Understanding the Neurodiversity of Grief: A Systematic Literature Review of Experiences of Grief and Loss in the Context of Neurodevelopmental Disorders

IF 2.9 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Review Journal of Autism and Developmental Disorders Pub Date : 2024-04-03 DOI:10.1007/s40489-024-00447-0
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Abstract

This systematic review explores lived experiences of grief in the context of neurodevelopmental disorders (NDDs), considering mental health impacts and how these experiences are expressed/understood. Reviewing qualitative research and grey literature centred on lived experience, 39 articles were identified through a systematic search of 8 databases and 1 page-ranked search engine. The articles were critically appraised, and results synthesised using thematic analysis and meta-synthesis. Four main themes and an overarching theme, titled Recognise the Unrecognised, emerged: Hidden Grief, Supported and Included, Understanding My Loss, and The Double Taboo of Death and Disability. The results indicate that grief often goes unrecognised in individuals with NDDs, especially following non-death losses. The implications of these findings and recommendations for future research are discussed.

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了解悲伤的神经多样性:关于神经发育障碍背景下的悲伤和失落体验的系统性文献综述
摘要 本系统综述探讨了神经发育障碍(NDDs)背景下的悲痛生活经历,考虑了对心理健康的影响以及如何表达/理解这些经历。通过对 8 个数据库和 1 个页面排名靠前的搜索引擎进行系统性检索,对以生活体验为中心的定性研究和灰色文献进行了回顾,确定了 39 篇文章。对这些文章进行了严格的评估,并使用主题分析和元综合法对结果进行了综合。最终形成了四个主题和一个总主题,标题为 "认识未被认识的":隐藏的悲伤、支持与包容、理解我的损失以及死亡与残疾的双重禁忌。研究结果表明,NDD 患者的悲伤常常不被承认,尤其是在非死亡损失之后。本文讨论了这些发现的影响以及对未来研究的建议。
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来源期刊
CiteScore
8.40
自引率
0.00%
发文量
51
期刊介绍: The Review Journal of Autism and Developmental Disorders publishes original articles that provide critical reviews of topics across the broad interdisciplinary research fields of autism spectrum disorders. Topics range from basic to applied and include but are not limited to genetics, neuroscience, diagnosis, applied behavior analysis, psychopharmacology, incidence, prevalence, etiology, differential diagnosis, treatment, measurement of treatment effects, education, perception and cognition. Topics across the life span are appropriate. In addition, given the high rates of comorbid conditions, the interface of sleep disorders, feeding problems, motor difficulties, ADHD, anxiety, depression and other disorders with autism spectrum disorders are appropriate. The Journal aims for an international audience as reflected in the editorial board.
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