Quality of Life of Older Adults Living With Dementia and Caregiver Strain in Benin

IF 1.4 Q3 HEALTH CARE SCIENCES & SERVICES Value in health regional issues Pub Date : 2025-02-26 DOI:10.1016/j.vhri.2025.101080

Angeladine Kenne Malaha MPH, PhD , Clémence Thébaut PhD , Sem Harris Ahouantchede MSc , Dismand Stephan Houinato MD, PhD , Dieu donné Gnonlonfoun MD, PhD , Thierry Adoukonou MD, PhD , Grégoire Magloire Gansou MD , Pierre-Marie Preux MD, PhD , Maëlenn Guerchet PhD

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Abstract

Objectives

This study aimed at assessing the quality of life (QoL) of older adults living with dementia and caregiver strain in Benin, a West African country.

Methods

A cross-sectional study was conducted from October to November 2021, recruiting participants aged 60 and over and their caregivers from health facilities and a rural community in Benin. QoL of older adults and caregiver burden were collected using standardized instruments, namely the World Health Organization’s dementia QoL and Zarit Burden Interview, respectively.

Results

A total of 114 older adults (mean age 73 ± 10 years, 51% female) and their primary caregivers (mean age 49 ± 16 years, 70% female) participated, of whom 73 were recruited from health facilities and 41 from rural communities. Fifty percent of older adults were diagnosed with mild to severe dementia. The overall QoL was good, with rural participants scoring higher in daily life and urban participants scoring higher in emotion. Factors associated with decreased QoL were higher disability levels and greater caregiver burden. The mean caregiver burden score was 17 ± 13, with higher scores among those caring for older men. Increased disability in older adults and lower socioeconomic status were linked to higher caregiver strain, whereas better QoL in older adults and higher socioeconomic status reduced caregiver burden.

Conclusion

Enhancing access to healthcare, strengthening social support systems, and providing caregiver training and support are crucial for improving the well-being and care of individuals living with dementia in Benin.

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