A Qualitative Systematic Review and Meta-synthesis of Mothers’ Experiences of Parenting Autistic Women and Girls

IF 2.9 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Review Journal of Autism and Developmental Disorders Pub Date : 2024-08-26 DOI:10.1007/s40489-024-00472-z
Michelle Oliver, Zoe Poysden, Karri Gillespie-Smith
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Abstract

This review systematically explores qualitative evidence of the lived experience of mothers’ parenting autistic women and girls. A SPIDER search strategy was conducted on five databases and in the grey literature. Backward, forward and relevant journal scanning was also carried out. Twenty-two qualitative or mixed-method studies were included and quality appraised using CASP, encompassing over 150 mothers. A thematic synthesis highlighted five super-ordinate themes; ‘The diagnosis process and getting support’, ‘Mother’s role as all consuming’, ‘Experiences of family wellbeing’, ‘Mother as an expert observer’ and ‘The hopes and fears of mothers’. The review highlights areas of motivation to socialise, masking and menstruation needs as key differences in the autistic female presentation from a mothers’ perspective. Implications for practice are discussed.

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母亲养育自闭症妇女和女孩经历的定性系统性回顾和元综述
本综述系统地探讨了母亲养育自闭症妇女和女孩的生活经历的定性证据。我们在五个数据库和灰色文献中采用了 SPIDER 搜索策略。此外,还进行了后向、前向和相关期刊扫描。共纳入 22 项定性或混合方法研究,并使用 CASP 进行了质量评估,涉及 150 多名母亲。专题综述强调了五个超级主题:"诊断过程和获得支持"、"母亲的角色是全能的"、"家庭幸福体验"、"母亲作为专家观察员 "以及 "母亲的希望和恐惧"。综述从母亲的角度强调了自闭症女性在社交动机、掩饰和月经需求等方面的主要差异。讨论了对实践的影响。
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来源期刊
CiteScore
8.40
自引率
0.00%
发文量
51
期刊介绍: The Review Journal of Autism and Developmental Disorders publishes original articles that provide critical reviews of topics across the broad interdisciplinary research fields of autism spectrum disorders. Topics range from basic to applied and include but are not limited to genetics, neuroscience, diagnosis, applied behavior analysis, psychopharmacology, incidence, prevalence, etiology, differential diagnosis, treatment, measurement of treatment effects, education, perception and cognition. Topics across the life span are appropriate. In addition, given the high rates of comorbid conditions, the interface of sleep disorders, feeding problems, motor difficulties, ADHD, anxiety, depression and other disorders with autism spectrum disorders are appropriate. The Journal aims for an international audience as reflected in the editorial board.
期刊最新文献
Risk and Influencing Factors for School Absenteeism among Students on the Autism Spectrum—A Systematic Review Trends of Utilizing Telepractice in Adult Training and Coaching for Children with Autism: A Umbrella Review The Relationship Between Adaptive Behaviour and Motor Proficiency—A Systematic Review A Qualitative Systematic Review and Meta-synthesis of Mothers’ Experiences of Parenting Autistic Women and Girls A Systematic Review of Evidence-Based Instruction for Developing Fraction Concepts of Autistic Students and Those with Intellectual and Developmental Disability
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