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Trends in Privacy of Adults With Intellectual and Developmental Disabilities Before and After the Home and Community-Based Services Final Rule 以家庭和社区为基础的服务》最终规则出台前后智力和发育障碍成人的隐私趋势
IF 1.6 4区 医学 Q3 REHABILITATION Pub Date : 2024-09-14 DOI: 10.1177/10442073241278555
Renáta Tichá, Sandra L. Pettingell, James Houseworth, Julie Bershadsky, Roger J. Stancliffe, John G. Smith
In 2014, the Centers for Medicare & Medicaid Services (CMS) launched the Home and Community-Based Services (HCBS) Final Rule intended to improve the quality of HCBS for people with disabilities. The Rule focuses on improving outcomes through person-centered services and supports. These outcomes include privacy and dignity. This study reviewed state compliance with the Final Rule by examining statewide transition plans and investigating the Final Rule’s impact on privacy outcomes of adults with intellectual and developmental disabilities (IDD). We compared cross-sectional National Core Indicators® (NCI®) Adult Consumer Survey (ACS) 2012 to 2013 and Adult In-Person Survey (IPS) 2018 to 2019 data. Privacy (people letting them know before entering their home; being alone with friends/visitors at home) increased after Final Rule implementation. Individuals in the 2018 to 2019 group had 36% and 29% higher odds of being asked for permission to enter their home and of being alone with friends/guests, respectively. Age, gender, severity of ID, and several co-occurring conditions were also predictive of improvement in privacy.
2014 年,联邦医疗保险和医疗补助服务中心(CMS)推出了《家庭和社区服务(HCBS)最终规则》,旨在提高残疾人家庭和社区服务的质量。该规则侧重于通过以人为本的服务和支持来改善成果。这些成果包括隐私和尊严。本研究通过审查全州过渡计划和调查《最终规则》对智力和发育障碍 (IDD) 成人隐私结果的影响,审查了各州对《最终规则》的遵守情况。我们比较了 2012 年至 2013 年全国核心指标® (NCI®) 成人消费者调查 (ACS) 和 2018 年至 2019 年成人个人调查 (IPS) 的横截面数据。最终规则》实施后,隐私权(人们在进入家中之前让他们知道;与朋友/访客单独在家)有所增加。2018 年至 2019 年组中的个人被要求允许进入家中以及与朋友/访客单独在家的几率分别高出 36% 和 29%。年龄、性别、智障严重程度和几种并发症也是隐私改善的预测因素。
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引用次数: 0
Helping the Elderly Live Better With Dementia: Recent Developments in Japan’s Adult Guardianship System and Its Role in Geriatric Social Work Practice 帮助老年痴呆症患者更好地生活:日本成人监护制度的最新发展及其在老年社会工作实践中的作用
IF 1.6 4区 医学 Q3 REHABILITATION Pub Date : 2024-02-21 DOI: 10.1177/10442073241232706
Jiyuan Zhang, Zi Yan
With the rapid aging of Japanese society and increasing concerns over the welfare of people with psychiatric disorders, intellectual disability, and dementia, a renewed adult guardianship system based on the notion of respect for self-determination, the practical use of one’s remaining abilities, and re-socialization, has now been in place for 20 years. Japanese adult guardianship practices are understudied in English language literature; thus, this article presents an overview of recent developments in Japan’s adult guardianship system and geriatric social work initiatives adopted in Japan’s adult guardianship practice. The authors found that the guardianship system not only helped the elderly live better with dementia but also contributed to the realization of “ageing in place” in the community-based integrated care system.
