Plutonormativity: Illuminating Inequities in Assisted Reproduction and Genetics.

Health law in Canada Pub Date : 2019-06-01
Josephine Johnston
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Abstract

Researchers and research subjects are reporting that the results of genetic testing, including testing conducted using sequencing technology, could inform reproductive decisions. Thus far unacknowledged are the out-of-pocket expenses often associated with genomics-enabled reproductive planning. These expenses will render this benefit of medical technology inaccessible to many people. No word currently exists for the mistaken assumption that the typical person has significant financial resources or the construction of policies and practices with that assumption baked in. In this essay, I propose the term "plutonormativity" to illuminate these often unacknowledged inequities. I then show how plutonormative thinking is operating in one particular context: access to reproductive planning within current discussions of the benefits of the genetic testing.

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Plutonormativity:说明辅助生殖和遗传学中的不公平现象。
研究人员和研究对象都报告说,基因检测(包括使用测序技术进行的检测)的结果可以为生殖决策提供依据。迄今为止,与基因组学辅助生殖计划相关的自付费用尚未得到承认。这些费用将使许多人无法享受医疗技术带来的好处。目前还没有一个词来描述这样一种错误的假设,即一般人都拥有雄厚的经济实力,也没有一个词来描述基于这种假设而制定的政策和做法。在这篇文章中,我提出了 "plutonormativity "一词,以阐明这些往往不为人知的不公平现象。然后,我将展示 "plutonormativity "思维是如何在一个特定的背景下运作的:在当前关于基因检测益处的讨论中,生殖计划的获取。
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Plutonormativity: Illuminating Inequities in Assisted Reproduction and Genetics. Part III: Occupational Disability Determination/Rehabilitation Best Practices and the Role of Situational Work Assessment and Simulated Work/Academic Trials. A Need to Know Basis? Canadian Federalism and the Disclosure of Egg and Sperm Donor Identities. Issues of Vulnerability and Equality: The Emerging Need for Court Evaluations of Physicians' Fiduciary Duties in High Stakes End-of-Life Decisions. Editorial.
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