Trends in Privacy of Adults With Intellectual and Developmental Disabilities Before and After the Home and Community-Based Services Final Rule

IF 1.1 4区医学 Q3 REHABILITATION Journal of Disability Policy Studies Pub Date : 2024-09-14 DOI:10.1177/10442073241278555

Renáta Tichá, Sandra L. Pettingell, James Houseworth, Julie Bershadsky, Roger J. Stancliffe, John G. Smith

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Abstract

In 2014, the Centers for Medicare & Medicaid Services (CMS) launched the Home and Community-Based Services (HCBS) Final Rule intended to improve the quality of HCBS for people with disabilities. The Rule focuses on improving outcomes through person-centered services and supports. These outcomes include privacy and dignity. This study reviewed state compliance with the Final Rule by examining statewide transition plans and investigating the Final Rule’s impact on privacy outcomes of adults with intellectual and developmental disabilities (IDD). We compared cross-sectional National Core Indicators® (NCI®) Adult Consumer Survey (ACS) 2012 to 2013 and Adult In-Person Survey (IPS) 2018 to 2019 data. Privacy (people letting them know before entering their home; being alone with friends/visitors at home) increased after Final Rule implementation. Individuals in the 2018 to 2019 group had 36% and 29% higher odds of being asked for permission to enter their home and of being alone with friends/guests, respectively. Age, gender, severity of ID, and several co-occurring conditions were also predictive of improvement in privacy.

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以家庭和社区为基础的服务》最终规则出台前后智力和发育障碍成人的隐私趋势

2014 年，联邦医疗保险和医疗补助服务中心（CMS）推出了《家庭和社区服务（HCBS）最终规则》，旨在提高残疾人家庭和社区服务的质量。该规则侧重于通过以人为本的服务和支持来改善成果。这些成果包括隐私和尊严。本研究通过审查全州过渡计划和调查《最终规则》对智力和发育障碍 (IDD) 成人隐私结果的影响，审查了各州对《最终规则》的遵守情况。我们比较了 2012 年至 2013 年全国核心指标® (NCI®) 成人消费者调查 (ACS) 和 2018 年至 2019 年成人个人调查 (IPS) 的横截面数据。最终规则》实施后，隐私权（人们在进入家中之前让他们知道；与朋友/访客单独在家）有所增加。2018 年至 2019 年组中的个人被要求允许进入家中以及与朋友/访客单独在家的几率分别高出 36% 和 29%。年龄、性别、智障严重程度和几种并发症也是隐私改善的预测因素。

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来源期刊

Journal of Disability Policy Studies REHABILITATION-

CiteScore

3.20

自引率

0.00%

发文量

期刊介绍： The Journal of Disability Policy Studies addresses compelling, variable issues in ethics, policy, and law related to individuals with disabilities. A major focus is quantitative and qualitative policy research. Articles have implications in fields such as education, law, sociology, public health, family studies, medicine, social work, and public administration. Occasional special series discuss current problems or areas needing more in-depth research, for example, disability and aging, policy concerning families of children with disabilities, oppression and disability, school violence policies and interventions, and systems change in supporting individuals with disabilities.