conditions, the interface of sleep disorders, feeding problems, motor difficulties, ADHD, anxiety, depression and other disorders with autism spectrum disorders are appropriate. The Journal aims for an international audience as reflected in the editorial board.