Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network.

IF 2.1 Q3 MEDICINE, RESEARCH & EXPERIMENTAL Journal of Clinical and Translational Science Pub Date : 2024-12-16 eCollection Date: 2025-01-01 DOI:10.1017/cts.2024.670
Tara P McAlexander, Nora L Lee, Gina S Lovasi, Annemarie G Hirsch, Melissa N Poulsen, Brian Elbel, Lorna E Thorpe, D Leann Long, Leslie A McClure
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Abstract

Multi-site and multi-organizational teams are increasingly common in epidemiologic research; however, there is a lack of standards or best practices for achieving success in collaborative research networks in epidemiology. We summarize our experiences and lessons learned from the Diabetes Location, Environmental Attributes, and Disparities (LEAD) Network, a collaborative agreement between the Centers for Disease Control and Prevention and research teams at Drexel University, New York University, Johns Hopkins University and Geisinger, and the University of Alabama at Birmingham. We present a roadmap for success in collaborative epidemiologic research, with recommendations focused on the following areas to maximize efficiency and success in collaborative research agreements: 1) operational and administrative considerations; 2) data access and sharing of sensitive data; 3) aligning network research aims; 4) harmonization of methods and measures; and 5) dissemination of findings. Future collaborations can be informed by our experiences and ultimately dedicate more resources to achieving scientific aims and efficiently disseminating scientific work products.

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流行病学合作研究网络的考虑和建议:从糖尿病LEAD网络吸取的经验教训。
多地点、多组织团队在流行病学研究中越来越普遍;然而,缺乏在流行病学合作研究网络中取得成功的标准或最佳实践。我们总结了我们从糖尿病位置、环境属性和差异(LEAD)网络中获得的经验和教训,LEAD网络是疾病控制和预防中心与德雷塞尔大学、纽约大学、约翰霍普金斯大学和盖辛格大学以及阿拉巴马大学伯明翰分校的研究团队之间的合作协议。我们提出了一份成功开展流行病学合作研究的路线图,并提出了以下方面的建议,以最大限度地提高合作研究协议的效率和成功:1)操作和管理方面的考虑;2)敏感数据的访问和共享;3)对齐网络研究目标;4)方法和措施的统一;5)调查结果的传播。未来的合作可以借鉴我们的经验,并最终将更多的资源用于实现科学目标和有效传播科学工作成果。
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来源期刊
Journal of Clinical and Translational Science
Journal of Clinical and Translational Science MEDICINE, RESEARCH & EXPERIMENTAL-
CiteScore
2.80
自引率
26.90%
发文量
437
审稿时长
18 weeks
期刊最新文献
Health impacts of a remotely delivered prolonged nightly fasting intervention in stressed adults with memory decline and obesity: A nationwide randomized controlled pilot trial - ADDENDUM. Erratum: 489 Nasal-derived Extracellular Vesicles (EVs) carry a cargo of antiviral and immunomodulatory molecules - CORRIGENDUM. Local context review by single institutional review boards: Results from a modified Delphi process. Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network. Training T-shaped translational scientists.
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