Occupations of Terminally Ill Chinese Older Adults and Their Caregivers in Singapore: A Qualitative Exploratory Study.

IF 1.5 4区心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Omega-Journal of Death and Dying Pub Date : 2024-12-01 Epub Date: 2022-06-14 DOI:10.1177/00302228221108288

Geck Hoon Lim, Celine Yong, Lauren J Breen, Sharon Keesing, Angus Buchanan

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Abstract

Occupations are everyday activities people do that bring meaning and purpose to life and is culturally shaped. This research aimed to explore the occupations of Chinese older adults living with a terminal illness and their caregivers in Singapore. Using a qualitative exploratory approach, 16 care recipient-family caregiver dyads were recruited from a local hospice provider. Semi-structured interviews were carried out and reflexive thematic analysis was employed. Three themes and seven subthemes described the challenges and changes to daily life faced by care recipients and caregivers as they adjusted to living with the terminal condition. Findings suggest that in a family-centric society, the occupations of care recipients are greatly impacted by their families. It is imperative to engage with family members in goal setting and intervention plans to facilitate therapy gains and carry-over into real life. These results may be applicable to other family-centric societies, but further research is required.

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新加坡中国老年绝症患者及其照护者职业:一项质性探索研究。

职业是人们为生活带来意义和目的的日常活动，是由文化塑造的。本研究旨在探讨新加坡中国老年绝症患者及其照顾者的职业状况。采用质性探索方法，从当地安宁疗护提供者招募了16对接受疗护者-家庭照护者。采用半结构化访谈和反身性主题分析。三个主题和七个副主题描述了接受护理者和护理者在适应晚期疾病生活时所面临的挑战和日常生活的变化。研究结果表明，在以家庭为中心的社会中，照顾者的职业受到家庭的极大影响。必须与家庭成员一起制定目标和干预计划，以促进治疗成果并将其延续到现实生活中。这些结果可能适用于其他以家庭为中心的社会，但需要进一步的研究。

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