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Plutonormativity: Illuminating Inequities in Assisted Reproduction and Genetics. Plutonormativity:说明辅助生殖和遗传学中的不公平现象。
Pub Date : 2019-06-01
Josephine Johnston

Researchers and research subjects are reporting that the results of genetic testing, including testing conducted using sequencing technology, could inform reproductive decisions. Thus far unacknowledged are the out-of-pocket expenses often associated with genomics-enabled reproductive planning. These expenses will render this benefit of medical technology inaccessible to many people. No word currently exists for the mistaken assumption that the typical person has significant financial resources or the construction of policies and practices with that assumption baked in. In this essay, I propose the term "plutonormativity" to illuminate these often unacknowledged inequities. I then show how plutonormative thinking is operating in one particular context: access to reproductive planning within current discussions of the benefits of the genetic testing.

研究人员和研究对象都报告说,基因检测(包括使用测序技术进行的检测)的结果可以为生殖决策提供依据。迄今为止,与基因组学辅助生殖计划相关的自付费用尚未得到承认。这些费用将使许多人无法享受医疗技术带来的好处。目前还没有一个词来描述这样一种错误的假设,即一般人都拥有雄厚的经济实力,也没有一个词来描述基于这种假设而制定的政策和做法。在这篇文章中,我提出了 "plutonormativity "一词,以阐明这些往往不为人知的不公平现象。然后,我将展示 "plutonormativity "思维是如何在一个特定的背景下运作的:在当前关于基因检测益处的讨论中,生殖计划的获取。
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引用次数: 0
Editorial. 社论。
Pub Date : 2017-05-01
Rosario G Cartagena
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引用次数: 0
Part III: Occupational Disability Determination/Rehabilitation Best Practices and the Role of Situational Work Assessment and Simulated Work/Academic Trials. 第三部分:职业残疾确定/康复最佳实践以及情景工作评估和模拟工作/学术试验的作用。
Pub Date : 2017-05-01
Douglas J Jr Salmon, Heather A Pickin, Jacques J Gouws

This is the final in a series of three papers addressing common occupational disability entitlements from an Ontario motor vehicle accident (MVA) perspective, which are also applicable to long-term disability cases. The first paper supported using a holistic model in the assessment of accident injured persons who are unable to return to the pre-accident occupation (pre- 104 disability/"own occupation") because of accident-caused impairments. The second paper discussed case law, best practice and the Post-104 Week IRB Disability ("any occupation") test and demonstrated the difficulties individuals face when they are unable to return to work in the aftermath of a debilitating motor vehicle accident. In this third and final paper, the purposes and roles of the Situational Work Assessment and Simulated Work/Academic Trials are critically evaluated in the occupational disability context. These methodologies are used to determine an individual's capacity to competitively meet the physical, cognitive and interpersonal/behavioural demands of his or her pre-condition occupation, or any occupation for which he or she is suited by education, training or experience, thereby addressing entitlement to income replacement benefits (IRB). It is vital that occupational disability assessments are comprehensive, holistic, include an undestanding of the synergistic impact of the impairment on the individual's physical, cognitive and psychosocial work capacities, and are conducted through multi-modal means. To conclude, the overriding principles and themes of all three articles are synthesized.

这是从安大略省机动车事故(MVA)角度讨论常见职业残疾权利的三篇系列论文中的最后一篇,这也适用于长期残疾案件。第一篇论文支持使用整体模型来评估因事故造成的损伤而无法回到事故前职业(104年前残疾/“自己的职业”)的事故受伤人员。第二篇论文讨论了判例法、最佳实践和104周后的IRB残疾(“任何职业”)测试,并展示了个人在一次使人虚弱的机动车事故后无法重返工作岗位时所面临的困难。在这第三篇也是最后一篇论文中,情境工作评估和模拟工作/学术试验的目的和作用在职业残疾背景下进行了批判性评估。这些方法用于确定个人在其先决条件职业或其教育、培训或经验适合的任何职业中具有竞争力地满足身体、认知和人际/行为要求的能力,从而解决收入替代福利(IRB)的权利。至关重要的是,职业残疾评估是全面、全面的,包括了解残疾对个人身体、认知和社会心理工作能力的协同影响,并通过多模式手段进行。综上所述,所有三篇文章的压倒一切的原则和主题是综合的。
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引用次数: 0
A Need to Know Basis? Canadian Federalism and the Disclosure of Egg and Sperm Donor Identities. 需要知道的基础?加拿大联邦制和卵子和精子捐赠者身份的披露。
Pub Date : 2017-05-01
Matt Malone

In Canada, gamete donation can be known or anonymous. When a child is conceived using anonymously donated gametes, that child does not have a right to know the identity of their donor. Currently, there is no registry storing gamete donor information accessible to donor-conceived persons and no legislation or judicial precedent protecting a donor-conceived person's right to know the identity of their biological parent(s). With third party reproduction now regularly shifting the traditional outlines of family, these practices are increasing- ly attracting judicial oversight. This paper examines the consequences of the Supreme Court of Canada's Reference re Assisted Human Reproduction Act, S.C. 2004, c. 2 (AHRA), which identified donor anonymity as a matter of provincial jurisdiction. The paper argues that the Supreme Court's decision defined the future of anonymous gamete donation in Canada by strongly protecting anonymity.