随着日本社会的快速老龄化,以及对精神障碍、智力障碍和痴呆症患者福利的日益关注,基于尊重自我决定、实际利用个人剩余能力和再社会化理念的成人监护制度已经实施了 20 年。英语文献中对日本的成人监护实践研究不足,因此本文概述了日本成人监护制度的最新发展以及日本成人监护实践中采取的老年社会工作措施。作者发现,监护制度不仅能帮助患有痴呆症的老人更好地生活,还有助于在社区综合护理系统中实现 "居家养老"。
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引用次数: 0
A Big Ten Leadership Approach to Service Animal Policy Development in Higher Education 十强领导制定高等教育服务动物政策的方法
IF 1.6 4区 医学 Q3 REHABILITATION Pub Date : 2023-12-07 DOI: 10.1177/10442073231215764
Ryan G. McCombs, Lisa A. Lambert-Snodgrass, F. R. Olenchak
There is a deficiency in scholarly research on higher education service animal policy that has created definitive gaps in how disability services office (DSO) directors approach policy development and how higher education institutions (HEIs) ensure access for service animal handlers. This qualitative research study aims to narrow these gaps by investigating the Big Ten Academic Alliance (Big Ten) DSO directors’ approaches to service animal policy development and exploring how federal and state legislation influence service animal policies. Participants in this study were five DSO directors from Big Ten institutions in the United States who participated in semistructured interviews. Findings reveal four themes associated with the approach Big Ten DSO directors take when developing and implementing service animal policies: (a) the influence of federal and state legislation, (b) transformational leadership, (c) social justice, access, and equity, and (d) involvement of institutional stakeholders in policy development.
关于高等教育服务动物政策的学术研究缺乏,这在残疾服务办公室(DSO)主任如何处理政策制定以及高等教育机构(HEIs)如何确保服务动物处理者获得服务方面造成了明显的差距。本定性研究旨在通过调查十大学术联盟(Big Ten) DSO主管制定服务性动物政策的方法,并探索联邦和州立法如何影响服务性动物政策,来缩小这些差距。本研究的参与者是来自美国十大机构的五名DSO主管,他们参加了半结构化访谈。调查结果揭示了与十大DSO董事在制定和实施服务动物政策时所采取的方法相关的四个主题:(a)联邦和州立法的影响,(b)变革型领导,(c)社会正义、获取和公平,以及(d)机构利益相关者参与政策制定。
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引用次数: 0
Linking Response to Intervention and Identification of a Specific Learning Disability 将干预反应与特定学习障碍的识别联系起来
4区 医学 Q3 REHABILITATION Pub Date : 2023-10-30 DOI: 10.1177/10442073231205606
Lauren N. Wong, Cynthia C. Griffin, Nicholas A. Gage
We investigated state and national trends in the enrollment of students ages 6 to 21 under the specific learning disability (SLD) category across 15 consecutive school years (2005–2006 to 2019–2020). We used multi-level modeling to estimate the effects of state and time on SLD enrollment and conducted a policy analysis of three states (Rhode Island, Kansas, and New Mexico) to examine changes in SLD policy (including Response to Intervention) in conjunction with trends in enrollment. Results indicate significant differences in SLD enrollment between states in the initial year and significant decreases in SLD enrollment over time, but no significant differences in the change in SLD enrollment between states. Results from the policy analysis suggest that the state policy context (including legal requirements in the SLD evaluation process), type of RTI model, and method of SLD evaluation can affect SLD enrollment. We discuss these results within the context of increased variability in RTI models.
我们调查了连续15个学年(2005-2006年至2019-2020年)6至21岁特殊学习障碍(SLD)类别学生入学率的州和全国趋势。我们使用多层次模型来估计州和时间对SLD入学率的影响,并对三个州(罗德岛州、堪萨斯州和新墨西哥州)进行了政策分析,以检查SLD政策(包括干预反应)的变化与入学率的趋势。结果表明,在第一年,不同州的SLD入学率有显著差异,随着时间的推移,SLD入学率显著下降,但各州之间的SLD入学率变化无显著差异。政策分析结果表明,国家政策背景(包括SLD评估过程中的法律要求)、RTI模型类型和SLD评估方法会影响SLD的入学率。我们在RTI模型变异性增加的背景下讨论这些结果。
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引用次数: 0
The COVID-19 Impact on Employment for LGBT Individuals With Disabilities: An Examination of the 2021 Household Pulse Survey 2019冠状病毒病对LGBT残疾人就业的影响:对2021年家庭脉搏调查的审查
4区 医学 Q3 REHABILITATION Pub Date : 2023-10-26 DOI: 10.1177/10442073231205605
Chris R. Surfus
The 2021 Household Pulse Survey (HPS) was examined as it relates to coronavirus disease 2019 (COVID-19) and the impact on employment for the lesbian, gay, bisexual, and transgender (LGBT) community and members with disabilities. The purpose of the study was to understand the effect of COVID-19 on both groups as it relates to employment, specifically focusing on work loss. In analyzing the HPS, the population of the LGBT community was estimated as 7.6%, while members with disabilities accounted for 13.2% of the total U.S. population; 5.5% more LGBT than non-LGBT, 9.8% more members with disabilities than without disabilities, and 18.3% more LGBT with disabilities than non-LGBT and not disabled members reported work loss during the COVID-19 pandemic. I found that the LGBT community and members with disabilities were more likely to have work loss and face employment challenges during the pandemic. I attributed these findings to LGBT and members with disabilities having been more likely to work in a service sector position. In addition to work loss, data on the LGBT and disabled population and the prevalence of disability in the LGBT community were presented.
