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Risk and Influencing Factors for School Absenteeism among Students on the Autism Spectrum—A Systematic Review 自闭症谱系学生旷课的风险和影响因素--系统回顾
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-09-05 DOI: 10.1007/s40489-024-00474-x
Isabella Sasso, Teresa Sansour

School plays an important role in the development of a child. The impact of school absenteeism extends beyond academic achievement, affecting one's ability to participate in life successfully. In particular, children with difficulties in communication and interaction are at risk of developing school absences. This systematic review therefore focused on school absenteeism among children on the autism spectrum and examined the risk and influencing factors contributing to school absences. Eighteen studies were included, thirteen of which used a quantitative design, two of which were mixed-method studies, and three of which had a qualitative design. Different studies had varying definitions of school absenteeism and employed diverse study designs, prompting the need for a narrative synthesis. We evaluated the data regarding the factors of individual, parental, and school based on the KiTes bioecological systems framework for school attendance and absence by Melvin et al. (2019). We identified the majority of risks and influences in relation to the school factor and identified interacting factors contributing to school absenteeism in all factors. We recognised research gaps and provided guidance for further research.

学校在孩子的成长过程中扮演着重要角色。旷课的影响超出了学业成绩,还会影响一个人成功参与生活的能力。尤其是在交流和互动方面存在困难的儿童,更有可能出现旷课现象。因此,本系统性综述重点关注自闭症谱系儿童的旷课问题,并研究了导致旷课的风险和影响因素。共纳入 18 项研究,其中 13 项采用定量设计,2 项为混合方法研究,3 项采用定性设计。不同的研究对旷课的定义各不相同,采用的研究设计也不尽相同,因此需要进行叙述性综合。我们根据梅尔文等人(2019 年)提出的关于学校出勤和缺勤的 KiTes 生物生态系统框架,对有关个人、家长和学校因素的数据进行了评估。我们确定了与学校因素相关的大部分风险和影响因素,并确定了导致所有因素中旷课的相互作用因素。我们确认了研究缺口,并为进一步研究提供了指导。
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引用次数: 0
Trends of Utilizing Telepractice in Adult Training and Coaching for Children with Autism: A Umbrella Review 在针对自闭症儿童的成人培训和辅导中利用远程实践的趋势:综述
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-09-04 DOI: 10.1007/s40489-024-00475-w
Moon Y. Chung, James D. Lee, Casey K. Kim

Purpose

We explored the trends of telepractice interventions study that focused on supporting adults who ultimately support children with developmental disabilities.

Methods

We reviewed telepractice single-case intervention studies published in peer-reviewed journals in the past 10 years. We specifically focused on components of training and coaching adults who support children with developmental disabilities. We first reviewed the general characteristics of each experimental study, including the design rigor. Then we looked deeply into the format and structure of training and coaching and the characteristics of those approaches based on the adult learning theory (Trivette et al., Research Brief, 3(1), 1–33, 2009). Finally, we synthesized the reviewed information to explore the trends of supporting adults through telepractice.

Results

The results of this review aligned with the common understanding of training and coaching characteristics: instruction, practice, and feedback. However, the literature shows limited recommended components in both training and coaching.

Conclusion

The current review enhanced the telepractice literature for supporting adult learners with the gap that can be explored by future research. We believe the review also helps build a telepractice program structure for professionals planning to support adults who currently or will eventually work with children with developmental disabilities.

目的我们对远程实践干预研究的趋势进行了探讨,这些研究的重点是为最终为发育障碍儿童提供支持的成人提供支持。方法我们回顾了过去 10 年中发表在同行评审期刊上的远程实践单一案例干预研究。我们特别关注了对支持发育障碍儿童的成人进行培训和指导的内容。我们首先回顾了每项实验研究的一般特点,包括设计的严谨性。然后,我们深入研究了培训和辅导的形式和结构,以及这些基于成人学习理论的方法的特点(Trivette 等人,《研究简报》,3(1), 1-33, 2009 年)。最后,我们综合了所查阅的资料,探讨了通过远程实践为成人提供支持的趋势。结果本综述的结果与对培训和辅导特点的共识一致:指导、实践和反馈。然而,文献显示培训和辅导中推荐的内容有限。我们相信,本综述还有助于为计划为目前或最终将从事发育障碍儿童工作的成人提供支持的专业人员建立远程实践项目结构。
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引用次数: 0
The Relationship Between Adaptive Behaviour and Motor Proficiency—A Systematic Review 适应行为与运动能力之间的关系--系统回顾
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-09-02 DOI: 10.1007/s40489-024-00456-z
Katina McCulloch, Debbie Van Biesen, Ilse Noens, Yves C. Vanlandewijck