在加拿大,配子捐赠可以是已知的,也可以是匿名的。当一个孩子是通过匿名捐赠的配子受孕的,这个孩子没有权利知道捐赠者的身份。目前,还没有一个登记机构储存供受赠人查阅的配子供体信息,也没有立法或司法先例保护受赠人了解其亲生父母身份的权利。随着第三方生育现在经常改变传统家庭的轮廓,这些做法越来越受到司法监督。本文考察了加拿大最高法院的参考《辅助人类生殖法》,S.C. 2004, c. 2 (AHRA)的后果,该法案将捐赠者匿名确定为省级管辖事项。该论文认为,最高法院的决定通过强有力地保护匿名性,定义了匿名配子捐赠在加拿大的未来。
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引用次数: 0
Issues of Vulnerability and Equality: The Emerging Need for Court Evaluations of Physicians' Fiduciary Duties in High Stakes End-of-Life Decisions. 脆弱性和平等的问题:在高风险的临终决定对医生的信托义务的法院评估的新需要。
Pub Date : 2017-05-01
Laura Hawryluck

At the heart of high stakes end of life (EOL) decisions such as withdrawal of life-sustaining treatments (WLST) or medical assistance in dying (MAiD), are concerns that vulnerable people in our society need to be legally protected from prematurely ending their own lives or from having their lives inappropriately ended by healthcare teams predisposed to negatively assess their quality of life. Recently, two Supreme Court of Canada rulings in Rasouli and Carter (MAiD) have clearly emphasized the role of consent in providing legal protections to people at the end of life. The role of the medical standard of care is less clear: though the Supreme Court in Rasouli was careful to state there had been no ruling on the medical standard of care with respect to WLST, the Court did state that standard of care considerations would be important in such decisions. In contrast to Rasouli, the result of the Carter ruling was that consent alone is insufficient protection for physician assisted death without a medical standard of care. Subsequently, in its new legislation, the Canadian Government restricted access to MAiD on the grounds that some people - those who lose capacity, with mental illnesses and mature minors - are so vulnerable that this potential choice at the EOL must be denied. In simple terms, for some, consent and the medical standard of care are insufficient protections. Such claims and their consequences are a sign of an emerging and significant problem: the reduction of medicine to a mere contractual relationship while disregarding its fiduciary nature simply because the courts have, in the words of Chief Justice McLachlin, "never reviewed physicians' good faith treatment decisions on the basis of fiduciary duty". The goals of this article are to explore issues of vulnerability and equality, the existing protections in both medicine and law and the emerging need for courts to evaluate physicians' fiduciary duties in high stakes EOL decisions in order to resolve conflicts with respect to WLST, to ensure access to MAiD and to promote the future aualitv of EOL care for all Canadians.

在高风险的生命终结(EOL)决定的核心,如撤销维持生命治疗(WLST)或临终医疗援助(MAiD),是我们社会中的弱势群体需要得到法律保护,以免过早结束自己的生命,或让他们的生命被倾向于负面评估他们生活质量的医疗团队不恰当地结束。最近,加拿大最高法院在Rasouli和Carter (MAiD)一案中的两项裁决明确强调了同意在为生命结束的人提供法律保护方面的作用。医疗护理标准的作用则不太明确:尽管Rasouli案最高法院谨慎地指出,没有就WLST的医疗护理标准作出裁决,但法院确实指出,在此类决定中,护理标准的考虑将是重要的。与Rasouli的判决相反,卡特判决的结果是,仅凭同意不足以保护医生在没有医疗标准的情况下协助死亡。随后,加拿大政府在其新立法中限制使用MAiD,理由是有些人——那些丧失行为能力的人、患有精神疾病的人和成年未成年人——是如此脆弱,必须拒绝这种在EOL的潜在选择。简单地说,对一些人来说,同意和医疗标准是不够的保护。这类索赔及其后果是一个正在出现的重大问题的标志:将医疗简化为一种纯粹的合同关系,而忽视其信托性质,仅仅是因为法院,用首席大法官McLachlin的话来说,“从未审查医生基于信托义务的善意治疗决定”。本文的目的是探讨脆弱性和平等问题,医学和法律上的现有保护措施,以及法院评估医生在高风险EOL决策中的信托义务的新需求,以解决与WLST相关的冲突,确保获得MAiD并促进所有加拿大人未来的EOL护理质量。
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引用次数: 0
The Intersection Between Clinic Law and Heal: Responding to Issues Faced by People With HIV. 诊所法律与治疗之间的交叉:应对艾滋病毒感染者面临的问题。
Pub Date : 2017-05-01
Ryan Peck
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引用次数: 0
Six Myths About Pharmacare. 关于药物保健的六个误区。
Pub Date : 2017-02-01
Joel Lexchin

