Supporting Parents of Adolescents With Intellectual Disabilities: A Systematic Review of Interventions

IF 1.9 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-02-19 DOI:10.1111/jar.70004

Emma Scripps, Daniel Sutherland, Peter E. Langdon, Richard P. Hastings, Kylie M. Gray

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Abstract

Background

This review aimed to synthesise the literature about interventions for parents of adolescents with intellectual disability, including parental experience of receiving interventions and intervention effectiveness.

Methods

Eligible interventions aimed to improve parenting skills and/or parent–adolescent relationships, adolescent behavioural/emotional problems and/or parent well-being. ASSIA, EMBASE, Medline, PsycINFO and Web of Science were last searched on 11 July 2024. The TIDieR checklist and the MMAT were used for quality appraisal. A narrative synthesis was conducted. (Pre-registration: PROSPERO CRD42022384409).

Results

Twelve studies with 1041 families were included. Intervention descriptions were detailed; however, study quality was mixed. Nearly all studies reported the intervention was associated with positive effects on parenting, parent–adolescent relationships, adolescent behaviour/emotional problems or parent well-being. Three randomised controlled trials (RCTs) offer the strongest evidence but are limited in quality. All studies investigating parent experiences reported positive responses.

Conclusions

High-quality studies (e.g., RCTs) are needed to enable conclusions about efficacy and effectiveness.

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支持智障青少年的父母：干预措施的系统回顾

本综述旨在综合有关智力障碍青少年父母干预的文献，包括父母接受干预的经验和干预的效果。方法干预措施旨在改善父母教养技巧和/或亲子关系、青少年行为/情绪问题和/或父母幸福感。ASSIA， EMBASE, Medline， PsycINFO和Web of Science最后检索时间为2024年7月11日。采用TIDieR检查表和MMAT进行质量评价。进行了叙事综合。（预登记：PROSPERO CRD42022384409）。结果纳入12项研究，共1041个家庭。详细描述干预措施；然而，研究质量参差不齐。几乎所有的研究都报告说，干预对养育子女、亲子关系、青少年行为/情绪问题或父母幸福感都有积极影响。三个随机对照试验（RCTs）提供了最有力的证据，但质量有限。所有调查父母经历的研究都报告了积极的反应。需要高质量的研究（如随机对照试验）来得出关于疗效和有效性的结论。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.