The aim of this review is to explore the relationship between adaptive behaviour (AB) and motor proficiency (MP). Despite AB being one of the core criteria for the diagnosis of intellectual disability, no review into the relationship between AB and MP exists. Of the 23 final studies, 19 supported a relationship between AB (composite score and/or practical, social or conceptual domains) and MP. Six studies included intellectual functioning variables, all highlighting the importance of considering both AB and intellectual functioning in relation to MP. Overall, there is evidence to support a relationship between AB and MP. More research is required of high methodological quality, in a variety of population samples and including intellectual functioning data.

本综述旨在探讨适应行为(AB)与运动能力(MP)之间的关系。尽管适应行为是智障诊断的核心标准之一,但目前还没有关于适应行为与运动能力之间关系的综述。在 23 项最终研究中,19 项研究支持 AB(综合评分和/或实践、社交或概念领域)与 MP 之间的关系。六项研究包括智力功能变量,所有这些研究都强调了同时考虑 AB 和智力功能与 MP 关系的重要性。总体而言,有证据支持 AB 与 MP 之间的关系。还需要更多方法学质量高、针对不同人群样本并包含智力功能数据的研究。
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引用次数: 0
A Qualitative Systematic Review and Meta-synthesis of Mothers’ Experiences of Parenting Autistic Women and Girls 母亲养育自闭症妇女和女孩经历的定性系统性回顾和元综述
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-08-26 DOI: 10.1007/s40489-024-00472-z
Michelle Oliver, Zoe Poysden, Karri Gillespie-Smith

This review systematically explores qualitative evidence of the lived experience of mothers’ parenting autistic women and girls. A SPIDER search strategy was conducted on five databases and in the grey literature. Backward, forward and relevant journal scanning was also carried out. Twenty-two qualitative or mixed-method studies were included and quality appraised using CASP, encompassing over 150 mothers. A thematic synthesis highlighted five super-ordinate themes; ‘The diagnosis process and getting support’, ‘Mother’s role as all consuming’, ‘Experiences of family wellbeing’, ‘Mother as an expert observer’ and ‘The hopes and fears of mothers’. The review highlights areas of motivation to socialise, masking and menstruation needs as key differences in the autistic female presentation from a mothers’ perspective. Implications for practice are discussed.

本综述系统地探讨了母亲养育自闭症妇女和女孩的生活经历的定性证据。我们在五个数据库和灰色文献中采用了 SPIDER 搜索策略。此外,还进行了后向、前向和相关期刊扫描。共纳入 22 项定性或混合方法研究,并使用 CASP 进行了质量评估,涉及 150 多名母亲。专题综述强调了五个超级主题:"诊断过程和获得支持"、"母亲的角色是全能的"、"家庭幸福体验"、"母亲作为专家观察员 "以及 "母亲的希望和恐惧"。综述从母亲的角度强调了自闭症女性在社交动机、掩饰和月经需求等方面的主要差异。讨论了对实践的影响。
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引用次数: 0
A Systematic Review of Evidence-Based Instruction for Developing Fraction Concepts of Autistic Students and Those with Intellectual and Developmental Disability 自闭症学生和智力及发育障碍学生分数概念发展循证教学的系统回顾
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-08-16 DOI: 10.1007/s40489-024-00473-y
Gulnoza Yakubova, Maryam Nozari, Yewon Lee

The purpose of this systematic review of literature was to synthesize research on instructional practices used to develop fraction concepts of autistic students and students with intellectual and developmental disability in elementary and secondary school grades. Fourteen articles, published between 2015 and 2023, met the inclusion criteria for this systematic review. Participants were represented from elementary through high school grades with the majority of them being in middle school grades. Majority of studies used either a type of video-based instruction or explicit instruction to teach fraction skills with both types of instruction resulting in effective learning outcomes among participants. The findings suggest the emerging evidence of effectiveness of instructional strategies to support the development of fraction concepts among students.