研究了2021年家庭脉搏调查(HPS)与2019年冠状病毒病(COVID-19)以及对女同性恋、男同性恋、双性恋和变性人(LGBT)社区和残疾成员就业的影响的关系。该研究的目的是了解COVID-19对这两个群体的影响,因为它与就业有关,特别关注失业。在分析HPS时,LGBT社区的人口估计为7.6%,而残疾人占美国总人口的13.2%;在2019冠状病毒病大流行期间,LGBT成员比非LGBT成员多5.5%,残疾成员比无残疾成员多9.8%,残疾LGBT成员比非LGBT和非残疾成员多18.3%。我发现,在疫情期间,LGBT群体和残疾人士更容易失业,面临就业挑战。我将这些发现归因于LGBT和残疾成员更有可能在服务部门工作。除了失业之外,报告还提供了LGBT和残疾人口的数据,以及LGBT群体中残疾的患病率。
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引用次数: 0
Developing Implementation Capacity of a State Education Agency to Improve Outcomes for Students With Disabilities 发展国家教育机构的执行能力,以提高残疾学生的成绩
IF 1.6 4区 医学 Q3 REHABILITATION Pub Date : 2023-09-01 DOI: 10.1177/10442073221096393
Eric Kloos, Ellen Nacik, C. Ward
The U.S. Department of Education’s Office of Special Education Programs has adopted a Results Driven Accountability (RDA) framework to support state education agencies (SEAs) in improving results for students with disabilities. RDA directed SEAs to focus on measurable outcomes. A leadership team in a large Midwestern state in the United States partnered with an institute of higher education implementation science purveyor team to systematically apply a particular approach, the Active Implementation Frameworks (AIFs), to build capacity, effectively implement, and scale an evidence-based program, Check & Connect, to improve statewide graduation rates for Black and American Indian students with disabilities. The presented case example illustrates how the SEA partners with local education agencies’ district teams to continuously measure and manage changes in (a) system capacity and (b) practice fidelity to improve graduation rate outcomes. Application of the AIFs in education, measured implementation progress and preliminary outcome data, and implications for policy for individuals with disabilities are discussed.
美国教育部特殊教育项目办公室(Office of Special Education Programs)采用了结果驱动问责制(RDA)框架,以支持各州教育机构改善残疾学生的学习成绩。RDA指导SEAs侧重于可衡量的结果。美国中西部一个大州的一个领导团队与一个高等教育实施科学提供机构团队合作,系统地应用一种特殊方法,即主动实施框架(aif),以建立能力,有效实施和扩大基于证据的项目“检查与连接”,以提高该州黑人和美国印第安残疾学生的毕业率。所展示的案例示例说明了SEA如何与当地教育机构的地区团队合作,持续测量和管理(a)系统能力和(b)实践忠诚度的变化,以提高毕业率结果。讨论了aif在教育中的应用、衡量的实施进展和初步结果数据,以及对残疾人政策的影响。
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引用次数: 3
Expanding Law- and Policy-Relevant Discourse Within Special Education Research 拓展特殊教育研究中的法律与政策话语
IF 1.6 4区 医学 Q3 REHABILITATION Pub Date : 2023-07-31 DOI: 10.1177/10442073231185737
Natasha M. Strassfeld, K. Brady, Cynthia Dieterich
The field of special education stems from the efforts of parents, adults and children with disabilities, invested policymakers, and other civil rights advocates within legal and policy forums. Yet, over time, as intervention- and scientific-based research within special education were moved to the forefront, the focus on how special education practices are shaped by law and policy were siloed within academic discourse in special education journals. To better understand the use of legal and policy analysis as a methodology within special education journals, the authors systematically analyzed the submission criteria for the top-10 U.S. -based special education journals. Stemming from these findings, this article argues why it may be necessary to consider expanding the field of special education research to include more peer-reviewed academic journals with a predominant focus on special education and disability law and policy, as an understanding of how law and policy shape the academic and personal lives of students with disabilities and their families remains pertinent. Finally, the article offers a framework for creating new academic journals in this space that may offer opportunities to generate dialogue between academics, practitioners, and policymakers across an interdisciplinary discourse.
