Complaining while disabled: Disabled people's experiences expressing complaints within the context of sexuality

Ásta Jóhannsdóttir, Embla Guðrúnar Ágústsdóttir
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Abstract

Within critical disability research, little attention has been paid to the concept of complaint in relation to disabled people. While the demand for thankfulness has been studied to some extent, it is interesting to investigate how and if the complaints of disabled people are heard. This paper explored disabled people's experiences of expressing complaints within the context of sexuality, and the reaction such complaints stirred. The experiences of marginalised groups are often coloured by microaggressions that are not very visible and are regularly trivialised. Studies have shown that microaggressions are a dominant factor affecting the daily lives of disabled people and are thus important to examine further. The data were collected in 2019 and consisted of five interviews and three focus group meetings with 13 participants. Our findings showed that microaggressions are a leading factor in disabled people's daily lives and that they require constant reaction. One of the manifestations of microaggressions is the idea that disabled people should be grateful; thus, they have little room to complain, make demands, or set boundaries. Therefore, expressions of sexuality and desire are often accompanied by feelings of shame among disabled people.
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残疾人投诉:残疾人在性方面表达投诉的经历
在批判性残疾研究中,很少有人关注与残疾人有关的投诉概念。虽然在某种程度上已经对感恩的要求进行了研究,但对如何以及是否能听到残疾人的抱怨进行调查还是很有意义的。本文探讨了残疾人在性方面表达抱怨的经历,以及这些抱怨所引起的反应。边缘化群体的经历往往受到微小侵害的影响,这些微小侵害并不明显,而且经常被轻描淡写。研究表明,微侵害是影响残疾人日常生活的主要因素,因此有必要对其进行进一步研究。数据收集于 2019 年,包括五次访谈和三次焦点小组会议,共有 13 人参与。我们的研究结果表明,微侵害是残疾人日常生活中的一个主要因素,需要对其不断做出反应。微观诽谤的表现之一是认为残疾人应该心存感激;因此,他们几乎没有抱怨、提出要求或设定界限的空间。因此,残疾人在表达性欲和欲望时往往会感到羞耻。
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