An Online Photovoice Study Designed by Researchers from Art and Social Work to Better Understand the Experience of Chronic Pain by Women of Color

Jane Prophet, Rahbel Rahman, Afton L. Hassett
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Abstract

In 1980s British feminist artist-photographer Jo Spence used phototherapy to challenge normative and medicalized constructions of the female cancer patient by documenting her illness and was then employed as a consultant by hospitals who, through her work, recognized the need to change physicians’ practices and attitudes, which objectified patients. Photovoice, a Community Based Participatory Design method where participants take photographs and combine them with short text narratives, is similar to Spence’s artistic method. It has been used widely in health and social work settings. Healthcare professionals are aware of the power of images as catalysts for meaning making in medical encounters with people in pain; as part of multidisciplinary analysis, because images can enhance a person’s sense of agency in relation to their pain, especially in clinical contexts. Photographs can also establish a common ground for discussing meaning, therefore Photovoice can make the hidden experience of pain visible through collaborative photo-texts. These are subsequently shared with other patients and healthcare workers to aid them in specialist consultations.  However, few studies have addressed gender and race-related health disparities in treating chronic pain. This paper draws on the authors’ study with twenty women of color who created photo-text works about their experiences living with and being treated for chronic pain. In this novel online Photovoice study, participants engaged with asynchronous videos created by an artist-professor about the meanings viewers make of a photograph, including how perspective, angle, and lighting can affect the viewer’s emotional response to photographs. Participants then deployed Photovoice through six synchronous sessions led by a social work professor with extensive experience designing and facilitating Photovoice studies. The resulting image-text works by study participants address health inequity and argue for health equity as a hallmark of social justice in healthcare by focusing on exposing and reducing healthcare disparities.
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由艺术和社会工作研究人员设计的在线摄影选择研究,旨在更好地了解有色人种妇女的慢性疼痛经历
20 世纪 80 年代,英国女权主义艺术家兼摄影师乔-斯彭斯(Jo Spence)利用摄影疗法,通过记录女性癌症患者的病情,挑战了对女性癌症患者的规范化和医学化建构,随后她被医院聘为顾问,通过她的工作,医院认识到有必要改变医生将患者物化的做法和态度。摄影荐言是一种基于社区的参与式设计方法,参与者拍摄照片并将其与简短的文字叙述相结合,这与斯本斯的艺术方法类似。它已被广泛应用于卫生和社会工作领域。医疗保健专业人员意识到,在与疼痛患者的医疗接触中,图像作为意义建构催化剂的力量;作为多学科分析的一部分,因为图像可以增强患者对其疼痛的代入感,尤其是在临床环境中。照片还可以建立一个讨论意义的共同点,因此照片荐言可以通过协作性照片文本使隐藏的疼痛体验显现出来。这些照片随后会与其他患者和医护人员分享,以帮助他们进行专家会诊。 然而,很少有研究涉及治疗慢性疼痛过程中与性别和种族相关的健康差异。本文借鉴了作者对 20 名有色人种女性的研究,这些女性创作了照片文字作品,讲述了她们与慢性疼痛相关的生活和接受治疗的经历。在这项新颖的在线 "照片选择"(Photovoice)研究中,参与者观看了由一位艺术家教授制作的异步视频,内容涉及观众对照片的理解,包括视角、角度和光线如何影响观众对照片的情感反应。然后,参与者在一位在设计和促进 Photovoice 研究方面具有丰富经验的社会工作教授的带领下,通过六次同步会议来部署 Photovoice。研究参与者最终创作出的图像-文字作品通过揭露和减少医疗差距,解决了健康不公平问题,并主张将健康公平作为医疗保健领域社会公正的标志。
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