特殊教育领域源于残疾父母、成人和儿童、投资政策制定者以及法律和政策论坛中的其他民权倡导者的努力。然而,随着时间的推移,随着以干预和科学为基础的特殊教育研究被转移到最前沿,对法律和政策如何塑造特殊教育实践的关注被孤立在特殊教育期刊的学术论述中。为了更好地理解法律和政策分析作为一种方法在特殊教育期刊中的使用,作者系统地分析了美国十大特殊教育期刊的投稿标准。基于这些发现,本文认为有必要考虑扩大特殊教育研究领域,纳入更多以特殊教育和残疾法律和政策为主的同行评议学术期刊,因为了解法律和政策如何影响残疾学生及其家庭的学术和个人生活仍然是相关的。最后,本文为在这一领域创建新的学术期刊提供了一个框架,这可能为跨学科话语中的学者、从业者和政策制定者之间的对话提供机会。
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引用次数: 0
Are Special Education Data Ever “Race Neutral”? Reporting Educational Environments Data by Race and Ethnicity 特殊教育数据是否“种族中立”?按种族和民族报告教育环境数据
IF 1.6 4区 医学 Q3 REHABILITATION Pub Date : 2023-07-23 DOI: 10.1177/10442073231189473
Tye A. Ripma
The U.S. Department of Education’s Office of Special Education Programs collects data on how states implement the Individuals with Disabilities Education Act through the mandated State Performance Plan/Annual Performance Report (SPP/APR). Some indicators in the SPP/APR require state educational agencies (SEAs) to report data by race and ethnicity. These state-level reports consistently show that students of color with disabilities spend the most time in separate educational settings such as resource rooms and special day classes. Despite the racial and ethnic discrepancies in these data, SEAs do not report educational environments for children with disabilities by race and ethnicity at the local level. As a result, the public can only see racialized patterns in educational environments at the state level, not within local educational agencies. Race and ethnicity are important factors in addressing educational inequities. This article describes current special education data reporting requirements related to educational environments and offers policy, practice, and research implications for reporting race and ethnicity with these data.
美国教育部特殊教育项目办公室通过强制性的州绩效计划/年度绩效报告(SPP/APR)收集各州如何实施《残疾人教育法》的数据。SPP/APR中的一些指标要求州教育机构(SEAs)按种族和民族报告数据。这些州一级的报告一致表明,有色人种残疾学生在不同的教育环境中花费的时间最多,比如资源室和特殊的日间班。尽管这些数据中存在种族和民族差异,但SEAs并没有在地方一级按种族和民族报告残疾儿童的教育环境。因此,公众只能在州一级的教育环境中看到种族化的模式,而不是在地方教育机构中。种族和民族是解决教育不平等问题的重要因素。本文描述了当前与教育环境相关的特殊教育数据报告要求,并提供了使用这些数据报告种族和民族的政策、实践和研究含义。
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引用次数: 0
A Delphi Study to Generate, Clarify, and Prioritize Professional Recommendations on Age of Majority-Related Practice in Special Education 德尔菲法研究——生成、澄清和优先考虑特殊教育中与多数年龄相关的实践的专业建议
IF 1.6 4区 医学 Q3 REHABILITATION Pub Date : 2023-07-18 DOI: 10.1177/10442073231185740
Charles B. Walters, A. Plotner
A confluence of research and current events in the United States has brought guardianship for people with disabilities into focus in recent years. In the process, the field of special education has been confronted with an unpleasant reality. In their action or inaction, special education professionals may play a role in parents of students with disabilities pursuing undue and overbroad guardianship. The purpose of this study was to work with researchers and practitioners supporting alternatives to guardianship to gather their foremost recommendations for the field of special education on addressing the use of undue guardianship. To this end, the researchers conducted a three-round Delphi study with these established professionals to solicit, rate, and revise their ratings of related recommendations toward achieving consensus. The 30 top recommendations they offered have been collected here and discussed in terms of their relevance for policy, practice, and research in the field.