本系统性文献综述的目的是对用于培养中小学年级自闭症学生和智力及发育障碍学生分数概念的教学实践进行研究综述。2015 年至 2023 年间发表的 14 篇文章符合本次系统性综述的纳入标准。研究对象涵盖小学至高中年级,其中大部分为初中年级学生。大多数研究采用视频教学或显性教学的方式教授分数技能,这两种教学方式都为参与者带来了有效的学习成果。研究结果表明,新出现的证据表明,支持学生发展分数概念的教学策略是有效的。
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引用次数: 0
Assessing Play in Children Developing with Delays: A Scoping Review 评估发育迟缓儿童的游戏情况:范围审查
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-07-30 DOI: 10.1007/s40489-024-00469-8
Haley V. Medeiros, Karin Lifter, Grace Goodwin, Robert Antonelli

Research demonstrates children developing with delays evidence less elaborated play than children developing typically, but methodology for evaluating play is inconsistent. This scoping review reports clinical populations studied and categorical terms used categorizing object play, and compares these categories with a contemporary comprehensive analysis of children’s play. Thirty-four peer-reviewed articles were analyzed for characteristics, definitions, origins, and differentiation of play category descriptions, and comparison to the 21 categories identified in our study of children’s play from 8 to 60 months (Lifter et al., Acta Psychologica 224:103524, 2022). Findings indicated categories across studies tended to overlap with several of the 21 categories, suggesting widely used categories do not capture nuances in play development. Increased standardization and specificity in play assessment can improve interventions to benefit children developing with delays.

研究表明,发育迟缓儿童的游戏不如发育正常儿童精细,但评估游戏的方法却不一致。这篇范围界定综述报告了所研究的临床人群和对象游戏分类术语,并将这些分类与当代儿童游戏综合分析进行了比较。我们分析了 34 篇经同行评审的文章,以了解游戏类别描述的特征、定义、起源和区分, 并与我们对 8 到 60 个月儿童游戏的研究(Lifter 等人,Acta Psychologica 224:103524,2022 年)中确定的 21 个类别进行比较。研究结果表明,各研究的类别往往与 21 个类别中的几个重叠,这表明广泛使用的类别并不能反映游戏发展的细微差别。提高游戏评估的标准化和特异性可以改进干预措施,使发育迟缓儿童受益。
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引用次数: 0
Factors that Influence Uptake of Genetic Testing for Children with Autism Spectrum Disorder: A Scoping Review 影响自闭症谱系障碍儿童接受基因检测的因素:范围审查
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-07-17 DOI: 10.1007/s40489-024-00467-w
Chaya N. Murali, Georgina J. Sakyi, Robin P. Goin-Kochel, Sarah S. Mire

Genetic testing is recommended for all children diagnosed with autism spectrum disorder (ASD), yet available evidence suggests that not all receive appropriate genetic testing. We conducted a scoping review of factors that influence parent/caregiver uptake of genetic testing for their children with ASD. Overall, 37 articles met inclusion criteria. Themes included widespread lack of awareness of genetic testing recommendations but also varying interest in genetic testing once aware. Potential barriers included insurance and financial concerns, logistical challenges, and the lack of belief that genetics can cause ASD. Findings highlight the need to (a) better educate parents about practical benefits of genetic testing and causes of ASD and (b) increase insurance coverage and mitigate costs to improve uptake of genetic testing.

建议对所有被诊断患有自闭症谱系障碍(ASD)的儿童进行基因检测,但现有证据表明,并非所有儿童都接受了适当的基因检测。我们对影响父母/照顾者接受自闭症谱系障碍儿童基因检测的因素进行了范围界定。共有 37 篇文章符合纳入标准。主题包括普遍缺乏对基因检测建议的了解,但在了解后对基因检测的兴趣也各不相同。潜在的障碍包括保险和经济问题、后勤挑战以及不相信遗传会导致 ASD。研究结果突出表明,有必要:(a)更好地教育家长,使他们了解基因检测的实际益处和导致 ASD 的原因;(b)增加保险覆盖面并降低成本,以提高基因检测的接受率。
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引用次数: 0
Refractive Errors Linked to Autism Spectrum Disorders in the Pediatric Population and Young Adults: A Systematic Review and Meta-Analysis 与自闭症谱系障碍有关的儿童和青少年屈光不正:系统回顾与元分析
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-07-13 DOI: 10.1007/s40489-024-00468-9
Zain Ali Nadeem, Umar Akram, Talha Bin Khalid, Muhammad Asfandyar Nadir, Muhammad Hasnat Akhtar

