A human-centered approach for sharing patient experiences through digital storytelling: a research through design study.

Abstract

This article outlines a human-centered approach to developing digital patient stories, for sharing their experiences in health care, while preserving patient and others' privacy. Employing a research-through-design approach, the study proposes a design solution using visualization and digital storytelling to document patients' and families' experiences and emotions, as well as their interactions with healthcare professionals in the postnatal unit. By transforming selected observational data into animated stories, this approach has the potential to elicit empathy, stimulate stakeholder engagement, and serve as a practical training tool for clinicians. This work was conducted as part of a broader study that aims to contribute to the existing knowledge base by advancing our understanding of stakeholder needs in birthing facilities and through postpartum discharge. This study primarily focuses on strategies for the development of digital stories and summarizes the factors that contributed to the production of digital stories within the context of sensitive data. It may serve as a valuable resource for students, researchers and practitioners interested in utilizing digital stories to encourage discussions, education and ultimately to enhance systems of health care for respect, equity and support.