Bridging Gaps: Enhancing Sleep and Health Disparities in Latino Families with Young Adults with Autism Using a Culturally Adapted Intervention.

IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Journal of Racial and Ethnic Health Disparities Pub Date : 2026-04-01 Epub Date: 2025-01-29 DOI:10.1007/s40615-025-02295-y
Antonio F Pagán, Alejandro L Pagán, Linda Hernandez, Matthew R Cribbet, Katherine A Loveland, Ron Acierno
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Abstract

The present study examined the effects of a culturally adapted intervention, ¡Iniciando! la Adultez, on sleep and health-related quality of life (HRQoL) in Latino young adults with autism spectrum disorder (ASD) and their Spanish-speaking parents. The intervention targeted the transition to adulthood, a period associated with increased challenges in sleep and HRQoL, particularly for underserved Latino populations. Participants included 26 young adults and 38 parents who completed assessments at baseline and post-treatment. The results indicated significant improvements in several HRQoL domains for both groups, with young adults reporting enhanced emotional well-being, social functioning, and general health. Parents experienced notable improvements in subjective sleep quality, sleep latency, and global sleep quality, alongside enhanced emotional well-being and general health. Correlational analyses revealed significant associations between baseline sleep quality and post-treatment HRQoL, acculturative stress, and mental health outcomes, suggesting the interconnectedness of these factors. Parents generally reported poorer sleep and HRQoL than young adults at both time points, highlighting the ongoing challenges they face. Despite some improvements, overall sleep quality remained suboptimal, emphasizing the need for further refinement of interventions. This study underscores the importance of culturally tailored approaches in addressing the unique needs of Latino families affected by ASD and highlights the potential benefits of such interventions in improving sleep and HRQoL. Future research should explore the long-term sustainability of these improvements and address the remaining gaps in sleep quality. The findings contribute to a growing body of evidence supporting the need for culturally sensitive interventions in promoting well-being in marginalized communities.

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弥合差距:使用文化适应干预措施增强拉丁裔自闭症青年家庭的睡眠和健康差异。
本研究考察了一种文化适应性干预的效果,“Iniciando!”拉丁裔自闭症谱系障碍(ASD)年轻人及其讲西班牙语的父母的睡眠和健康相关生活质量(HRQoL)。干预的目标是向成年过渡,这一时期与睡眠和HRQoL的挑战增加有关,特别是对服务不足的拉丁裔人口。参与者包括26名年轻人和38名父母,他们在基线和治疗后完成了评估。结果表明,两组在几个HRQoL领域都有显著改善,年轻人的情绪健康、社会功能和总体健康状况都有所改善。父母在主观睡眠质量、睡眠潜伏期和整体睡眠质量方面都有显著改善,同时情绪幸福感和整体健康状况也有所改善。相关分析显示,基线睡眠质量与治疗后HRQoL、异文化压力和心理健康结果之间存在显著关联,表明这些因素之间存在相互联系。在这两个时间点,父母普遍报告的睡眠和HRQoL都比年轻人差,这凸显了他们面临的持续挑战。尽管有所改善,但整体睡眠质量仍不理想,强调需要进一步改进干预措施。这项研究强调了文化定制方法在解决受ASD影响的拉丁裔家庭的独特需求方面的重要性,并强调了这种干预措施在改善睡眠和HRQoL方面的潜在益处。未来的研究应该探索这些改善的长期可持续性,并解决睡眠质量方面的剩余差距。这些发现为越来越多的证据提供了依据,支持在促进边缘化社区福祉方面采取文化敏感干预措施的必要性。
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来源期刊
Journal of Racial and Ethnic Health Disparities
Journal of Racial and Ethnic Health Disparities PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
7.30
自引率
5.10%
发文量
263
期刊介绍: Journal of Racial and Ethnic Health Disparities reports on the scholarly progress of work to understand, address, and ultimately eliminate health disparities based on race and ethnicity. Efforts to explore underlying causes of health disparities and to describe interventions that have been undertaken to address racial and ethnic health disparities are featured. Promising studies that are ongoing or studies that have longer term data are welcome, as are studies that serve as lessons for best practices in eliminating health disparities. Original research, systematic reviews, and commentaries presenting the state-of-the-art thinking on problems centered on health disparities will be considered for publication. We particularly encourage review articles that generate innovative and testable ideas, and constructive discussions and/or critiques of health disparities.Because the Journal of Racial and Ethnic Health Disparities receives a large number of submissions, about 30% of submissions to the Journal are sent out for full peer review.
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