Single cases from multiple perspectives: a qualitative study comparing the experiences of patients, patients' caregivers, surgeons, and nurses when bad news is delivered about cancer.

Tamyra Matthews, Donald Baken, Kirsty Ross
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引用次数: 5

Abstract

Background: Qualitative literature on the experiences of those delivering and receiving bad news about cancer has revealed what these parties consider important during the process across many different patient cases. The current study aims to add to this understanding by employing a "linked case" study design to directly compare the perspectives of patients, their caregivers, and health care professionals (HCPs) involved in a series of single-patient cases of breaking bad news.

Method: Semistructured interviews were conducted with 13 participants (5 patients, 4 caregivers, 2 surgeons, and 2 nurses) who formed 5 linked cases. Interviews were analyzed using interpretative phenomenological analysis and directly compared within each linked case.

Results: Analyses identified 2 main superordinate themes. The first labeled "accurately perceiving and responding to needs," included HCPs recognizing and responding to patients' and caregivers' individual emotional and informational needs. The second labeled "carers fulfilling necessary roles," identified the various roles HCPs and patients' caregivers took to satisfactorily meet patients' needs.

Conclusions: The findings suggest the importance of HCPs accurately perceiving and responding to patients' and caregivers' various needs and caregivers ability and willingness to fulfilling support roles in a way that aligns with their own resources and patients' needs. This highlights the value of HCPs developing and applying interpersonal skills within bad news encounters, working as a team, and exploring caregivers' resources for patient support.

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从多个角度看单个病例:一项定性研究,比较患者、患者护理人员、外科医生和护士在得知有关癌症的坏消息时的经历。
背景:关于那些传递和接受癌症坏消息的人的经历的定性文献揭示了这些当事人在许多不同病例的过程中认为重要的是什么。当前的研究旨在通过采用“关联病例”研究设计来增加这种理解,直接比较涉及一系列突发坏消息的单个患者病例的患者,其护理人员和卫生保健专业人员(HCPs)的观点。方法:采用半结构化访谈法,对13名参与者(5名患者、4名护理人员、2名外科医生和2名护士)进行访谈,形成5例关联病例。访谈采用解释性现象学分析进行分析,并在每个相关案例中进行直接比较。结果:分析确定了2个主要的上级主题。第一个标签是“准确感知和响应需求”,包括HCPs识别和响应患者和护理人员的个人情感和信息需求。第二个标签是“护理人员履行必要的角色”,确定了医护人员和患者的护理人员在满足患者需求方面所扮演的各种角色。结论:研究结果表明,医护人员准确感知和响应患者和护理人员的各种需求,以及护理人员以符合自身资源和患者需求的方式履行支持角色的能力和意愿的重要性。这突出了医护人员在遇到坏消息时发展和应用人际交往技巧、团队合作以及探索护理人员资源以支持患者的价值。
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