Effect of Nursing Intervention Program on Psychosocial Problems among Family Caregivers of Children with Autism Spectrum Disorder

Shimaa Saied Adam, Hanaa Sayed Ewise, Mona Mohamed Barakat, Fathyea Abdallah Ahmed Shams Eldin
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Abstract

Background: Managing a child with autism is a difficult task that must be done daily. It has a huge impact on the child's well-being, the mental state of the parent, and their capacity to provide for their children. Recognizing the difficulties that parents face will open new avenues for research and the development of interventions. Aim: Evaluate the effect of nursing intervention program on psychosocial problems among family caregivers of children with autism spectrum disorder. Design: A quasi experimental design for one group (pre/post-test) was used. Setting: This study was carried out at the outpatient clinic of El Abbassia Psychiatric and Mental Health Hospital. Sampling: The study involved 75 family caregivers of children with autism spectrum disorder. Data Collection Tools: Four tools were used: Tool (I) Structured Interview questionnaire, Tool (II) Parenting Stress Index, Tool (III) Zarit Burden interviewing questionnaire for family caregivers, and Tool ( IV ) Explanatory Model Interview Catalogue-Community Stigma Scale. Results: This study shows that highly statistically significant differences were found between pre/post-program implementation in total levels of parenting stress, burden, and community stigma. In addition, there was a highly statistically significant correlation between total scores of parent stress, burden, and community stigma during the pre/post-program implementation phase (P≤ 0.001). Conclusion: Nursing intervention program has a significant positive effect on reduce psychosocial problems among family caregivers of children with autism spectrum disorder. Recommendations: Generate and manage nursing care plans for caregivers of children with autism spectrum disorder should focus on their child's psychiatric mental health aspect and provide caregivers with sufficient social support
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护理干预计划对自闭症谱系障碍儿童家庭照顾者心理社会问题的影响
背景介绍管理自闭症儿童是一项每天都必须完成的艰巨任务。这对孩子的幸福、父母的精神状态以及他们抚养孩子的能力都有巨大影响。认识到家长所面临的困难将为研究和开发干预措施开辟新的途径。目的:评估护理干预计划对自闭症谱系障碍儿童家庭照顾者心理社会问题的影响。设计:采用一组(前/后测试)准实验设计。研究地点本研究在 El Abbassia 精神病和心理健康医院门诊进行。抽样:研究涉及 75 名自闭症谱系障碍儿童的家庭照顾者。数据收集工具:使用了四种工具:工具(一)结构化访谈问卷,工具(二)养育压力指数,工具(三)Zarit 家庭照顾者负担访谈问卷,以及工具(四)解释性模型访谈目录--社区羞辱量表。结果:本研究表明,在实施计划前后,育儿压力、负担和社区污名化的总水平在统计学上存在显著差异。此外,在计划实施前/后阶段,家长压力、负担和社区耻辱感的总分之间存在高度统计学意义上的相关性(P≤ 0.001)。结论护理干预计划对减少自闭症谱系障碍儿童家庭照顾者的社会心理问题有明显的积极作用。建议为自闭症谱系障碍儿童的照顾者制定和管理护理计划时,应关注儿童的精神心理健康方面,并为照顾者提供足够的社会支持。
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