While previous studies have demonstrated significant eye problems in children with autism spectrum disorders (ASDs), refractive errors have not been extensively studied in the context of ASDs. We systematically reviewed twenty-eight articles to assess whether refractive errors are linked with ASDs, and to determine the prevalence of refractive errors in children with ASDs. We found no significant association between ASDs and myopia or hyperopia, but a significantly increased risk of astigmatism was observed in children with ASDs. Pooled results of single-arm studies revealed a 14.1% prevalence of myopia, a 9.8% prevalence of hyperopia, and a 16.5% prevalence of astigmatism in children with ASDs. Future studies should incorporate a prospective design with age-matched comparison groups.

以往的研究表明,自闭症谱系障碍(ASD)儿童存在严重的眼部问题,但有关自闭症谱系障碍的屈光不正研究却并不广泛。我们系统回顾了 28 篇文章,以评估屈光不正是否与自闭症谱系障碍有关,并确定屈光不正在自闭症谱系障碍儿童中的患病率。我们发现 ASD 与近视或远视之间没有明显关联,但观察到 ASD 儿童出现散光的风险明显增加。单臂研究的汇总结果显示,在 ASD 儿童中,近视发生率为 14.1%,远视发生率为 9.8%,散光发生率为 16.5%。未来的研究应采用前瞻性设计,并设置年龄匹配的对比组。
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引用次数: 0
Teaching Reading Skills to Individuals with Autism and/or Intellectual Disabilities Using Computer-Assisted Instruction: a Systematic Review 使用计算机辅助教学教授自闭症和/或智障人士阅读技能:系统综述
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-05-31 DOI: 10.1007/s40489-024-00465-y
Olivia Kurzeja, Samantha Flynn, Corinna F. Grindle, Daniel Sutherland, Richard P. Hastings

Reading is an essential life skill that can lead to independence. However, many individuals with autism and/or intellectual disabilities find this skill difficult to acquire. Computer-assisted instruction (CAI) is one approach that combines recommended reading elements (e.g., phonics, fluency, and comprehension) with evidence-based teaching strategies to support the development of reading skills. The first aim of this systematic review (PROSPERO: CRD42021253686) was to identify CAI reading programs and their effectiveness for individuals with autism and/or intellectual disability. A second aim was to evaluate the views and experiences of those with autism and/or intellectual disability, their teachers, and other stakeholders about CAI reading programs. Electronic searches of 7 databases identified a total of 3539 records for review, with 262 full-text articles evaluated, and 47 papers included in the review for data extraction and quality appraisal. The review identified both single-component and multicomponent CAI reading programs that were commercially available interventions (e.g., Headsprout©, ABRACADABRA) and bespoke interventions (e.g., personalized e-books). Thirty-four of the 47 studies reported positive outcomes in terms of effectiveness. However, the quality of these studies was often poor, and the description of the interventions was often limited (e.g., rationale for the intervention, who delivered it and how), leading to concerns about the rigor of the evidence base. Stakeholders’ views and experiences were reported in half of the evaluated studies. CAI reading programs were reported as enjoyable and easy to use. They were considered effective by the stakeholders. Further research is needed to develop and explore the effectiveness of CAI reading interventions using rigorous study designs, so that individuals with autism and/or intellectual disability can be provided with access to a wider range of evidence-based reading programs.