Canada is the only country with a universal public health care system that does not include coverage for prescription drugs; lack of drug coverage leads to underuse of necessary medications. Arguments have been advanced for and against a national pharmacare plan. This article investigates six commonly cited reasons for not introducing such a program in order to determine their validity - private plans are doing a good job, public plans should only cover the poor, strengthening the pan-Canadian Pharmaceutical Alliance is all that is needed, a public plan will deny people access to important new drugs, pharmacare will cost too much and pharmacare is just about money. The evidence presented shows that these are just myths.

加拿大是唯一一个拥有不包括处方药的全民公共医疗体系的国家;缺乏药物覆盖导致必要药物的使用不足。支持和反对国家药品保险计划的争论已经提出。本文调查了六个常见的不引入这种计划的原因,以确定它们的有效性——私人计划做得很好,公共计划应该只覆盖穷人,加强泛加拿大制药联盟是所有需要的,公共计划将剥夺人们获得重要新药的机会,药物保险将花费太多,药物保险只是关于钱。证据表明,这些只是神话。
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引用次数: 0
The Canada Health Act for the Twenty-First Century?. 21世纪加拿大卫生法?
Pub Date : 2017-02-01
Raisa Deber, Brenda Gamble

As the participants in the Canada Health Act, Version 2.0 conference made clear, there is a strong case to be made that this key piece of legislation no longer captures some key challenges to managing health care in Canada. Particular issues include 'portability' across provincial/territorial boundaries, and the definition of insured services. However, the CHA is not a barrier to reform; it acts as a floor, rather than a ceiling. Health reform may thus require a combination of new legislation to set conditions for which new services should be insured, and developing mechanisms to identify priorities, ensure appropriateness, and improve efficiency, which are unlikely to be addressed through overarching legislation. The CHA should thus be maintained, recognizing that it is necessary, but not sufficient.

正如加拿大卫生法2.0版会议的与会者所明确指出的那样,有一个强有力的例子表明,这一关键立法不再抓住加拿大管理卫生保健的一些关键挑战。具体问题包括跨省/地区边界的“可移植性”,以及被保险服务的定义。然而,CHA并不是改革的障碍;它的作用是地板,而不是天花板。因此,保健改革可能需要制定新的立法,为新服务提供保险设定条件,并制定确定优先事项、确保适当性和提高效率的机制,这些问题不太可能通过总括性立法来解决。因此,应该维持CHA,认识到它是必要的,但不是充分的。
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引用次数: 0
Canada Health Act 2.0: Are the Fundamental Principles Still Current, or Do They Need to be Revisited? 加拿大卫生法2.0:基本原则仍然有效,还是需要重新审视?
Pub Date : 2017-02-01
Harvey Schipper

The Canada Health Act was passed in the run-up to the 1984 Federal Election to meet a political problem - perceived inequities in access to care due to extra-billing by physicians and hospitals. At that time, health care as a right of citizenship was still a topic of debate. Health care was for the sick, and effective interventions were few and inexpensive. The provision of health care was seen as a morally justified social cost. Today the problem is different. We are in the midst of the largest transformation in biological understanding since the invention of the microscope. New treatments are being found powerfully effective, yet costly. A new, high value added, economic sector has developed: health innovation. Health care is an unquestioned social right. Yet, although a disproportionate amount of the foundational science has come from Canada, increasingly we are unable to access the medical, economic and social benefits of a global health economy. We need a permissive, catalytic, legislative framework (CHA 2.0) that will bring together the economic strength of health innovation and the delivery of its benefits to the health and wellness of Canadians. It would espouse the following seven principles: 1. Health care and health innovation are parts of a nationally critical health economy, with a global perspective. 2. Public and private sector involvement and accountability. 3. Change and innovation mandated and rewarded. 4. Labour mobility across jurisdictions, and role mobility across professions. 5. Patient-centred care. 6. Holistic and comprehensive, based on evidence. 7. Outcome (not process) driven, and transparent in implementation.