近年来,美国的研究和时事使残疾人监护成为人们关注的焦点。在这一过程中,特殊教育领域面临着一个令人不快的现实。特殊教育专业人员的作为或不作为可能会在残疾学生的父母寻求不当和过度监护方面发挥作用。本研究的目的是与支持监护替代方案的研究人员和从业者合作,收集他们在特殊教育领域关于解决不当监护使用问题的最重要建议。为此,研究人员对这些知名专业人士进行了三轮德尔菲研究,以征求、评分和修改他们对相关建议的评分,从而达成共识。这里收集了他们提出的30项最重要的建议,并根据它们与该领域的政策、实践和研究的相关性进行了讨论。
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引用次数: 0
Familiarity of Adapted Physical Activity Among Undergraduate Students: Personal Connection Matters 大学生对适应性体育活动的熟悉程度:人际关系问题
IF 1.6 4区 医学 Q3 REHABILITATION Pub Date : 2023-07-11 DOI: 10.1177/10442073231185262
Scott W. T. McNamara, E. Pitchford, Layne Case
The field of adapted physical activity (APA) and other areas often associated with APA focused on physical activity for people with disabilities, such as adapted physical education (APE) and disability sports (DS), is often marginalized and misunderstood. Little attention has been given to subsets of the general population’s familiarity of this field and related areas. The purpose of this study was to examine college students’ awareness of APA terminology and related organizations. Undergraduate college students ( n = 995) completed a survey on their familiarity of APA terminology (APE, DS, and therapeutic recreation [TR]) and related organizations (Paralympics [PL], and Special Olympics [SO]). Students were most familiar with SO, DS, and PL. Familiarity with these terms and organizations, except for TR, were positively associated with being comfortable with people with disabilities ( p < .01). Students who reported having a close connection to a person with a disability were significantly more familiar with DS and SO ( p = .001). Students with personal connections to people with disabilities appeared to be more aware of APA-related professions and associations. As future leaders, college students can influence the direction of future public policies and resources; thus, because these findings suggests that college students lack the basic familiarity with many APA-related areas, this insinuates that these areas may suffer from a lack of support policies and resources needed to flourish. Further research is needed to fully understand the relationships college students have with people with disabilities and how these may have more awareness of APA-related professions and associations.
适应体育活动领域和与适应体育活动相关的其他领域,如适应体育教育和残疾人体育,往往被边缘化和误解。很少注意到普通人群对该领域和相关领域的熟悉程度。本研究的目的是检验大学生对APA术语和相关组织的认识。大学生(n=995)完成了一项关于他们对APA术语(APE、DS和治疗性娱乐[TR])和相关组织(残奥会[PL]和特奥会[SO])的熟悉程度的调查。学生最熟悉SO、DS和PL。熟悉这些术语和组织,除了TR,与与残疾人相处融洽呈正相关(p<0.01)。报告与残疾人有密切关系的学生对DS和SO的熟悉程度明显更高(p=0.001)。与残疾人有私人关系的学生似乎更了解APA相关的职业和协会。作为未来的领导者,大学生可以影响未来公共政策和资源的方向;因此,由于这些发现表明大学生对许多APA相关领域缺乏基本的熟悉,这暗示着这些领域可能缺乏繁荣所需的支持政策和资源。需要进一步的研究来充分了解大学生与残疾人的关系,以及他们如何对APA相关的职业和协会有更多的认识。
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引用次数: 0
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Journal of Disability Policy Studies
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