Processes of Creating a National Cancer Registry System in the Philippines

IF 1.1 Q2 SOCIAL SCIENCES, INTERDISCIPLINARY Electronic Journal of Information Systems in Developing Countries Pub Date : 2024-03-28 DOI:10.1002/isd2.12324
Abigail Lim Tan, Erin Jay G. Feliciano, Katrina Erika Rocha Habaluyas, Nina Patricia Bolong, John Q. Wong
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Abstract

As a new entrant in the Philippine Cancer Health Information Network, the Philippine Cancer Center (PCC) was pushed to establish the National Cancer Registry as mandated by the National Integrated Cancer Control Act (NICCA). The researchers used a rapid review and rapid realist review approaches which made use of evidence from literature and data from 43 key informant interviews and FGDs to create the National Cancer Registry Development Plan. The results were summarized using a cancer data process flow diagram, context-view system architecture model, and logic models detailing the roadmap plans for the next 10 years. The study was able to show how the development of a national cancer registry plan that seeks to unite existing population-based cancer registries (PBCRs) and hospital-based cancer registries (HBCRs) is only possible through extensive collaboration and effective stakeholder engagement. Using an evidence-based approach with expert knowledge and validation, the Philippine National Cancer Registry Development Plan was created, an example of an e-health policy making process from which other developing countries can learn from.

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菲律宾创建国家癌症登记系统的进程
作为菲律宾癌症健康信息网络的新成员,菲律宾癌症中心(PCC)被要求按照《国家癌症综合控制法案》(NICCA)的规定建立国家癌症登记处。研究人员采用快速审查和快速现实主义审查方法,利用文献中的证据以及 43 次关键信息提供者访谈和 FGD 的数据,制定了国家癌症登记处发展计划。研究结果通过癌症数据流程图、上下文视图系统架构模型以及详细说明未来 10 年路线图计划的逻辑模型进行了总结。该研究能够表明,只有通过广泛合作和利益相关者的有效参与,才能制定出一项旨在联合现有人群癌症登记处(PBCR)和医院癌症登记处(HBCR)的国家癌症登记处计划。利用专家知识和验证的循证方法,制定了菲律宾国家癌症登记处发展计划,这是其他发展中国家可以借鉴的电子健康政策制定过程的一个范例。
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CiteScore
3.60
自引率
15.40%
发文量
51
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