Do Reasons Matter? Navigating Parents' Reasons in Healthcare Decisions for Children.

IF 17 1区 哲学 Q1 ETHICS American Journal of Bioethics Pub Date : 2024-08-20 DOI:10.1080/15265161.2024.2388730
Bryanna Moore, Amy Caruso Brown
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Abstract

Bioethics has dedicated itself to exploring and defending both reasons for and against certain aspects of clinical care, biomedical research and health policy, including what decisions must be made, who should make them, and how they should be made. In pediatrics, it's widely acknowledged that parents' reasons may matter pragmatically; attending to parents' reasons is important if we want to work with families. Yet the conventional view in pediatric ethics is that parents' reasons are irrelevant to whether a decision is permissible or impermissible according to accepted ethical standards. In this paper, we explore whether parents' reasons matter ethically and, if so, in what way and for whom. First, we clarify what we mean by 'reasons.' Second, we provide an overview of how reasons are typically treated in medical decision-making and pediatric ethics. Third, we analyze a hypothetical pediatric case to illustrate how changing reasons can transform ethical analyses, including by contributing to where and how clinicians and ethicists draw the boundaries intrinsic to common pediatric ethical frameworks. We push back against the conventional view and argue that parents' reasons matter ethically in several ways. We call for further research on the role of parents' reasons in clinical ethics deliberation.

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理由重要吗?在儿童医疗保健决策中引导父母的理由。
生命伦理学致力于探讨和维护临床护理、生物医学研究和卫生政策某些方面的正反两方面理由,包括必须做出哪些决定、由谁做出决定以及如何做出决定。在儿科领域,人们普遍认为父母的理由可能很重要;如果我们想与家庭合作,关注父母的理由就很重要。然而,儿科伦理学的传统观点认为,根据公认的伦理学标准,父母的理由与一项决定是允许还是不允许无关。在本文中,我们将探讨父母的理由在伦理学上是否重要,如果重要,以何种方式重要,对谁重要。首先,我们澄清 "理由 "的含义。其次,我们概述了在医疗决策和儿科伦理中通常是如何处理理由的。第三,我们分析了一个假定的儿科病例,以说明原因的变化如何改变伦理分析,包括临床医生和伦理学家在哪里以及如何划定常见儿科伦理框架的固有界限。我们反驳了传统观点,认为父母的理由在伦理上有多方面的重要性。我们呼吁进一步研究父母的理由在临床伦理讨论中的作用。
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来源期刊
American Journal of Bioethics
American Journal of Bioethics 社会科学-科学史与科学哲学
CiteScore
12.30
自引率
26.90%
发文量
250
审稿时长
6-12 weeks
期刊介绍: The American Journal of Bioethics (AJOB) is a renowned global publication focused on bioethics. It tackles pressing ethical challenges in the realm of health sciences. With a commitment to the original vision of bioethics, AJOB explores the social consequences of advancements in biomedicine. It sparks meaningful discussions that have proved invaluable to a wide range of professionals, including judges, senators, journalists, scholars, and educators. AJOB covers various areas of interest, such as the ethical implications of clinical research, ensuring access to healthcare services, and the responsible handling of medical records and data. The journal welcomes contributions in the form of target articles presenting original research, open peer commentaries facilitating a dialogue, book reviews, and responses to open peer commentaries. By presenting insightful and authoritative content, AJOB continues to shape the field of bioethics and engage diverse stakeholders in crucial conversations about the intersection of medicine, ethics, and society.
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