Wish-Granting Interventions Promote Positive Emotions in Both the Short and Long Term in Children with Critical Illnesses and Their Families.

IF 2.1 4区医学 Q2 PEDIATRICS Children-Basel Pub Date : 2024-12-30 DOI:10.3390/children12010047

Hannah Roberts, Jenny Cook, Apple Lee, Wei Kok Loh, Nigel Teo, Joanne Su Yin Yoong, Marguerite Gorter-Stam

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Abstract

Background: Wish-granting interventions are recognized as positive experiences for children with critical illness and their families. While the positive effects have been shown in the immediate and short term, data on their long-term effects are lacking.

Objectives: To evaluate the effects of wish-granting interventions on children and parents during and post intervention-both in the weeks after, and up to 5 years after-and to examine any differences between these two groups.

Methods: A large-scale international survey was distributed to children (aged 13-17 years old in 2023) and their parents across 24 countries who received a wish-granting intervention in the preceding five years by Make-A-Wish Foundation International. Primary outcomes were positive emotions experienced by children and parents during and after the intervention (short term and long term). The secondary outcomes assessed were negative emotions in wish children, and to what extent children and parents felt the intervention created a sense of normalcy, benefitted other family members, created a happy memory, and gave relief from medical treatment, plus the perceived importance of wish-granting interventions.

Results: The responses of 535 children and 1062 parents were analyzed. Both groups reported increases in positive emotions during the early intervention stages, peaking when the wish was granted and persisting in the short and long term. No significant differences were found between children and parents during wish-granting or after the intervention. Negative emotions were reported by a minority of children. Over 80% of children and parents felt the intervention created a happy memory and provided relief from their medical treatments. Nearly all children (96.8%) and parents (95.4%) viewed a wish-granting intervention as important for children with a critical illness.

Conclusions: Wish-granting interventions can provide positive emotional benefits to both children and their families in both the short and long term.

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愿望实现干预对危重疾病儿童及其家庭短期和长期积极情绪的促进作用。

背景：实现愿望的干预措施被认为是重症儿童及其家庭的积极体验。虽然在近期和短期内已显示出积极影响，但缺乏关于其长期影响的数据。目的：评估愿望给予干预在干预期间和干预后对儿童和父母的影响，包括在干预后的几周，以及长达5年后，并检查这两组之间的差异。方法：对24个国家的儿童（2023年13-17岁）及其父母进行大规模的国际调查，这些儿童在过去5年里接受了国际许愿基金会（Make-A-Wish Foundation international）的许愿干预。主要结果是儿童和家长在干预期间和之后（短期和长期）所经历的积极情绪。评估的次要结果是愿望儿童的负面情绪，以及儿童和父母在多大程度上认为干预创造了一种正常感，使其他家庭成员受益，创造了快乐的记忆，并减轻了医疗负担，以及感知到实现愿望干预的重要性。结果：对535名儿童和1062名家长的反馈进行了分析。两组人都报告说，在早期干预阶段，积极情绪有所增加，在愿望实现时达到顶峰，并在短期和长期内持续。在愿望实现期间和干预后，孩子和父母之间没有发现显著差异。少数孩子有负面情绪。超过80%的儿童和家长认为干预创造了快乐的记忆，并使他们从医疗中解脱出来。几乎所有的儿童（96.8%）和家长（95.4%）都认为对患有危重疾病的儿童进行愿望实现干预是重要的。结论：愿望给予干预在短期和长期内对儿童及其家庭都有积极的情绪益处。

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来源期刊

Children-Basel PEDIATRICS-

CiteScore

2.70

自引率

16.70%

发文量

1735

审稿时长

6 weeks

期刊介绍： Children is an international, open access journal dedicated to a streamlined, yet scientifically rigorous, dissemination of peer-reviewed science related to childhood health and disease in developed and developing countries. The publication focuses on sharing clinical, epidemiological and translational science relevant to children’s health. Moreover, the primary goals of the publication are to highlight under‑represented pediatric disciplines, to emphasize interdisciplinary research and to disseminate advances in knowledge in global child health. In addition to original research, the journal publishes expert editorials and commentaries, clinical case reports, and insightful communications reflecting the latest developments in pediatric medicine. By publishing meritorious articles as soon as the editorial review process is completed, rather than at predefined intervals, Children also permits rapid open access sharing of new information, allowing us to reach the broadest audience in the most expedient fashion.