Adapting the Care Partner Hospital Assessment Tool for Dementia Care

IF 11.1 1区医学 Q1 CLINICAL NEUROLOGY Alzheimer's & Dementia Pub Date : 2025-01-09 DOI:10.1002/alz.085916

Beth Fields

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Abstract

Background

Care partners commonly support patients living with dementia (PLWD) during and post-hospitalization, however, they frequently report feeling excluded from care and unprepared for their caregiving tasks. While the evidence-informed and validated Care Partner Hospital Assessment Tool (CHAT) was designed to better include and prepare family members and friends, it has not yet been adapted for the growing number of care partners supporting PLWD.

Objective

To adapt and finalize the CHAT for care partners of hospitalized PLWD.

Setting

Hospitals in the United States.

Study Population

We selected hospital-based clinicians who had at least 5 years of professional experience working with PLWD and their family/friends, and care partners who were at least 18 years old and provided support to a PLWD who experienced a hospitalization. A total of 7 clinicians and 5 care partners were recruited. Clinicians were White (100%), female (85%), and represented social work, nursing, occupational therapy, medicine, and pharmacy. Care partners ranged in age from 41 to 73 years, were White (100%), female (100%), and provided support to a mother or mother-in-law (30%), spouse/partner (20%), and other relative (50%).

Methods

Two design teams each consisting of clinicians and care partners respectively—were formed to suggest adaptations to CHAT and share satisfaction with the final tool. Teams completed 5 co-design videoconference sessions, with 2-3 weeks between each session. Sessions lasted approximately 60 minutes and were audio recorded. The Rapid Identification of Themes from Audio-recordings method was used to identify suggestions for adaptation between sessions, and thematic analysis was used to code the transcripts in NVivo.

Results

Adaptations to the CHAT included (a) providing options for dementia specific educational resources, (b) identifying power of attorney and care partner roles and responsibilities (c) using more comprehensive response options and simple language. After making adaptations, participants (100%) reported that they were satisfied or very satisfied with the final Dementia CHAT (i.e., D-CHAT). Participants described the D-CHAT as ‘empowering’, ‘comprehensive’, ‘collaborative’, and ‘helpful’.

Conclusion

The converged-upon D-CHAT is ready for feasibility testing in the hospital setting and may help guide clinicians’ inclusion and preparation of care partners of PLWD.

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调整痴呆护理伙伴医院评估工具

护理伙伴通常在住院期间和住院后支持痴呆症患者（PLWD），然而，他们经常报告感觉被排除在护理之外，并且没有准备好他们的护理任务。虽然以证据为依据并经过验证的护理伙伴医院评估工具（CHAT）旨在更好地包括家庭成员和朋友并使其做好准备，但它尚未适应越来越多支持PLWD的护理伙伴。目的调整和完善住院PLWD护理伙伴的CHAT。在美国设立医院。研究人群：我们选择医院的临床医生，他们至少有5年与PLWD及其家人/朋友一起工作的专业经验，以及年满18岁并为住院的PLWD提供支持的护理伙伴。共招募了7名临床医生和5名护理伙伴。临床医生为白人（100%），女性（85%），代表社会工作、护理、职业治疗、医学和药学。护理伙伴的年龄从41岁到73岁不等，为白人（100%）、女性（100%），并为母亲或岳母（30%）、配偶/伴侣（20%）和其他亲属（50%）提供支持。方法组成两个设计小组，分别由临床医生和护理伙伴组成，以建议对CHAT的适应性，并分享对最终工具的满意度。团队完成了5次共同设计的视频会议，每次会议间隔2 - 3周。会议持续约60分钟，录音。从录音中快速识别主题方法用于确定会议之间的适应建议，并使用主题分析对NVivo中的转录本进行编码。结果对CHAT的调整包括(a)提供痴呆症特定教育资源的选择；(b)确定委托书和护理伙伴的角色和责任；(c)使用更全面的回应选项和简单的语言。在进行调整后，参与者（100%）报告他们对最终的痴呆CHAT（即D - CHAT）感到满意或非常满意。与会者将D - CHAT描述为“授权”、“全面”、“协作”和“有益”。结论融合D - CHAT可在医院环境中进行可行性测试，有助于指导临床医生纳入和准备PLWD的护理伙伴。

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来源期刊

Alzheimer's & Dementia 医学-临床神经学

CiteScore

14.50

自引率

5.00%

发文量

299

审稿时长

3 months

期刊介绍： Alzheimer's & Dementia is a peer-reviewed journal that aims to bridge knowledge gaps in dementia research by covering the entire spectrum, from basic science to clinical trials to social and behavioral investigations. It provides a platform for rapid communication of new findings and ideas, optimal translation of research into practical applications, increasing knowledge across diverse disciplines for early detection, diagnosis, and intervention, and identifying promising new research directions. In July 2008, Alzheimer's & Dementia was accepted for indexing by MEDLINE, recognizing its scientific merit and contribution to Alzheimer's research.