阅读是一项基本的生活技能,它可以使人独立。然而,许多患有自闭症和/或智障的人发现这项技能很难掌握。计算机辅助教学(CAI)是一种方法,它将推荐的阅读要素(如语音、流利性和理解能力)与循证教学策略相结合,以支持阅读技能的发展。本系统性综述(PROSPERO:CRD42021253686)的第一个目的是确定 CAI 阅读计划及其对自闭症和/或智障人士的有效性。第二个目的是评估自闭症和/或智障人士、其教师以及其他利益相关者对 CAI 阅读项目的看法和经验。通过对 7 个数据库进行电子检索,共发现了 3539 条审查记录,对 262 篇全文文章进行了评估,并将 47 篇论文纳入审查范围进行数据提取和质量评估。综述确定了单组分和多组分 CAI 阅读计划,其中既有商业干预(如 Headsprout©、ABRACADABRA),也有定制干预(如个性化电子书)。47 项研究中有 34 项报告了积极的效果。然而,这些研究的质量往往很差,对干预措施的描述往往很有限(例如,干预措施的原理、由谁实施以及如何实施),导致人们对证据基础的严谨性产生担忧。半数受评研究报告了利益相关者的观点和经验。据报告,CAI 阅读计划令人愉悦且易于使用。利益相关者认为它们很有效。需要进一步开展研究,利用严格的研究设计来开发和探索 CAI 阅读干预的有效性,从而为自闭症和/或智障人士提供更广泛的循证阅读计划。
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引用次数: 0
Characterisation of Sleep Problems in Angelman Syndrome: A Systematic Review 安杰尔曼综合征睡眠问题的特征:系统回顾
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-05-18 DOI: 10.1007/s40489-024-00458-x
Nakita O’Rourke, Ross Haverty, Arlene Mannion, Sally Whelan, Geraldine Leader

Studies have reported high prevalence rates of sleep problems in Angelman Syndrome (AS), relating to abnormal sleep–wake cycles and reduced sleep duration. This systematic review aimed to characterise sleep problems in AS, investigate how they are assessed and identify the treatments/interventions prescribed. A systematic search of PsycINFO, PubMed and Psychology & Behavioral Sciences Collection was conducted using pre-determined search terms. Relevant studies published between 2016 and mid-2020 were included to expand on earlier reviews. Seven articles quantifying sleep problems, assessment and treatment/intervention in children and adults with AS were reviewed (N = 266). Findings demonstrated reduced total sleep duration (M = 538 min), longer night-awakenings (M = 67 min) and reduced sleep efficiency (78%) in AS compared with typically developing peers. Medication was highly prescribed historically/currently (n = 176, 66.2%). This review highlights the clinically significant presence of sleep problems with the majority of individuals requiring medical intervention. Decreased sleep duration, sleep efficiency and increased night-awakenings represent the most significant sleep problems across studies. Findings suggest sleep problems begin in infancy but improve in adulthood. This finding should be considered with caution as only two studies included an adult sample. Priorities for future research should focus on longitudinal studies to determine whether sleep problems improve with age in AS.

研究报告显示,安杰尔曼综合症(AS)患者的睡眠问题发生率很高,与睡眠-觉醒周期异常和睡眠时间缩短有关。本系统综述旨在描述安杰尔曼综合症患者睡眠问题的特征,调查如何评估这些问题,并确定所采取的治疗/干预措施。我们使用预先确定的检索词对 PsycINFO、PubMed 和 Psychology & Behavioral Sciences Collection 进行了系统检索。纳入了 2016 年至 2020 年中期发表的相关研究,以扩展之前的综述。共审查了七篇文章,这些文章对患有强直性脊柱炎的儿童和成人的睡眠问题、评估和治疗/干预进行了量化(N = 266)。研究结果表明,与发育正常的同龄人相比,强直性脊柱炎患者的总睡眠时间缩短(M = 538 分钟),夜醒时间延长(M = 67 分钟),睡眠效率降低(78%)。历史/当前处方药物较多(n = 176,66.2%)。本研究强调了临床上存在的严重睡眠问题,其中大多数人需要医疗干预。睡眠时间缩短、睡眠效率降低和夜醒次数增加是各项研究中最显著的睡眠问题。研究结果表明,睡眠问题始于婴儿期,但在成年后会有所改善。由于只有两项研究包含成人样本,因此应谨慎考虑这一发现。未来研究的重点应放在纵向研究上,以确定强直性脊柱炎患者的睡眠问题是否会随着年龄的增长而改善。
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Review Journal of Autism and Developmental Disorders
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