《加拿大卫生法》是在1984年联邦选举前夕通过的,目的是解决一个政治问题,即医生和医院在获得医疗服务方面的不公平待遇。当时,保健作为一项公民权利仍然是一个争论的话题。卫生保健是为病人提供的,有效的干预措施很少,而且价格低廉。提供保健被视为道德上合理的社会成本。今天的问题不同了。自显微镜发明以来,我们正处于对生物学认识的最大变革之中。人们发现新的治疗方法非常有效,但费用昂贵。一个新的、高附加值的经济部门已经发展起来:卫生创新。保健是一项不容置疑的社会权利。然而,尽管不成比例的基础科学来自加拿大,但我们越来越无法获得全球卫生经济的医疗、经济和社会效益。我们需要一个宽松的、具有催化作用的立法框架(CHA 2.0),将卫生创新的经济力量结合起来,并为加拿大人的健康和福祉带来好处。它将支持下列七项原则:卫生保健和卫生创新是具有全球视野的国家关键卫生经济的组成部分。2. 公共和私营部门的参与和问责制。3.变革和创新得到授权和奖励。4. 跨司法管辖区的劳动力流动,以及跨职业的角色流动。5. 病人护理。6. 全面的,全面的,基于证据的。7. 以结果(而非过程)为导向,并在实施中保持透明。
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引用次数: 0
Putting People First: Critical Reforms for Canada's Health Care System. 以人为本:加拿大医疗保健系统的关键改革。
Pub Date : 2017-02-01
Menaka Pai, Harvey Schipper, Harry Swain

For over 70 years, since the Dominion Provincial Conferences at the end of the Second World War, Canadians have viewed health care as a right of citizenship. The Canada Health Act (CHA, 1984) formally entrenched the five principles that guide our current publicly operated, single payer, provincially managed system: public administration, comprehensiveness, universality, portability and accessibility. The health care system that has sprung up around the CHA has become increasingly complex, costly and strained. Our gradual descent through the rankings of major health care suggests that we are reaching the limits of what the current health care system can provide. Unfortunately, constructive political debate around this issue is often choked by intense ideological positioning. System reform is urgently needed to address the rapidly changing biological and demographic drivers of health. We do not feel that diverting ever larger flows of money into the status quo is a sustainable solution. Our nation's health and the means to advance it must be seen as assets rather than costs. We believe it is possible to meet increasing demands by expanding the supply and acknowledging the wealth of resources (scientific, human, managerial and educational) that we currently possess. In this paper we propose a cultural shift from an institution-centered system bent on cost control, to a patient-centered system that fosters a true health economy. We identify a series of interventions (some bold and others less so) to achieve a clear and evaluable goal: maximizing the well-being and debility-free life expectancy of each individual. To achieve a patient-centred system-we discuss strategies to address costs and utilization, the setting of real performance standards, the elimination of conflicts of interest and the provision of truly accessible care for all Canadians. To create a health economy, we discuss the importance of innovation, the need for a reinvigorated public health system and steps to overhaul the health care human resources environment. The goal of health care reform in Canada should be a system that is dynamic, evidence based, wealth creating and a global leader. We believe that, with leadership and vision, this goal is eminently achievable.

70多年来,自第二次世界大战结束时的自治领省会议以来,加拿大人一直将保健视为一项公民权利。《加拿大卫生法》(CHA, 1984)正式确立了指导我们目前公共运作、单一付款人、省级管理系统的五项原则:公共管理、全面性、普遍性、可移植性和可及性。在CHA周围涌现的医疗保健系统已经变得越来越复杂、昂贵和紧张。我们通过主要医疗保健排名的逐渐下降表明,我们正在达到当前医疗保健系统所能提供的极限。不幸的是,围绕这个问题的建设性政治辩论往往被强烈的意识形态定位所扼杀。迫切需要进行制度改革,以应对迅速变化的生物和人口健康驱动因素。我们不认为把越来越多的资金流转移到维持现状是一个可持续的解决办法。我们国家的健康和促进健康的手段必须被视为资产,而不是成本。我们相信,通过扩大供应和承认我们目前拥有的丰富资源(科学、人力、管理和教育),有可能满足日益增长的需求。在本文中,我们提出了一种文化转变,从一个以机构为中心的系统,倾向于成本控制,以病人为中心的系统,培养一个真正的健康经济。我们确定了一系列干预措施(有些大胆,有些则不那么大胆),以实现一个明确的、可评估的目标:最大限度地提高每个人的福祉和无衰弱的预期寿命。为了实现以患者为中心的系统,我们讨论了解决成本和利用问题的策略,制定真正的绩效标准,消除利益冲突,为所有加拿大人提供真正可获得的医疗服务。为了创建健康经济,我们讨论了创新的重要性,重振公共卫生系统的必要性,以及改革卫生保健人力资源环境的步骤。加拿大医疗保健改革的目标应该是建立一个动态的、以证据为基础的、创造财富的和全球领先的体系。我们相信,凭借领导和远见,这一目标是完全可以实现的。
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引用次数: 0
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Health law in Canada
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