A co-design case study of the development of heart failure e-TIPS to support self-management.

Q2 Medicine JMIR Cardio Pub Date : 2024-09-09 DOI:10.2196/57328

Caleb Ferguson, Scott William, Sabine M Allida, Jordan Fulcher, Alicia J Jenkins, Jo-Dee Lattimore, L-J Loch, Anthony Keech

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Abstract

Background: Heart failure (HF) is a complex syndrome associated with high morbidity and mortality and increased healthcare utilisation. Patient education is key to improving health outcomes, achieved by promoting self-management to optimise medical management. Newer digital tools like text messaging and smartphone applications provide novel patient education approaches.

Objective: To partner with clinicians and people with lived experience of HF to identify the priority educational topic areas to inform the development and delivery of a bank of electronic-message driven tips ('e-TIPS') to support HF self-management.

Methods: We conducted three focus groups with cardiovascular clinicians, people with lived experience of HF and their caregivers, which consisted of two stages: Stage 1 - an exploratory qualitative study to identify the unmet educational needs of people living with HF (previously reported) and Stage 2 - a co-design feedback session to identify educational topic areas and inform the delivery of e-TIPS. This paper reports the findings of the co-design feedback session.

Results: We identified five key considerations in delivering e-TIPS and five relevant HF educational topics for their content. Key considerations in e-TIP delivery included: (i) Timing of the e-TIPS; (ii) Clear and concise e-TIPS; (iii) Embedding a feedback mechanism; (iv) Distinguishing actionable and non-actionable e-TIPS; and (v) Frequency of e-TIP delivery. Relevant educational topic areas included: (i) cardiovascular risk reduction; (ii) Self-management; (iii) Food and nutrition; (iv) Sleep hygiene; and (v) Mental health.

Conclusions: The findings from this co-design case study have provided a foundation for developing a bank of e-TIPS. These will now be evaluated for usability in the BANDAIDS e-TIPS, a single group, quasi-experimental study of a 24-week e-TIP program (personalised educational messages) delivered via Short Message Service (ACTRN12623000644662).

Clinicaltrial:

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关于开发支持自我管理的心力衰竭 e-TIPS 的共同设计案例研究。

背景：心力衰竭（HF）是一种复杂的综合征，具有发病率高、死亡率高、医疗服务使用率高的特点。患者教育是改善健康状况的关键，通过促进自我管理来优化医疗管理。短信和智能手机应用程序等新型数字工具提供了新颖的患者教育方法：与临床医生和有高血压生活经验的人合作，确定优先教育主题领域，为开发和提供电子信息驱动的提示库（'e-TIPS'）提供信息，以支持高血压自我管理：我们与心血管临床医生、高血压患者及其护理人员开展了三个焦点小组讨论，讨论分为两个阶段：第一阶段--探索性定性研究，以确定高血压患者未得到满足的教育需求（之前已有报道）；第二阶段--共同设计反馈会议，以确定教育主题领域并为 e-TIPS 的实施提供信息。本文报告了共同设计反馈会议的结果：结果：我们确定了实施 e-TIPS 的五个主要考虑因素和五个相关的高频教育主题。提供 e-TIPS 的主要考虑因素包括(i) e-TIPS 的时间安排；(ii) 清晰简明的 e-TIPS；(iii) 嵌入反馈机制；(iv) 区分可操作和不可操作的 e-TIPS；以及 (v) e-TIP 的提供频率。相关教育主题领域包括(i) 降低心血管风险；(ii) 自我管理；(iii) 食物与营养；(iv) 睡眠卫生；以及 (v) 心理健康：本共同设计案例研究的结果为开发电子 TIPS 库奠定了基础。现在将在 BANDAIDS e-TIPS 项目中对其可用性进行评估，该项目是一项单组准实验研究，针对通过短信服务（ACTRN12623000644662）发送的为期 24 周的 e-TIP 计划（个性化教育信息）：

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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