Research to classrooms: a co-designed curriculum brings All of Us data to secondary schools.

IF 4.7 2区 医学 Q1 COMPUTER SCIENCE, INFORMATION SYSTEMS Journal of the American Medical Informatics Association Pub Date : 2024-07-09 DOI:10.1093/jamia/ocae167
Louisa A Stark, Kristin E Fenker, Harini Krishnan, Molly Malone, Rebecca J Peterson, Regina Cowan, Jeremy Ensrud, Hector Gamboa, Crstina Gayed, Patricia Refino, Tia Tolk, Teresa Walters, Yong Crosby, Rubin Baskir
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Abstract

Objectives: We describe new curriculum materials for engaging secondary school students in exploring the "big data" in the NIH All of Us Research Program's Public Data Browser and the co-design processes used to collaboratively develop the materials. We also describe the methods used to develop and validate assessment items for studying the efficacy of the materials for student learning as well as preliminary findings from these studies.

Materials and methods: Secondary-level biology teachers from across the United States participated in a 2.5-day Co-design Summer Institute. After learning about the All of Us Research Program and its Data Browser, they collaboratively developed learning objectives and initial ideas for learning experiences related to exploring the Data Browser and big data. The Genetic Science Learning Center team at the University of Utah further developed the educators' ideas. Additional teachers and their students participated in classroom pilot studies to validate a 22-item instrument that assesses students' knowledge. Educators completed surveys about the materials and their experiences.

Results: The "Exploring Big Data with the All of Us Data Browser" curriculum module includes 3 data exploration guides that engage students in using the Data Browser, 3 related multimedia pieces, and teacher support materials. Pilot testing showed substantial growth in students' understanding of key big data concepts and research applications.

Discussion and conclusion: Our co-design process provides a model for educator engagement. The new curriculum module serves as a model for introducing secondary students to big data and precision medicine research by exploring diverse real-world datasets.

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将研究带入课堂:共同设计的课程将 "我们所有人 "的数据带入中学。
目的:我们介绍了让中学生参与探索美国国立卫生研究院全民研究计划公共数据浏览器中的 "大数据 "的新课程材料,以及合作开发这些材料所采用的共同设计过程。我们还介绍了用于开发和验证评估项目的方法,以研究教材对学生学习的有效性,以及这些研究的初步结果:来自美国各地的中学生物教师参加了为期 2.5 天的共同设计暑期学院。在了解了 "我们所有人 "研究计划及其数据浏览器之后,他们共同制定了学习目标,并初步构想了与探索数据浏览器和大数据有关的学习体验。犹他大学遗传科学学习中心团队进一步完善了教育工作者的想法。其他教师及其学生参与了课堂试点研究,以验证评估学生知识的 22 个项目的工具。教育工作者完成了有关教材及其经验的调查:使用我们所有人的数据浏览器探索大数据 "课程模块包括 3 个数据探索指南(让学生参与使用数据浏览器)、3 个相关的多媒体作品和教师支持材料。试点测试表明,学生对关键大数据概念和研究应用的理解有了很大提高:我们的共同设计过程为教育工作者的参与提供了一种模式。新课程模块是通过探索各种真实世界数据集向中学生介绍大数据和精准医学研究的典范。
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来源期刊
Journal of the American Medical Informatics Association
Journal of the American Medical Informatics Association 医学-计算机:跨学科应用
CiteScore
14.50
自引率
7.80%
发文量
230
审稿时长
3-8 weeks
期刊介绍: JAMIA is AMIA''s premier peer-reviewed journal for biomedical and health informatics. Covering the full spectrum of activities in the field, JAMIA includes informatics articles in the areas of clinical care, clinical research, translational science, implementation science, imaging, education, consumer health, public health, and policy. JAMIA''s articles describe innovative informatics research and systems that help to advance biomedical science and to promote health. Case reports, perspectives and reviews also help readers stay connected with the most important informatics developments in implementation, policy and education.
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